Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Thinning/balding Hair?


Guest ajlauer

Recommended Posts

Guest ajlauer

Does anyone have a problem with premature thinning/balding of the hair? I'm 27. Trying to figure out what course of treatment to try and get my hair back. Here's the thing.... My hairdresser friend recommended Nioxin vitamins. Do vitamins even work for celiacs that aren't gluten free?????? I probably won't know for awhile whether or not I have celiac disease. I know it takes a few weeks for the tests, and I don't even have an appointment with the GI yet. So assuming I can get in immediately, and he isn't a jerk, and would be willing to test.... I'm still 2 weeks away.

Anyways, is hair problems a symptom? And what is anyone else's experience with treating it?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



SueD Newbie

Several years before I figured out that I was sensitive to wheat, I noticed that my hair was thinning (dramatically). I could pick up handfulls of hair after I shampooed. I tried multiple shampoos, no improvement. Then I started using just a bath soap (which I have since found is gluten-free) to wash my hair, and the problem quickly resolved. Now I'm using a gluten-free shampoo, and my hair is thicker and shinier than it has been in years. I think vitamins could help, but I'd suggest a gluten-free shampoo, too.

Guest Viola

Hair loss is also a common thing with low vitamin B12, which is also a possible symptom of Celiac.

Guest ajlauer

Thanks for the replies! Sue, what is the name of the shampoo you use? Are there some "over the counter" types found at Walmart? Or do you have to go to a salon? My hair is very dry and frizzy, but scalp gets oily very quickly. Color treated also, but it's pretty much faded by now. Thanks.

hthorvald Rookie

Yes, my hair is falling out, too. I complained to my doctor, who immediately tested my thyroid and my hormone levels (I'm at that age). All were normal, so I'm thinking my shampoo my be the culprit.

A gluten free shampoo was mentioned. Can you post the name of this shampoo and how to get it? Conditioner, too. I use Neutrogena, and as I found out today, it's wheat free, but the company doesn't guarantee that others grains aren't used. So, maybe I've solved the problem of my hair falling out.

Thanks,

Helen.

SueD Newbie

I've been using products from the Gluten-Free Savonnerie (www.gfsoap.com). They're gluten, casein, soy, nut, fragrance, and colorant -free, but make wonderful lather. The owners of the company are very responsive to requests and can ship you a travel pack (sample sizes) if you want to try it before buying bigger sizes. It is a little expensive, but it's been worth it for me (since I'm still new at this) not to have to try to decipher the labels.

hthorvald Rookie

Sue, thanks for the URL. Can you recommend one of these shampoos that leaves your hair shiney? My hair is a little dry, but can get oily by the end of the day.

Thanks,

Helen.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KaitiUSA Enthusiast

I use Dove shampoo and conditioner...Dove will not hide anything.It really is good for my hair even though I have not had a problem with my hair dry or thinning if fact my hair is thick. It does help after it goes through processing like coloring and my hair used to get oily with certain shampoos. I really like Dove brand so just check the labels.

SueD Newbie

The GFSoap folks have 3 kinds of bar soap, one liquid soap, one shampoo and a conditioner, and a lotion -- all gluten-free. I think some folks also use Garnier fructis (available at the local grocery and drug stores).

Guest gfinnebraska

I use Pantene, which is also gluten-free. They have several varieties for different hair types. I have also read that Suave products are gluten-free.

KaitiUSA Enthusiast

I have read that Suave does not add any gluten containing ingredients but they do not test...

cdford Contributor

Not all the Pantene ones are gluten-free. I checked on the brunette one last week and it was not. Neither are any of the others of those type that I have checked so far. Bummer...I don't want to color my gray, just help it not look so obvious. Anybody else noticed that upon going gluten-free their gray hair began to look less gray?

Binks Newbie

I too have had problems with my hair ever since the onset of celiac disease. It has been about ten years now of progressive thinning, with my hair getting weaker, more brittle, dry, dull, lusterless, flakey scalp....Nioxin is terrible and contains wheat. I have tried many shampoos but am sensitive to the sodium laureth and larutyl sulfates which make my scalp intolerbly itchy.

What I have come to discover helps is using Shen Min Activator scalp treatment twice daily, and taking lots of B-vitamins, essential fatty acids, enzymes to absorb and digest it all. It seems that poor nutrition and hormone imbalance are involved. Avoding foods that I am sensitve to and taking DIM (diinolymethane) to modualte hormones like DHT and estrogen has helped the most. I am actually regrowing hair.

I guess it's tough to say whether it's from celiac disease or the other dozen aiments I seem to have which all seem to be a result of having celiac disease....Hope this helps.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,595
    • Most Online (within 30 mins)
      7,748

    AnnikaZ
    Newest Member
    AnnikaZ
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Yes.  Now, if you hit your finger with a hammer once, wouldn't you do your best not to do it again?  You have identified a direct connection between gluten and pain.  Gluten is your hammer.  Now you have to decide if you need a medical diagnosis.  Some countries have aid benefits tgat you can get if you have the diagnosis, but you must continue eating a gluten-normal diet while pursuing the diagnosis. Otherwise the only reason to continue eating gluten is social. There are over 200 symptoms that could be a result of celiac disease.. Celiac Disease and Non Celiac Gluten Sensitivity  both cause multiple vitamin and mineral deficiency.  Dealing with that should help your recovery, even while eating gluten.  Phosphatidyl Choline supplements can help your gut if digesting fats is a problem,  Consider that any medications you take could be causing some of the symptoms, aside from gluten.        
    • trents
      Welcome to the forum, @Ben98! If you have been consciously or unconsciously avoiding gluten because of the discomfort it produces then it is likely that your blood antibody testing for celiac disease has been rendered invalid. Valid testing requires regular consumption of generous amounts of gluten. The other strong possibility is that you have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease but does not have the autoimmune component and thus does not damage the small bowel lining. It is 10x mor common than celiac disease. There is currently no test for NCGS. Celiac disease must first be ruled out. Some experts in the field believe it can be a precursor to the development of celiac disease. Having one or both of the primary genes for developing celiac disease does not imply that you will develop active celiac disease. It simply establishes the potential for it. About 40% of the population has the genetic potential but only about 1% develop active celiac disease. 
    • Ben98
      TTG blood test and total IGA tested on many occasions which have always remained normal, upper GI pain under my ribs since 2022. I had an endoscopy in 2023 which showed moderate gastritis. no biopsy’s were taken unfortunately. genetic test was positive for HLADQ2. extreme bloating after eating gluten, it’ll feel like I’ve got bricks in my stomach so uncomfortably full. the pain is like a dull ache under the upper left almost like a stitch feeling after a long walk. I am just wanting some advice has anyone here experienced gastritis with a gluten issue before? thank you  
    • Wheatwacked
      "Conclusions: The urinary iodine level was significantly lower in women with postmenopausal osteoporosis, and iodine replacement may be important in preventing osteoporosis"  Body iodine status in women with postmenopausal osteoporosis Low iodine can cause thyroid problems, but Iodine deficiency will not show up in thyroid tests.  Iodine is important for healing, its job is to kill off defective and aging cells (Apoptosis). Skin, brain fog, nails, muscle tone all inproved when I started taking 600 mcg (RDA 150 - 1000 mcg) of Liquid Iodine drops. Some with dermatitis herpetiformis, Iodine exacerbates the rash.  I started at 1 drop (50 mcg) and worked up to 12 drops, but I don't have dermatitis herpetiformis.
    • cristiana
      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.