Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hashimotos Thyroiditis And Celiac Disease


Tiff

Recommended Posts

Tiff Apprentice

Hello Everyone,

I am fairly new to this forum, but so far I have been given some great advice.

I was just wondering for all of you who have Hashimotos Thyroid Disease if you have ever heard of someone taking Lugols Solution (iodine) along with their medication. I am currently taking 112mcg of Levoxyl. I am 30 years old and have had Hashis since the age of 14.

I know this is a little of suject with the Celiac forum, but I also believe that I have a gluten intolerance. If anyone has any advice that would be great!! I have done a little research on the internet but I can't seem to find much correlation between Hashimoto's Thyroiditis and Lugols Solution (Iodine)

Thank you

TIFFANY :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Tiff Apprentice

Oh I forgot to add that my current doctor prescribed 2 drops a day of Lugols Solution (Iodine)

I have been taking it but I still wonder if anyone has heard of this before?

I don't have a goiter, but I do have a small nodule on one side of my thyroid gland that my endocronologist said was common with Hashi's and there was no concern.

I would appreciate any advice

Thank you so much!!!

Mother of Jibril Enthusiast

Hi Tiff,

In a normal person, iodine might stimulate your thyroid to produce more hormones (a trick some people use to lose weight... although I'm not sure it's a good idea). If you have Hashimoto's disease, however, your thyroid is basically a "dead horse." No amount of kicking is going to make it perform again ;) It like being a type I diabetic... if your pancreas has stopped producing insulin, the only thing you can do is add supplemental insulin. There's no medication that can force your pancreas to produce insulin if it doesn't have that capability. The strategies that type II diabetics use (like taking medication, losing weight, and changing their diet) have very little effect.

Tiff Apprentice
Hi Tiff,

In a normal person, iodine might stimulate your thyroid to produce more hormones (a trick some people use to lose weight... although I'm not sure it's a good idea). If you have Hashimoto's disease, however, your thyroid is basically a "dead horse." No amount of kicking is going to make it perform again ;) It like being a type I diabetic... if your pancreas has stopped producing insulin, the only thing you can do is add supplemental insulin. There's no medication that can force your pancreas to produce insulin if it doesn't have that capability. The strategies that type II diabetics use (like taking medication, losing weight, and changing their diet) have very little effect.

Thanks Mother of Jibril,

Yeah, I was thinkin the same thing. But I just thought someone may know why he put me on the iodine. It kind of worries me. I almost feel like a guinea pig. My doctor said it supports the thyroid gland. I am on a detox program, but I still don't understand why he would put me on Lugols Solution. Why is it so hard to find a good, reliable, trustworthy, doctor that you don't have to second guess what they are doing. Trust me, I have been through all the bad ones. I just want to find one good doc.

I just don't know if I should stop the Lugols or just keep taking it until I finish the detox in 3 weeks. My husband believes that it can't hurt even if it isn't really helping my thyroid.

Thanks for you advice I greatly appreciate it

TIFF :D

nasalady Contributor
But I just thought someone may know why he put me on the iodine. It kind of worries me. I almost feel like a guinea pig. My doctor said it supports the thyroid gland. I am on a detox program, but I still don't understand why he would put me on Lugols Solution. Why is it so hard to find a good, reliable, trustworthy, doctor that you don't have to second guess what they are doing. Trust me, I have been through all the bad ones. I just want to find one good doc.

I just don't know if I should stop the Lugols or just keep taking it until I finish the detox in 3 weeks. My husband believes that it can't hurt even if it isn't really helping my thyroid.

I just thought I should mentione that iodine can DEFINITELY hurt if you are one of the celiacs who develop the skin rash, dermatitis herpetiformis (aka DH). DH sufferers are supposed to avoid iodine until the rash clears up.

JoAnn

Nancym Enthusiast

I'm starting to hear that iodine deficiency is coming back because people are cutting down on using iodized salt, using sea salt instead.

Iodine in reasonable quantities won't hurt and yes, I have heard of people using Lugol's. But too much iodine can make your hypothyroid worse, so don't go nuts with it.

It depends on where you are with Hashi's. Your thyroid goes through a period of dying. Sometimes it produces a little thyroid, sometimes you can actually go hyperthyroid with it. Not sure how much help iodine is to you once your thyroid is completely non-functional. I have a dead thyroid myself, irradiated it to kill it. I had Graves disease, which makes you hyperthyroid.

Tiff Apprentice

Thank you for all of your advice!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,265
    • Most Online (within 30 mins)
      7,748

    V Arnold
    Newest Member
    V Arnold
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • RMJ
      It is more likely code for “we think there really was a good response to the treatment, but it was small or in a small percent of subjects so it would take a large clinical trial to try to prove it.”
    • Dana0207
      Thank you so much for your replies. Luckily the rash went away when I completely swore off gluten. It took several months but I have not had a flare in months. So a biopsy is no longer possible. The itch was terrible and apart from bleaching my skin the steroid lotions and potions did nothing. The Gliadin is for accidents and shall be a part of my travel kit from now on. This past exposure has made a me a little leery about eating anything that was not cooked in my kitchen or a dedicated gluten-free restaurant. As much as I used to love baked goods, I am cured and have become quite the gluten free baker to the point that friends and family forget that my cakes/cookies/and bread are not "real". I guess I will have to wait for the new blood test to come out to get confirmation but I have a suspicion that the rash was dermatitis herpetiformis.
    • Jmartes71
      Hello, I just wanted to share with the frustration of skin issues and seeing dermatologist and medications not working for years, I did my own healing experiment. As of last week I have been taking a drop internally under the tongue of Vetiver and putting on topically on sores Yellow/Pom.I am seeing a extreme difference at a rapid time.Im also noticing my nails a little harder. Ive always been into natural properties because I feel its safer for the body.I know short time, but really seeing a difference. I also feel the the trapped gases that causes bloating helps break down as well.Curious if any body else can benefit from and has tried. Products is made by Doterra by Dr Hill
    • Scott Adams
      We have a category of articles on this topic if you really want to dive into it: https://www.celiac.com/celiac-disease/miscellaneous-information-on-celiac-disease/gluten-free-diet-celiac-disease-amp-codex-alimentarius-wheat-starch/
    • Scott Adams
      I agree with @trents, and the rash you described, especially its location and resistance to steroids, sounds highly characteristic of dermatitis herpetiformis, which is the skin manifestation of celiac disease. The severe and prolonged reaction you're describing five days after a small exposure is, while extreme, not unheard of for those with a high sensitivity; the systemic inflammatory response can absolutely last for several days or even weeks, explaining why you still don't feel right. Your plan to avoid a formal gluten challenge is completely understandable given the severity of your reactions, and many choose the same path for their well-being. While experiences with GliadinX (they are a sponsor here) are mixed, some people do report a reduction in the severity of their symptoms when taken with accidental gluten, though it is crucial to remember it is not a cure or a license to eat gluten and its effectiveness can vary from person to person. For now, the absolute best advice is to continue being hyper-vigilant about cross-contamination—buffets are notoriously high-risk, even with good intentions. Connecting with a gastroenterologist and a dermatologist who specialize in celiac disease is essential for navigating diagnosis and management moving forward. Wishing you a swift recovery from this last exposure. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
×
×
  • Create New...