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bridgetsmommy

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bridgetsmommy Rookie
bridgetsmommy
Posted

Hi Everyone,

For anyone who does Facebook, I started a "Parents of Children with Celiac Disease" group. I use Facebook often and thought it might be another route to giving each other support.

If interested, type in the above group name into the search and you'll come across it. I made it a "closed group" so you first have to request to be a member, much like the requesting a friend function.

Thanks,

AM

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Gluten-free-for-me Newbie
Gluten-free-for-me
Posted

This will be very helpful!

But If anyone knows of a regular Celiac group(one not of parents) that would be a great deal of help!

Wait. Update. Type in Celiac in the search and there's Celiac Awareness, Celiac Disease, etc. Nevermind!

psawyer Proficient
psawyer
Posted

There are a number of gluten and/or celiac related groups on FB.

Here are links to a few of them.

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

I am not endorsing any of these, I just know they exist because one of my FB friends is a member of all of them.

bridgetsmommy Rookie
bridgetsmommy
Posted
  • Author

Thanks, everyone. There wasn't a FB group specifically for parents of Celiac children, so I wanted to start one. As a parent of a newly diagnosed toddler and living in an area where there is currently no support group for parents, I really need to connect with other parents dealing with similar issues.

Have a great day!

Maiko Newbie
Maiko
Posted

I just put in a request to join. :D

mmmomx2 Rookie
mmmomx2
Posted

I did, too :)

jmjsmomma Apprentice
jmjsmomma
Posted

I just requested to join too!

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      When my wife attempted to open the online card in the store with a cashier, it would not work. We then showed the owner the link to the card, the online receipt that I got upon purchase, and even my bank statement confirming the purchase. That did not satisfy her, since she said she needed the link to open to reveal the gift ID num. They even admitted they had a systems problem around that time.
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      We were flabergasted that the owner would not acknowledge a $50 e-gift card I purchased for my celiac wife. My wife tried to open it in the store and was informed there had been a system change and they could not find the record. No worries, she was told, just talk to management. Six months later, and numerous absurd back and forths, and the owner literally informs me there have been "bad actors", so she can't make good on this lost gift card. In other words, she accused me of lying and committing fraud... over $50! Please be careful with your orders and purchases here.
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