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Thinning/balding Hair?


Guest ajlauer

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Guest ajlauer

Does anyone have a problem with premature thinning/balding of the hair? I'm 27. Trying to figure out what course of treatment to try and get my hair back. Here's the thing.... My hairdresser friend recommended Nioxin vitamins. Do vitamins even work for celiacs that aren't gluten free?????? I probably won't know for awhile whether or not I have celiac disease. I know it takes a few weeks for the tests, and I don't even have an appointment with the GI yet. So assuming I can get in immediately, and he isn't a jerk, and would be willing to test.... I'm still 2 weeks away.

Anyways, is hair problems a symptom? And what is anyone else's experience with treating it?


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SueD Newbie

Several years before I figured out that I was sensitive to wheat, I noticed that my hair was thinning (dramatically). I could pick up handfulls of hair after I shampooed. I tried multiple shampoos, no improvement. Then I started using just a bath soap (which I have since found is gluten-free) to wash my hair, and the problem quickly resolved. Now I'm using a gluten-free shampoo, and my hair is thicker and shinier than it has been in years. I think vitamins could help, but I'd suggest a gluten-free shampoo, too.

Guest Viola

Hair loss is also a common thing with low vitamin B12, which is also a possible symptom of Celiac.

Guest ajlauer

Thanks for the replies! Sue, what is the name of the shampoo you use? Are there some "over the counter" types found at Walmart? Or do you have to go to a salon? My hair is very dry and frizzy, but scalp gets oily very quickly. Color treated also, but it's pretty much faded by now. Thanks.

hthorvald Rookie

Yes, my hair is falling out, too. I complained to my doctor, who immediately tested my thyroid and my hormone levels (I'm at that age). All were normal, so I'm thinking my shampoo my be the culprit.

A gluten free shampoo was mentioned. Can you post the name of this shampoo and how to get it? Conditioner, too. I use Neutrogena, and as I found out today, it's wheat free, but the company doesn't guarantee that others grains aren't used. So, maybe I've solved the problem of my hair falling out.

Thanks,

Helen.

SueD Newbie

I've been using products from the Gluten-Free Savonnerie (www.gfsoap.com). They're gluten, casein, soy, nut, fragrance, and colorant -free, but make wonderful lather. The owners of the company are very responsive to requests and can ship you a travel pack (sample sizes) if you want to try it before buying bigger sizes. It is a little expensive, but it's been worth it for me (since I'm still new at this) not to have to try to decipher the labels.

hthorvald Rookie

Sue, thanks for the URL. Can you recommend one of these shampoos that leaves your hair shiney? My hair is a little dry, but can get oily by the end of the day.

Thanks,

Helen.


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KaitiUSA Enthusiast

I use Dove shampoo and conditioner...Dove will not hide anything.It really is good for my hair even though I have not had a problem with my hair dry or thinning if fact my hair is thick. It does help after it goes through processing like coloring and my hair used to get oily with certain shampoos. I really like Dove brand so just check the labels.

SueD Newbie

The GFSoap folks have 3 kinds of bar soap, one liquid soap, one shampoo and a conditioner, and a lotion -- all gluten-free. I think some folks also use Garnier fructis (available at the local grocery and drug stores).

Guest gfinnebraska

I use Pantene, which is also gluten-free. They have several varieties for different hair types. I have also read that Suave products are gluten-free.

KaitiUSA Enthusiast

I have read that Suave does not add any gluten containing ingredients but they do not test...

cdford Contributor

Not all the Pantene ones are gluten-free. I checked on the brunette one last week and it was not. Neither are any of the others of those type that I have checked so far. Bummer...I don't want to color my gray, just help it not look so obvious. Anybody else noticed that upon going gluten-free their gray hair began to look less gray?

Binks Newbie

I too have had problems with my hair ever since the onset of celiac disease. It has been about ten years now of progressive thinning, with my hair getting weaker, more brittle, dry, dull, lusterless, flakey scalp....Nioxin is terrible and contains wheat. I have tried many shampoos but am sensitive to the sodium laureth and larutyl sulfates which make my scalp intolerbly itchy.

What I have come to discover helps is using Shen Min Activator scalp treatment twice daily, and taking lots of B-vitamins, essential fatty acids, enzymes to absorb and digest it all. It seems that poor nutrition and hormone imbalance are involved. Avoding foods that I am sensitve to and taking DIM (diinolymethane) to modualte hormones like DHT and estrogen has helped the most. I am actually regrowing hair.

I guess it's tough to say whether it's from celiac disease or the other dozen aiments I seem to have which all seem to be a result of having celiac disease....Hope this helps.

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      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
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      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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