Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Skin Rash


angie-thomas52

Recommended Posts

angie-thomas52 Newbie

Okay, so I have been gluten free for almost 3 years now (yay!) and after I was diagnosed with Celiac, I also developed dermatitis herpetiformis, lactose intolerance and the onset of Crohn's. Long story short, in the last two weeks I have developed a rash on my arms and legs that seems to be spreading and clustering closer together, however it isn't spreading onto my abdomen, hands or feet. It itches like crazy, and I have tried just about everything to soothe it and nothing works. I use all gluten-free hair, skin, etc. products due to the dermatitis, I haven't switched laundry detergents or anything like that and it clearly isn't any form of poison ivy or anything like that because my boyfriend hasn't gotten it and we live together. Anyway, I'm wondering if it is a dairy allergy or something along those lines and am hoping that someone else has dealt with this and can help me out. Thanks!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mother of Jibril Enthusiast

What does the rash look like? Is it red? Is it flat or raised? How long do the individual spots take to go away? Have you tried hydrocortisone cream? Be careful with it, but that tends to work for hives. It might be autoimmune and not a true allergy (caused by food, detergent, etc...).

angie-thomas52 Newbie
What does the rash look like? Is it red? Is it flat or raised? How long do the individual spots take to go away? Have you tried hydrocortisone cream? Be careful with it, but that tends to work for hives. It might be autoimmune and not a true allergy (caused by food, detergent, etc...).

The rash isn't red, it is flesh colored (until I start digging at it, of course) and they really haven't gone away for two full weeks. I will say that if my mind is off of it itching like crazy, I don't notice all that much. They are raised spots, and I can see them even if I haven't been scratching. But, like I said before, it is spreading and clustering all over my arms and legs, but not onto my hands, feet or abdomen. I've tried googling several things that I have thought it may be, but can't find a definite solution tot he problem. I've done the hydrocortisone and it simply doesn't work. I still put it on, for peace of mind, but it doesn't work. I'm going to try and cut out dairy tomorrow to see if that relieves my symptoms.

Mother of Jibril Enthusiast

It doesn't sound like hives then... so it's probably not an allergic reaction! What about keratosis pilaris? That's a flesh-colored rash with tiny raised spots that clusters on the arms and legs.

Open Original Shared Link

One other quick thought... some kind of insect (scabies?). A dermatologist could take a scraping and probably figure it out pretty quickly :(

angie-thomas52 Newbie
It doesn't sound like hives then... so it's probably not an allergic reaction! What about keratosis pilaris? That's a flesh-colored rash with tiny raised spots that clusters on the arms and legs.

Open Original Shared Link

One other quick thought... some kind of insect (scabies?). A dermatologist could take a scraping and probably figure it out pretty quickly :(

I know quite a bit about keratosis pilaris (I used to be an esthetician) and I'm fairly confident that it isn't that particular condition. I, at first, thought it may have been some sort of bug because it began after I was golfing on Father's Day with my family---but I wasn't sure if an insect bite, etc. would last this long.

Today I got one giant bump on my leg that was exactly like a hive, but then it went away and I didn't get anymore. It has now spread onto my behind (terrific, right?) so I'm starting to get concerned.

I'm sure everyone is wondering why I just don't go see a doctor and that is because I don't have any health insurance. I'm up to my eyeballs in medical debt due to the colonoscopies, endoscopies, etc. that I had to have w/o any insurance. I am trying to avoid going to the doctor, but I may have to just go : (

Guest caz

What about pityriasis rosea??

cheers caz

rlbcabjm Newbie

I too am dealing with a crazy rash on my arms. Mine are tiny red raised bumps that are forming a huge raised patch on both of my forearms and are now extending up past my elbows. They are extremely itchy. I don't have blisters that I can see, but when I scratch them I can feel a watery liquid. Even though it has raised bumps my skin feels slick like everything is burned together. I have had them since last Wednesday and no medicine is working on it. I suspected my daughter as having celiac and she was diagnosed with DH in May. I went gluten free with her to make it easier on her. We both ended up getting glutened last week. She has a few bumps, I have a ton. Any ideas what this could be. Thanks, Claudia


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Angels~Exist Newbie

I am very pale and I have tan/brown rashes from the top of my arm to halfway to my elbow. They are round/oval raised patches. They don't itch. My doctor suggested that they may be a type of celiac rash.

