Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Think I Was Glutened


horsegirl

Recommended Posts

horsegirl Enthusiast

I've been strictly gluten-free for 2 years now, & have other food intolerances as well. A couple of times I've been glutened by accident, & suffer from the muscle/joint pain, & neurological symptoms from it for a few days to a week.

This was different though, & kind of scary.

Last night I started feeling achy in my muscles & joints, with weakness & significant fatigue too.

I also developed a stomach ache & nausea. I slept OK, but woke this morning feeling chilled, with my skin hurting & the muscle/joint aches still there. I also had the brain fog feeling, & felt shaky & off balance, with mild tingling in my feet. I took my temperature, & it was 100.7 (my normal is about 97), so I took Ibuprofen & lay down to rest. After a couple hours of napping, the fever was gone, the aches were mostly gone, & I felt well enough to go to work. Tonight I'm tired, & I still have some achiness, but the major neurological symptoms & the fever seem to be gone.

Could this be a glutening? Or something else? I figured if it was gluten it would have lasted longer, though I'm glad it didn't. This did remind me of how sick I used to be, before I stopped eating gluten. Someone at work questioned whether this could be a form of lupus? I just don't know.

Any advice would be appreciated. Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



YoloGx Rookie

Its hard to say--however given you had a raised temp it may be you had a bug that you threw off. Its possible it could be a slight glutening from CC, but given the short duration I think not... However who am I to say? Haven't been fully off the stuff as long as you--only a year and a half completely off all trace gluten. They say over time it gets better and less dramatic. Still not good to reintroduce gluten of course...

horsegirl Enthusiast

Thanks! I thought about it being a short-term bug too, causing the fever, but then again, the fever only lasted about 4 hours total, which seems short for any cause I can think of.

The rest of the symptoms seem to point to gluten, since with the DQ-1 gene type I get the neurological symptoms, as well as GI.

Anyone else with this type of experience?

Thanks.

YoloGx Rookie

Actually I did have that kind of thing happen long ago--about once a month. Soon after I discovered I might have celiac through tusing the Merck manual and the process of elimination. However Kaiser etc. didn't clue me in on having to avoid all trace gluten so the fevers still happened now and then. For me they lasted longer however, often 3 days though sometimes like what happened to you, just 4 hours. It apparently was lyme's. Which later got healed when I underwent Pap-Imi treatment for a frozen shoulder. Up til then I kept it under control using detox herbs to quiet down the "hot" liver etc. (it can be the liver giving you a fever). Dandelion, milk thistle etc. Marshmallow root in turn soothes the intestines. Oregon Grape root is good against toxins too plus microbes etc. Barberry is excellent against microbes and yeast overgrowth. Avoid tinctures of course due to alcohol and CC. Meanwhile if this happens regularly as it did for me you might want to get checked out for any kind of internal bugs...

Bea

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,202
    • Most Online (within 30 mins)
      7,748

    PatBurnham
    Newest Member
    PatBurnham
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.