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Who Is Right?

talula2

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talula2 Apprentice
talula2
Posted

After seeing another DR. today because mine was away he informed me that he would consider my TTG test wich was 6 on a range on 0 to 10 more than likely positive especially seeing as I was gluten free when they did the test! Strange because my other DR said test was negative. Who do I believe, I can't get into my GI dr until Sept. I know I am staying gluten free so does it really matter if it is positive or not.

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Foxfire62 Newbie
Foxfire62
Posted

Only way to know for sure is a biopsy. Only way biopsy will prove you're celiac is if you've ingested gluten. Difficult to say either way without ingesting gluten and getting tested.

ravenwoodglass Mentor
ravenwoodglass
Posted
After seeing another DR. today because mine was away he informed me that he would consider my TTG test wich was 6 on a range on 0 to 10 more than likely positive especially seeing as I was gluten free when they did the test! Strange because my other DR said test was negative. Who do I believe, I can't get into my GI dr until Sept. I know I am staying gluten free so does it really matter if it is positive or not.

Your new doctor sounds like a keeper. Your last sentence says it all. You must have seen a great resolution of your issues and the second doctor was taking that into account. Some of us never show positive with testing or the numbers are low so the doctors say that the test was negative until we get to the point where full recovery is not really possible. If the diet is working for you that is the best test there is.

talula2 Apprentice
talula2
Posted
  • Author

This has been so overwhelming because every dr. has a differernt opinion, but I have to agree that being off the gluten for only a couple of weeks and I don't feel the brain fog and no where near as tired and generally that lost of control and irritated feeling is almost gone. It also feel like I am building a bit of muscle back strange I know and i am not lifing any weights. I guess I am absorbing vital nutrients that I was not before. I don't expect miracles with my stomach as that is where the damage is for me, I know that will take time to heal. I have given up all carbs , I was having the worse time absorbing then constant bloat. So I will see how that goes after a couple of months.

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    • Mari
      Related issues

      By Mari · Posted

      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
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      Airborne Gluten?

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