Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My List Of Ailments Has Just Increased..again


jasonD2

Recommended Posts

jasonD2 Experienced

I am going to an oral pathologist next week because i think i have lichen planus. 2 weeks ago i had a bad stinging pain which i thought was just a canker sore, but it later turned into a much larger inflammation and it hasnt gotten better, even though the pain has subsided. If i am diagnosed with this now i have to worry about developing oral cancer because from what i hear its like chrohn's disease of the mouth. so here's my list:

1. IBS-C

2. Food sensitivities

3. gluten/lactose intolerance

4. weak bladder/prostate problems

5. anal fissure

6. anal fistula

7. hemmorhoid

8. Dry mouth

9. compressed disc in lower back

10. anxiety (because of all of the above)

Im only 34 years old and I now have to live with all of this. I'm falling apart and if im lucky maybe ill make it to 40 before a new ailment arises.

I feel so helpless and confused as to why i keep developing new problems. this isnt the life i wanted for myself

sorry for sounding like a wuss & thanx for allowing me to vent


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mysecretcurse Contributor

I hear you. It's okay, don't feel like a wuss.

I have a huge list of problems as well, and it seems like the only way I can keep them under control is by living the strictest life ever. SO many things bother me or make me sick it's ridiculous. I definitely feel your frustration. Just keep trying to heal, it's all we can do. *hug*

Mother of Jibril Enthusiast

Hi Jason,

Numbers 1, 2, 3, 4, and 8 could all be related to a mast cell problem. Have you ever heard of interstitial cystitis? It's when you constantly have to go (or at least feel like you need to go)... and it's caused by an overabundance of mast cells in your urinary system.

Open Original Shared Link

Numbers 5, 6, and 7 are probably caused by the constipation :( Have you ever seen a GI doctor? I had an endoscopy on Tuesday to check for "mastocytic enterocolitis"

Open Original Shared Link

This condition is often associated with diarrhea, but it can also go the other way into constipation (which is my problem). I thought for sure the gastroenterologist was going to say "IBS."

I can't say anything about the compressed disc ;) but maybe your other symptoms have something in common... and can be treated by the same means (like antihistamines). I was really surprised when I started taking antihistamines on a daily basis that my dry mouth, dry eyes, and abdominal pain actually improved... especially with the H2 antihistamine (Pepcid, Zantac, Tagamet, etc...). You might even want to contact Scot Lewey about it... his information is towards the bottom of the second link.

Raynee Rookie
I am going to an oral pathologist next week because i think i have lichen planus. 2 weeks ago i had a bad stinging pain which i thought was just a canker sore, but it later turned into a much larger inflammation and it hasnt gotten better, even though the pain has subsided. If i am diagnosed with this now i have to worry about developing oral cancer because from what i hear its like chrohn's disease of the mouth. so here's my list:

1. IBS-C

2. Food sensitivities

3. gluten/lactose intolerance

4. weak bladder/prostate problems

5. anal fissure

6. anal fistula

7. hemmorhoid

8. Dry mouth

9. compressed disc in lower back

10. anxiety (because of all of the above)

Im only 34 years old and I now have to live with all of this. I'm falling apart and if im lucky maybe ill make it to 40 before a new ailment arises.

I feel so helpless and confused as to why i keep developing new problems. this isnt the life i wanted for myself

sorry for sounding like a wuss & thanx for allowing me to vent

My sister and mother both had lichen planus a few years ago. It is usually a rash red and bumpy, very itchy, on the lower legs. It also affects the feet - peeling and redness. It normally resolves after it runs its course. You can get lichen planus affecting the mouth as well. Sometimes but not often it can be related to hepatitis. Neither had that and rash has been gone and never returned for a few years now. I hope that makes you feel a little better.

jasonD2 Experienced

Ive heard a few people mention that pepcid ac helps with a variety of symptoms - is that really true? can it help with constipation? seems like if you're inhibiting acid then you are further compromising your digestion

Mother of Jibril Enthusiast
Ive heard a few people mention that pepcid ac helps with a variety of symptoms - is that really true? can it help with constipation? seems like if you're inhibiting acid then you are further compromising your digestion

Just my personal experience here... I've been taking the maximum OTC dose every day for about two months (sometimes an extra 20mg in the afternoon).