MissyJoy Rookie
I know quite a bit about keratosis pilaris (I used to be an esthetician) and I'm fairly confident that it isn't that particular condition. I, at first, thought it may have been some sort of bug because it began after I was golfing on Father's Day with my family---but I wasn't sure if an insect bite, etc. would last this long.

Today I got one giant bump on my leg that was exactly like a hive, but then it went away and I didn't get anymore. It has now spread onto my behind (terrific, right?) so I'm starting to get concerned.

I'm sure everyone is wondering why I just don't go see a doctor and that is because I don't have any health insurance. I'm up to my eyeballs in medical debt due to the colonoscopies, endoscopies, etc. that I had to have w/o any insurance. I am trying to avoid going to the doctor, but I may have to just go : (

What if it isn't an insect bite, but its chiggers that you picked up while you were golfing? If you had to hunt for any balls in the woods or tall grass, it may be that they got on you and burried in your skin. I've had chiggers from hiking in the woods, and they cause a terrible itch. Its just a thought to consider. If you think it may be chiggers, I only know of one way to kill them - use fingernail polish on every little bump until they suffocate and die - I know its gross.....

DreamWalker Rookie

Aside from the hydrocortisone cream what else have you tried? Since it's flesh colored, it definitely doesn't sound like DH. Yet, I thought I'd mention this anyhow. Post celiac disease diagnosis, my GI told me to take benadryl when I broke out in a reddish blistery-looking, very itchy rash on my face. (Although, I was glutened the night before.) Anyhow, after about two and half weeks & no response to benadryl, I emailed the company (still new at the gluten-free thing and a bit naive) who told me they were unsure if the product was safe due to shared facilities. I stopped taking benadryl, switched to prednisone, and by week three the rash was noticeably better.

Although, yours doesn't sound like DH or an allergic reaction, when I was little I kept developing white rashes (very itchy) all over my arms, legs, etc in the summer. My grandmother took me to an allergist & as it turned out I was allergic to grass. The rashes were rather resistant to the creams I was prescribed. (Ah. Sorry. Too young to remember what their formal names were.) Yet, eventually, they'd subside & only returned if I played in the grass in shorts/short sleeves. Then they seemed to disappear until I was 19 & one summer I couldn't get the white rashes on my arms to leave for three months. Prednisone was the only thing that calmed them down.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

    2. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

    4. - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    5. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,355
    • Most Online (within 30 mins)
      7,748

    Amy Immerman
    Newest Member
    Amy Immerman
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Wheatwacked
      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium.  A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake.  With low D your body is not absorbing calcium from your food so it steals it from your bones.  Heart has priority over bone. I've been taking 10,000 IU D3 a day since 2015.  My doctor says to continue. To fix my lactose intolerance, lots of lactobacillus from yogurts, and brine fermented pickles and saurkraut and olives.  We lose much of our ability to make lactase endogenosly with maturity but a healthy colony of lactobacillus in our gut excretes lactase in exchange for room and board. The milk protein in grass fed milk does not bother me. It tastes like the milk I grew up on.  If I drink commercial milk I get heartburn at night. Some experts estimate that 90% of us do not eat Adequite Intake of choline.  Beef and eggs are the principle source. Iodine deficiency is a growing concern.  I take 600 mcg a day of Liquid Iodine.  It and NAC have accelerated my healing all over.  Virtually blind in my right eye after starting antihypertensive medication and vision is slowly coming back.  I had to cut out starches because they drove my glucose up into the 200+ range.  I replaced them with Red Bull for the glucose intake with the vitamins, minerals and Taurine needed to process through the mitochodria Krebs Cycle to create ATP.  Went from A1c 13 down to 7.9.  Work in progress. Also take B1,B2,B3,B5,B6. Liquid Iodine, Phosphatidyl Choline, Q10, Selenium, D and DHEA.     Choline supplemented as phosphatidylcholine decreases fasting and postmethionine-loading plasma homocysteine concentrations in healthy men +    
    • knitty kitty
      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
    • knitty kitty
      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.