Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Could This Be Celiac Disease?


missdirected

Recommended Posts

missdirected Newbie

Hello All,

I am a 36 year old female. I have been having some very strange physical problems in the last couple of years and was wondering if I may have found the culprit.

I am currently being treated for cortochondritis (inflammation of the rib cartilage), asthma, depression/anxiety, numbnes /tingling and migraine. I do not seem to have the severe stomach issues that most of you have. I have always had what I would call a sensitive stomach, but it is generally not debilitating. Some nausea (which I contributed to anxiety and stress) and indigestion. I am so tired all of the time it has become difficult to do daily chores and take care of my children....not to mention the full time job.

I am also on some fairly high dose anti-inflammatories for the cortochondritis, so I thought that may be the issue with my stomach. It seems as though most of the medications they have given me for depression/aniety, migrane and asthma do not play well together and where one medication helps one symptom it makes another one worse. I have stopped taking the antidepressants and migraine medications altogether.

That said, I am at my wits end. I feel as though all of the sudden I am falling apart! I do not have any food allergies that I am aware of. I have never been tested for any allergies. Over the years I have learned to avoid certain things that seem to trigger migraines and tummy upset, but nothing so far as to determine an actual allergy.

I have had the migraines, anxiety and depression for years, but the asthma and cortochondritis (and other joint inflammation) plus some numbness and tingling are new developments. Is it possible that I could have just become sensitive to gluten or is this something that would be a problem from birth?

Any response or help would be appreciated. I would like to know if this is even a possibility of something I discuss with my doctor.

Thanks All!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



The Fluffy Assassin Enthusiast
Hello All,

I am a 36 year old female. I have been having some very strange physical problems in the last couple of years and was wondering if I may have found the culprit.

I am currently being treated for cortochondritis (inflammation of the rib cartilage), asthma, depression/anxiety, numbnes /tingling and migraine. I do not seem to have the severe stomach issues that most of you have. I have always had what I would call a sensitive stomach, but it is generally not debilitating. Some nausea (which I contributed to anxiety and stress) and indigestion. I am so tired all of the time it has become difficult to do daily chores and take care of my children....not to mention the full time job.

I am also on some fairly high dose anti-inflammatories for the cortochondritis, so I thought that may be the issue with my stomach. It seems as though most of the medications they have given me for depression/aniety, migrane and asthma do not play well together and where one medication helps one symptom it makes another one worse. I have stopped taking the antidepressants and migraine medications altogether.

That said, I am at my wits end. I feel as though all of the sudden I am falling apart! I do not have any food allergies that I am aware of. I have never been tested for any allergies. Over the years I have learned to avoid certain things that seem to trigger migraines and tummy upset, but nothing so far as to determine an actual allergy.

I have had the migraines, anxiety and depression for years, but the asthma and cortochondritis (and other joint inflammation) plus some numbness and tingling are new developments. Is it possible that I could have just become sensitive to gluten or is this something that would be a problem from birth?

Any response or help would be appreciated. I would like to know if this is even a possibility of something I discuss with my doctor.

Thanks All!

Could easily be celiac disease, and you could easily have had it all your life without knowing it. As you'll see from my sig line, I had no idea until I was 40 that I had any intolerances, and celiac didn't come onto my mental horizon until age 45. So you're way ahead of me. Get tested, or if you can't find a doctor who will listen to you (which sometimes happen) try going gluten-free on your own. Good luck, and welcome to the board.

LDJofDenver Apprentice

I'm not a medical professional but I can tell you that some celiacs are asymptomatic -- the damage is being done to their intestines, but they really weren't experiencing and tell-tale signs of it.

One place you might start is with genetic testing. Determine if you even carry the gene that may lead (or have led!) you down the road to celiac disease. I'd discuss that with your physician. There are independent labs were you can order these tests on your own as well (www.kimballgenetics.com and www.enterolab.com).

Here's a link to a celiac.com article "Ten Facts About Celiac Genetic Testing"

https://www.celiac.com/articles/21567/1/Ten...ting/Page1.html

missdirected Newbie
Could easily be celiac disease, and you could easily have had it all your life without knowing it. As you'll see from my sig line, I had no idea until I was 40 that I had any intolerances, and celiac didn't come onto my mental horizon until age 45. So you're way ahead of me. Get tested, or if you can't find a doctor who will listen to you (which sometimes happened) try going gluten-free on your own. Good luck, and welcome to the board.

Thank you so much for the response!

The more I read about this condition the more it seems like I may be on to something here. Interestingly enough, I have a co-worker that happened to see something on TV last night that made her think that gluten intolerance might be the issue. Having never had any food allergies it would never have occured to me otheriwse. I also seem to have some of the cognitive and balance (foggy brain) symptoms.

I am not certain how well I will do on a gluten free diet. I have a huge love of food!! And as I'm southern....almost everything I really love has been battered and deep fried. Will symptoms lessen to some degree with only lessning your intake or does this have to be "an all or nothing" expedition into the gluten-free world?

I am married with three very picky eating children. Is it even possible to feed everyone the same thing?? I'm just somewhat concerned about the cost of specialty foods.

The Fluffy Assassin Enthusiast
Thank you so much for the response!

The more I read about this condition the more it seems like I may be on to something here. Interestingly enough, I have a co-worker that happened to see something on TV last night that made her think that gluten intolerance might be the issue. Having never had any food allergies it would never have occured to me otheriwse. I also seem to have some of the cognitive and balance (foggy brain) symptoms.

I am not certain how well I will do on a gluten free diet. I have a huge love of food!! And as I'm southern....almost everything I really love has been battered and deep fried. Will symptoms lessen to some degree with only lessning your intake or does this have to be "an all or nothing" expedition into the gluten-free world?

I am married with three very picky eating children. Is it even possible to feed everyone the same thing?? I'm just somewhat concerned about the cost of specialty foods.

Because you have kids, it's more important than it is for some of us for you to get a diagnosis if you can. This is because there is a 1 in 10 (some say 1 in 7) chance that an immediate family member of a celiac person is also celiac. Meaning there's a significant chance that at least one of your kids has it as well (that is, if you have it).

IF you have celiac disease, yes it's all or nothing. You have to eliminate gluten from your diet forever. Failing to do so results in a significantly shorter lifespan, and the part at the end with the intestinal cancer is by all accounts unpleasant and painful as well.

If you have gluten intolerance, then maybe you can get away with a little slippage here and there. I'm a little unclear on this myself. Hopefully better informed board members will turn up momentarily with better information.

I'm a Southerner. The fact that I was born in Charleston where rice is such an important part of the diet may be why I'm still alive. It's fairly easy to go gluten-free; the hard part is all in your head. Think of all the meals you've enjoyed based on rice or potatoes and you'll start feeling better about it. (If you have to have breaded and deep-fried, using corn meal isn't that bad.)

A lot of people here live in split households where only one person eats gluten-free. The hard part is segregating utensils, dishes, pots, pans, etc. And as I say, you have to make sure that none of the kids are also celiac or intolerant.

Good luck to you and your family. If you look around this board, you'll find untold numbers of approaches to eating gluten-free, getting a diagnosis, bringing up kids gluten-free or living in a split household. Just ask around.

ang1e0251 Contributor

You sure have many symptoms that could indicate celiac disease, down to the migraines and depression. Get tested right away and see where that leads you. It's a good chance you are not the only one in your household.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Son's legs shaking

    2. - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    3. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    4. - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    5. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,850
    • Most Online (within 30 mins)
      7,748

    Cindy Shreve
    Newest Member
    Cindy Shreve
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • lizzie42
      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.