Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten's Impact On Conception?


amwayxsj

Recommended Posts

amwayxsj Newbie

Post #1

New Community Member

Group: Members

Posts: 2

Joined: 29-June 09

Member No.: 30,146

Warn: (0%)

Good morning!

My husband and I are trying to conceive a child and from what I have read under the other posts, eating gluten may be the reason we have not conceived a child yet. I was diagnosed by endoscopy/bloodwoork in 2006 and as of March, 2008 was doing fine. Unfortunately, the doctor caring for me told me to slowly reintroduce gluten back into my diet, which coincided with dating and ultimately marrying my husband a year ago.

Since then, I have lost 30 pounds and have been experiencing mood swings and constant tiredness. So, two weeks ago I took myself in to have blood work done. All of my labs are within normal range but the Celiac Panel came back positive again. I stopped eating gluten and feel back to normal emotionally, have gained 10 pounds and have my energy level back.

The fertility doctor we are working with appears clueless about gluten's apparent role in interfering with conception and FSH levels. I get labs done Thursday to check my hormone levels and next Thursday to see if I am pregnant.

Is there a direct correlation between gluten and conception?

Susan


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lovegrov Collaborator

Short answer. Yes.

I can't say you don't have any other issues, but untreated celiac most definitely can hinder having children. If you just went back to gluten-free, give it some time.

If your fertility doctor doesn't know about this connection, then he/she is either not keeping up with the facts. And do not, do not listen to any physician telling you to start eating gluten again. I hope you've stopped going to the idiot who told you to reintroduce gluten.

I am not a physician and I most certainly cannot guarantee that going gluten-free will result in pregnancy; nobody can. There may be other factors involved. But there are many stories out there of people who have conceived after going gluten-free.

richard

tarnalberry Community Regular

I'd like to add - as long as you are getting enough nutrition to ovulate (and that includes having enough body fat, as that plays a significant role in the hormone cycle), gluten intolerance doesn't really affect CONCEPTION.

BUT it most certainly CAN affect gestation. Nutritional deficiencies can greatly affect what happens as the embryo implants, including the body deciding that it cannot support a growing embryo, and releasing it. Of course, that process usually happens before a person knows they're pregnant (within the first one to three weeks, which is before most pregnancy are terribly useful, outside of blood work.)

Good luck! I'm glad you're back gluten-free. You might get your vitamin/mineral levels checked, to see if there are any deficiencies that you should be addressing. You're just recovering your body from a MAJOR impact (eating gluten for a while), so it may take time for that to heal.

corasmomma Newbie

Susan,

My husband and I had secondary infertility for the last 6 years. We had tried everything and were about to do the last step, IVF, when I was diagnosed with gluten intolerance. I went off gluten and 4 weeks later I had a positive pregnancy test (naturally)! I realized looking back that my first pregnancy also occurred after going on the Atkin's diet for 4 weeks (which is so limited in carbs I essentially also went off gluten then, unknowingly).

My husband is a physician and one of the residents he graduated with was hired at the Mayo Clinic in their OB Ward. They were chatting about our success when she announced that Mayo clinic is currently wanting to give a grant to any physician who wants to run study trials about gluten and fertility. They have seen so many cases at mayo clinic of a celiac disease/fertility connection that they are willing to back it with money. My husband turned down their offer for him to run the study because we were expecting and it was too much responsibility for now, but we are hoping they found another physician to run it.

All that to say, in my mind, there is definitely a connection. I hope you and your husband conceive soon and you find your own answers!

Angela

Post #1

New Community Member

Group: Members

Posts: 2

Joined: 29-June 09

Member No.: 30,146

Warn: (0%)

Good morning!

My husband and I are trying to conceive a child and from what I have read under the other posts, eating gluten may be the reason we have not conceived a child yet. I was diagnosed by endoscopy/bloodwoork in 2006 and as of March, 2008 was doing fine. Unfortunately, the doctor caring for me told me to slowly reintroduce gluten back into my diet, which coincided with dating and ultimately marrying my husband a year ago.

Since then, I have lost 30 pounds and have been experiencing mood swings and constant tiredness. So, two weeks ago I took myself in to have blood work done. All of my labs are within normal range but the Celiac Panel came back positive again. I stopped eating gluten and feel back to normal emotionally, have gained 10 pounds and have my energy level back.

The fertility doctor we are working with appears clueless about gluten's apparent role in interfering with conception and FSH levels. I get labs done Thursday to check my hormone levels and next Thursday to see if I am pregnant.

Is there a direct correlation between gluten and conception?

Susan

  • 6 months later...
Sunshine24 Rookie

Susan,

My husband and I had secondary infertility for the last 6 years. We had tried everything and were about to do the last step, IVF, when I was diagnosed with gluten intolerance. I went off gluten and 4 weeks later I had a positive pregnancy test (naturally)! I realized looking back that my first pregnancy also occurred after going on the Atkin's diet for 4 weeks (which is so limited in carbs I essentially also went off gluten then, unknowingly).

My husband is a physician and one of the residents he graduated with was hired at the Mayo Clinic in their OB Ward. They were chatting about our success when she announced that Mayo clinic is currently wanting to give a grant to any physician who wants to run study trials about gluten and fertility. They have seen so many cases at mayo clinic of a celiac disease/fertility connection that they are willing to back it with money. My husband turned down their offer for him to run the study because we were expecting and it was too much responsibility for now, but we are hoping they found another physician to run it.

All that to say, in my mind, there is definitely a connection. I hope you and your husband conceive soon and you find your own answers!

Angela

Hi Angela!

As someone (only 33) who has "unexplained" infertility and endured 10 IVFs (7 with my own eggs, the rest some combo of donor eggs and a surroagte) and 4 m/c, inlcuding a devastating one at 20 weeks, I am very interested in learning more of this Mayo clinic study. I was recenlty dx with celiac disease via blood panel, edoscopy, biopsy, gene panel, you name it, and we are now not in the "unexplained" camp any longer. I am VERY active in the infertility world, have gone to DC twice to lobby on behalf of infertility insurance and adoption tax credits, have a well read blog, am quoted often in articles, blah blah blah. My "new" crusdae is getting the word out on celiac disease and making *SURE* that fertility doctors check for this!! If they check for other autoimmune diseases such as Lupus, thyroid issues and Factor V Leiden, why not this? It would have saved me 4 years of heartache and the death of 4 babies....So....if your DH has ANY information about this new program or study, please- I would love to know about it (I can even be a part of it if they need someone!)

If you feel more comfortable, you can email me at waitinginsunshine at gmail dot com. I hope you come back to this post and read this!!

Sunshine

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Are Lindt chocolate balls gluten free?

    2. - BlessedinBoston replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Are Lindt chocolate balls gluten free?

    3. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      14

      My only proof

    4. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      14

      My only proof

    5. - marion wheaton posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Are Lindt chocolate balls gluten free?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,407
    • Most Online (within 30 mins)
      7,748

    H2HPizzaWagon
    Newest Member
    H2HPizzaWagon
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
    • marion wheaton
      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.