Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Think I Was Glutened


horsegirl

Recommended Posts

horsegirl Enthusiast

I've been strictly gluten-free for 2 years now, & have other food intolerances as well. A couple of times I've been glutened by accident, & suffer from the muscle/joint pain, & neurological symptoms from it for a few days to a week.

This was different though, & kind of scary.

Last night I started feeling achy in my muscles & joints, with weakness & significant fatigue too.

I also developed a stomach ache & nausea. I slept OK, but woke this morning feeling chilled, with my skin hurting & the muscle/joint aches still there. I also had the brain fog feeling, & felt shaky & off balance, with mild tingling in my feet. I took my temperature, & it was 100.7 (my normal is about 97), so I took Ibuprofen & lay down to rest. After a couple hours of napping, the fever was gone, the aches were mostly gone, & I felt well enough to go to work. Tonight I'm tired, & I still have some achiness, but the major neurological symptoms & the fever seem to be gone.

Could this be a glutening? Or something else? I figured if it was gluten it would have lasted longer, though I'm glad it didn't. This did remind me of how sick I used to be, before I stopped eating gluten. Someone at work questioned whether this could be a form of lupus? I just don't know.

Any advice would be appreciated. Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



YoloGx Rookie

Its hard to say--however given you had a raised temp it may be you had a bug that you threw off. Its possible it could be a slight glutening from CC, but given the short duration I think not... However who am I to say? Haven't been fully off the stuff as long as you--only a year and a half completely off all trace gluten. They say over time it gets better and less dramatic. Still not good to reintroduce gluten of course...

horsegirl Enthusiast

Thanks! I thought about it being a short-term bug too, causing the fever, but then again, the fever only lasted about 4 hours total, which seems short for any cause I can think of.

The rest of the symptoms seem to point to gluten, since with the DQ-1 gene type I get the neurological symptoms, as well as GI.

Anyone else with this type of experience?

Thanks.

YoloGx Rookie

Actually I did have that kind of thing happen long ago--about once a month. Soon after I discovered I might have celiac through tusing the Merck manual and the process of elimination. However Kaiser etc. didn't clue me in on having to avoid all trace gluten so the fevers still happened now and then. For me they lasted longer however, often 3 days though sometimes like what happened to you, just 4 hours. It apparently was lyme's. Which later got healed when I underwent Pap-Imi treatment for a frozen shoulder. Up til then I kept it under control using detox herbs to quiet down the "hot" liver etc. (it can be the liver giving you a fever). Dandelion, milk thistle etc. Marshmallow root in turn soothes the intestines. Oregon Grape root is good against toxins too plus microbes etc. Barberry is excellent against microbes and yeast overgrowth. Avoid tinctures of course due to alcohol and CC. Meanwhile if this happens regularly as it did for me you might want to get checked out for any kind of internal bugs...

Bea

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    2. - HAUS posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    3. - Mari replied to Jmartes71's topic in Related Issues & Disorders
      15

      My only proof

    4. - Rejoicephd commented on Jefferson Adams's article in Gluten-Free Cooking
      1

      Your Complete Gluten-Free Thanksgiving Plan: Recipes, Tips & Holiday Favorites


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,432
    • Most Online (within 30 mins)
      7,748

    Betty Alex
    Newest Member
    Betty Alex
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      This is a common experience across the board with various brands of gluten-free bread products. Prices go up, size goes down. Removal of the egg component may be for the purpose of cost-cutting related to bird flu supply shortages or it may be catering to those with egg allergy/sensitivity, fairly common in the celiac community.
    • HAUS
      Living with Coeliac Disease since birth, Bread has always been an issue, never too nice, small slices and always overpriced, But Sainsbury's Free From White Sliced Bread seemed to me to be an exception with it's large uniform 12 x 12cm slices that had the bounce, texture and taste of white bread even after toasting with no issue that it was also Milk Free. Unfortunately Sainsbury's have changed the recipe and have made it 'Egg Free' too and it has lost everything that made the original loaf so unique. Now the loaf is unevenly risen with 8 x 8cm slices at best, having lost it's bounce with the texture dense and cake like after toasting resembling nothing like White Bread anymore. Unsure as to why they have had to make it 'Egg Free' as the price is the same at £1.90 a loaf. Anyone else experiencing the same issue with it? - also any recommendations for White Bread that isn't prescription? / Tesco's / Asda's are ok but Sainsbury's was superior.
    • Mari
      Years  ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We  got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came down the road, laughed at our situation, then pulled the VW free of the mud. We followed him back to the ski area where where he started up the rope ski lift and we had an enjoyable hour of skiing and gave us a shot of aquavit  before we left.It was a great rescue.  In some ways this reminds me of your situation. You are waiting for a rescue and you have chosen medical practitioners to do it now or as soon as possible. As you have found out the med. experts have not learned how to help you. You face years of continuing to feel horrible, frustrated searching for your rescuer to save you. You can break away from from this pattern of thinking and you have begun breaking  away by using some herbs and supplements from doTerra. Now you can start trying some of the suggestions thatother Celiacs have written to your original posts.  You live with other people who eat gluten foods. Cross contamination is very possible. Are you sure that their food is completely separate from their food. It  is not only the gluten grains you need to avoid (wheat, barley, rye) but possibly oats, cows milk also. Whenever you fall back into that angry and frustrated way of thinking get up and walk around for a whild. You will learn ways to break that way of thinking about your problems.  Best wishes for your future. May you enjpy a better life.  
    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.