Pepcid AC helps a lot with my abdominal pain. I can tell when the dose is wearing off. I can't really say that it helps the constipation, but it doesn't make it worse either! I was worried about that.

Histamine is what tells your stomach to produce acid, so the way Pepcid (and the other H2 blockers) work is by blocking the histamine receptors in your GI system. But... too much histamine can cause nasty side effects like abdominal pain, diarrhea, heartburn, and ulcers. WAY too much histamine can do even worse things like causing chronic hives (internally/externally) and anaphylaxis.

It might be worth a quick try. Generic Pepcid (famotidine) is really cheap. I noticed a difference within the first few days after I started taking it. BTW... I wouldn't go the "fiber" route :ph34r: (the pressure in your intestines might cause even more pain) but have you tried magnesium or vitamin C?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - lil-oly replied to Jmartes71's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Gluten tester

    2. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    3. - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    4. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,156
    • Most Online (within 30 mins)
      7,748

    mike101020
    Newest Member
    mike101020
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • lil-oly
      Hey there, have you been tested for allergies? You may not only have celiac disease but be allergic. I have celiac disease and am allergic to Barley, wheat and rye. 
    • JudyLou
    • knitty kitty
      I have osteopenia and have cracked three vertebrae.  Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins.  Blood tests don't reveal the amount of vitamins stored inside cells.  The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four to forty-eight hours.  Those "normal limits" are based on minimum amounts required to prevent disease, not levels for optimal health.   Keep us posted on your progress.   B Vitamins: Functions and Uses in Medicine https://pmc.ncbi.nlm.nih.gov/articles/PMC9662251/ Association of dietary niacin intake with osteoporosis in the postmenopausal women in the US: NHANES 2007–2018 https://pmc.ncbi.nlm.nih.gov/articles/PMC11835798/ Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/   Nutritional Imbalances in Adult Celiac Patients Following a Gluten-Free Diet https://pmc.ncbi.nlm.nih.gov/articles/PMC8398893/ Nutritional Consequences of Celiac Disease and Gluten-Free Diet https://www.mdpi.com/2036-7422/15/4/61 Simplifying the B Complex: How Vitamins B6 and B9 Modulate One Carbon Metabolism in Cancer and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC9609401/
    • JudyLou
      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the dietician was actually a nutritionist (not sure if that is the same thing) recommended by my physician at the time to better understand gluten free eating.    I almost wish the gluten exposure had triggered something, so at least I’d know what’s going on. So confusing!    Many thanks! 
    • knitty kitty
      @JudyLou,  I have dermatitis herpetiformis, too!  And...big drum roll... Niacin improves dermatitis herpetiformis!   Niacin is very important to skin health and intestinal health.   You're correct.  dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form where clothing puts pressure on the skin. Elastic waist bands, bulky seams on clothing, watch bands, hats.  Rolled up sleeves or my purse hanging on my arm would make me break out on the insides of my elbows.  I have had a blister on my finger where my pen rested as I write.  Foods high in Iodine can cause an outbreak and exacerbate dermatitis herpetiformis. You've been on the gluten free diet for a long time.  Our gluten free diet can be low in vitamins and minerals, especially if processed gluten free foods are consumed.  Those aren't fortified with vitamins like gluten containing products are.  Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, medicine, or vitamins? Niacin deficiency is connected to anemia.  Anemia can cause false negatives on tTg IgA tests.  A person can be on that borderline where symptoms wax and wane for years, surviving, but not thriving.  We have a higher metabolic need for more nutrients when we're sick or emotionally stressed which can deplete the small amount of vitamins we can store in our bodies and symptoms reappear.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards. The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.    Some people in remission report being able to consume gluten again without consequence.   However, another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.   I recommend getting checked for vitamin and mineral deficiencies.  More than just Vitamin D and B12.  A gluten challenge would definitely be a stressor capable of precipitating further vitamin deficiencies and health consequences.   Best wishes!    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.