Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Excess Symptoms .. Help!


Marcus772

Recommended Posts

Marcus772 Newbie

First off, I am a 26 y/o, previously very active male. About 2 years ago I began having some very heavy bouts with acid reflux for the first time in my life, which I can only attribute to a massive stress overload from a rough semester of college. I was popping tums like tic-tacs almost all the time to make life bearable enough to finish out the semester.

After the semester came to an end, thankfully it was time for Christmas break. One morning I woke up, ready to eat breakfast, yet I felt full up to my throat, and felt as if I couldn't swallow anything. Towards evening, I got a very sharp, cramp-like pain in the middle of my abdomen, right above the pubic region. Until this day, when I get pains in the stomach, they are centered in this same area, always seemingly accompanied by severe diarrhea.

Finally, I decided to take a trip to the hospital to get checked out. As per the usual, they ran every test you can think of (Urine, X-Ray, Catscan, Ultrasound, Blood, etc) and found nothing, other than the fact I was a little dehydrated. They ran a few IV bags into me and sent me on my way. Eventually, I went BACK to the hospital with the same symptoms. Long story short, the doctor pretty much told me it was all in my head.

Following all of this, I went on a super clean gluten-free diet for about 2 weeks, in which I started to feel a lot better, but very weak, as I was existing solely on veggies, fruits, vitamins and water to be 100% sure I wasn't ingesting any gluten.

Fast forwarding, in the last week I've been very VERY tired. I mean physically exhausted, sometimes lightheaded. When I do anything physically demanding, ok, when I do pretty much anything other than sit down or sleep, my heart races. I ate some Reece's pieces 2 days AFTER this weakness bout started without thinking about it, which resulted in that long forgotten sharp stomach pain and diarrhea for the next 2 days, and still (3 days later), am feeling tender in that region.

I have never been officially diagnosed as being celiac, as I am a poor college student with no insurance, but I do highly suspect that I am. What I am mainly wondering, is if anyone else has had anything like I have, in terms of reflux first, then later things progressing. What about extreme weakness? Maybe some sort of deficiency? I bought some B12 tablets and started taking them today, as well as a new multi. Could there be more? I am at my wits end with it all. Thank you everyone in advance!

Edit: Also failed to mention that it seems when I eat I don't get as much energy, nor for nearly as long, as I used to before I'm flat out exhausted again


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



leadmeastray88 Contributor

Hi there,

I would say Celiac is a definite possibility for you. However, to know for sure you need to be eating gluten and have the official testing done. I can see how that would be difficult for you because like me, you're a college student and don't have insurance. However, I would say that if you're serious about getting a diagnosis, it's worth the investment.

I had absolutely terrible acid reflux before I was diagnosed...that was my very first symptom. My doctor told me that it was coming from the stresss my body was enduring because of all of the hernia surgeries I had. So that makes sense for you too. I was put on prescription proton-pump inhibitors when I was 15 years old. Then after the acid reflux came my other symptoms - extreme fatigue/brain fog, stomach cramping, digestion issues, etc.

Does your college/university offer any student health insurance that's incorporated into your student fees? That's how mine is, it's mandatory unless you already have health coverage through your parents.

I would say it's a definite possibility for you, and needs investigating. Have you talked to a doctor about your options?

Marcus772 Newbie

Unfortunately, my University doesn't offer student health insurance to my knowledge, but I will check to be sure. It is nice to hear that someone else also had reflux before they were diagnosed. You said you also had extreme fatigue ... how would you describe it? I'm so tired and weak sometimes that I worry I have a terminal illness. I've also been dealing with diarrhea ever since I ingested those Reece's, which was like 5 days ago. From the things I hear from others on the board, their symptoms after ingesting don't seem to last quite that long. *sigh* I just wish things were easier, I really miss my old self!

leadmeastray88 Contributor

The fatigue was terrible for me. No matter how much sleep I got, I'd wake up feeling like I hadn't slept a wink. Then I'd go to school or work and barely be able to keep my eyes open, and not able to concentrate at all. It really took a toll on me. I'd have to agree that I was so worried that I was suffering from a terminal illness as well, I was convinced I had cancer or something I was so worried.

By the way, it wouldn't have been the Reese's Pieces that got you...to the best of my knowledge they're gluten free, and I eat them quite often and haven't had a problem with them.

If you have extensive damage, it could take months and months on a strict gluten free diet to even start noticing a difference. I didn't start feeling like my old self again until I hit the 2 month mark.

Really, if it doesn't make a difference to you to have an official diagnosis then why not just go strictly gluten free for a few months and see what happens? There's nothing really to lose. Unless you need a diagnosis, then you need to be eating gluten right up until the testing is done for it to be accurate...even then, the testing is nowhere near as accurate and reliable as it should be...there's lots of false negatives.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      3

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

    2. - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    3. - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    4. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    5. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,328
    • Most Online (within 30 mins)
      7,748

    VerafromNJ
    Newest Member
    VerafromNJ
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.