Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Legs Look Smaller When Gluten Free


glutenfreejenny

Recommended Posts

glutenfreejenny Apprentice

Since going gluten free I've noticed a weight gain. I've went up two pant sizes. It's probably because I can now eat a lot more even though I'm not eating bread. But I've noticed a weird thing. When I am gluten free I think my legs look skinnier. It's weird, my stomach is bigger because I'm eating more but my legs look a lot thinner. And when I accidentally eat gluten they look almost swollen. Is this normal?? Has anyone else noticed this??? I am anemic and take iron and when I get gluten I don't think I absorb the iron correctly...could it be that? It just seems weird. When I'm gluten free my calves and ankles look a lot slimmer.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mother of Jibril Enthusiast

Sounds like you're retaining water. Are you positive that gluten is the only thing making you swell up? It can also be caused by certain autoimmune disorders (like lupus) and kidney disorders (which are a lot more common than you might think). For what it's worth, the gluten-free diet should help with both of those problems... my fingers have become so skinny that my rings were falling off ;)

  • 4 weeks later...
Chuck8268 Rookie
Since going gluten free I've noticed a weight gain. I've went up two pant sizes. It's probably because I can now eat a lot more even though I'm not eating bread. But I've noticed a weird thing. When I am gluten free I think my legs look skinnier. It's weird, my stomach is bigger because I'm eating more but my legs look a lot thinner. And when I accidentally eat gluten they look almost swollen. Is this normal?? Has anyone else noticed this??? I am anemic and take iron and when I get gluten I don't think I absorb the iron correctly...could it be that? It just seems weird. When I'm gluten free my calves and ankles look a lot slimmer.

As far as iron/vitamin absorption, I was depleted.My doc didnt even know how I could even ride my bicycle.She put me on 1,000 mg prescription iron 1 mg prescription folic acid and monthly B-12 shots for next 13 months.

Along with finally absorbing,and the supplements is maybe why I had an incredible weight/gain pace.The next 6 months I put on 54 pounds,and I needed it,I was a skeleton. Then the gain just stopped.

Chuck

KathiSharpe Apprentice

Jenny, is there a difference in muscle tone before and after? I know with me, my legs and arms are building muscle like crazy - something I could never do whilst eating gluten.

  • 5 weeks later...
auntcgm Newbie
Jenny, is there a difference in muscle tone before and after? I know with me, my legs and arms are building muscle like crazy - something I could never do whilst eating gluten.

Can anyone help?

I'm having extreme trouble gaining weight. I've started resistance training to build bone and muscle but cannot eat enough to keep from losing. Do you have any suggestions?

auntcgm

Lexi Enthusiast

I feel like my whole body looks big and swollen all over when I eat Gluten (or soy). I'm bloated in my belly, but everything looks big to me, and I am a pretty small person. My face also looks puffy. It makes me crazy. It's almost harder for me to avoid Soy than Gluten.

  • 2 years later...
Februaryrich Rookie

I'm getting my blood tests done soon so I know what I'm lacking..I wish I could gain 54lbs in 6 months lol, but that would look ugly on me


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,549
    • Most Online (within 30 mins)
      7,748

    Blough
    Newest Member
    Blough
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.