Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):
    GliadinX

    Celiac.com Sponsor (A1-M):
    GliadinX

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do I Need A Dr.

MICHAELENE48

By MICHAELENE48
in Doctors

Recommended Posts

MICHAELENE48 Newbie
MICHAELENE48
Posted

I WAS JUST DIGISNOSED WITH FAMILY DR. I THINK I'VE HAD THIS FOR YEARS THE FAMILY DOC. IS SENDING ME TO A GASTOR DR. THEY ACT LIKE THIS IS NOTHING IT HAS ME WORRIED SHOULD I BE :(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
Holidaily Brewing Co.
Food for Life

Celiac.com Sponsor (A8-M):
Lakefront Brewery

ianm Apprentice
ianm
Posted

It is and it isn't. If you really do then you are going to make some lifestyle changes and they will be for the better. You did not list any symptoms that led your DR to believe you have celiac. For me I was forced to live a much healthier lifestyle and my life is drastically better now than it was over a year ago. This disease is not the end of the world and not as difficult to maintain as it first appears. We need more info about why the doctor suspects celiac. It is very rare to even find a doctor that even knows what it is.

MICHAELENE48 Newbie
MICHAELENE48
Posted
  • Author

I HAVE BEEN VERY ANEMIC FOR YEARS MY CALCIUM LEVELS ARE LOW AS WELL THEY DID THE BLOOD WORK AND I WAS VERY POSITIVE I HAVE HAD IBS AND FIBROMYALGIA FOR YEARS MY THYROID IS SCREWED UP ALSO SI I'M A MESS :rolleyes:

ianm Apprentice
ianm
Posted

Sounds like you got lucky and found a good doctor. All of the problems you listed are related to celiac. Read everything on this website to learn all you can. Ask as many questions as you can think of. We are here to help. This is the first step to a MUCH better life.

MICHAELENE48 Newbie
MICHAELENE48
Posted
  • Author

THE GASTRO DR. ACTS LIKE THIS IS NO BIG DEAL JUST GO ON A DIET IF YOU WANT OR NOT THATS ABOUT IT HE SAID HE NEVER HEARD OF SOMEONE WITH CELIAC HAVEING CANCER I HEARD 1 IN 15 CAN GET CANCER THATS SCARY TO ME :(

celiac3270 Collaborator
celiac3270
Posted

You're correct.....cancer is often associated with intestinal cancer. Your doctor is entirely wrong to think that there is no connection, cause there's a very strong one. I'm not sure the exact statistic, but your chances are greatly increased if you're a celiac not adhering to the gluten-free diet.

Welcome to the board :D

MICHAELENE48 Newbie
MICHAELENE48
Posted
  • Author

MY FATHER DIED OF INTESTANAUL CANCER SO IT WORRIES ME I THINK HE HAD CELIAC HE WAS DEBETIC AND LACTOS INTOLARANT :unsure:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
Food for Life
Tierra Farm

Celiac.com Sponsor (A8-M):
Daura Damm

KaitiUSA Enthusiast
KaitiUSA
Posted

Its a good thing they found this now. If you do not follow the diet you will be at increased risks but not if you adhere to the diet. Also you mentioned your dad was diabetic? That also is linked with celiac. The only thing you really need to be concerned about is following the diet...this site is great for support and info. Good luck :D

ianm Apprentice
ianm
Posted

Just before I went gluten-free I was on the verge of full blown type II diabetes. Now there is no diabetes anywhere in sight for me. Diabetes, lactose intolerance and intestinal cancer are all signs of celiac. Since celiac is a genetic disease it is a good bet your dad had it too. Following the diet is not hard and is actually fun. I now eat foods that I would never have tried otherwise. Buckwheat has become a real favorite.

Rikki Tikki Explorer
Rikki Tikki
Posted

oh Ianm, I think great minds think alike! I have been sick the last couple of months with something other than celiac, but I had your signature going through my head yesterday at work and then saw it on your post today. Made me smile.

Michaelene: I think you need to get a new doctor, some of them just don't know much about it. I remember when the GI doctor told me, his exact words were "you will know more about it in a year than I ever will" I was like what? That was the end of it, I was on my own with a GP that does not have another patient with it. So, for the most part I am on my own. Watch your labels and you will learn a lot on the board here.

:D Welcome

ianm Apprentice
ianm
Posted

I completely agree with that Sally.

chelly1 Apprentice
chelly1
Posted

I know exactlly how you feel when my son was diagnosed i had never even heared of celiac disease and just hearing the word disease was enough to put any one over the edge. I was totally in over my head but not only that I had to look like I knew what I was doing for my sons sake and also make it look like there was nothing to it and every thing was fine. I didn't even know where to start and over 5 years later I am still learning but then so is my son, I am lucky that he was so young I suppose because he knows no different. We had 1 appointment at the hospital and we have never seen a dietician even to this day. But I will say this thank god for this sight and the lovley people on it after struggling on my own for so long at last there are people who understand and know what your talking about... now your on this sight you won't go wrong

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):
    Authentic Foods
    Food for Life


    Celiac.com Sponsors (A17-M):

    Food for Life


  • Recent Activity

    1. trents
      - trents replied to The Logician's topic in Related Issues & Disorders
      9

      Gluten Sensitivity

      So you you ate wheat products every single day for 50 years without a problem but then in the 90's you discovered that wheat was your problem. That's confusing to me. It seems contradictory. Did you have a problem or not?
    2. The Logician
      - The Logician replied to The Logician's topic in Related Issues & Disorders
      9

      Gluten Sensitivity

      I spent my first 50 years eating wheat products every single day with no ill affects. Being a 6’2” Italian you can imagine what my diet was like and believe me I had an appetite that wouldn’t quit. In the 90’s once I discovered the wheat was my problem I avoided it and no longer had IBS. I seriously doubt I have celiac but I appreciate your input a...
    3. trents
      - trents replied to The Logician's topic in Related Issues & Disorders
      9

      Gluten Sensitivity

      I would say two things and then I'm done. Many celiacs have been misdiagnosed for years with IBS. Testing for celiac disease requires regular and significant consumption of gluten for weeks/months in order to be valid.
    4. RMJ
      - RMJ replied to Alibu's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Latent celiac, need to go gluten free, advice on kitchen "reset?"

      Can the rest of your household eat the food with gluten instead of getting rid of it? Can you create one shelf, or partial shelf, for your new food in the pantry, in the fridge and in the cabinets as a start? My husband is not gluten free so we each have a cabinet, and separate shelves in the fridge. If we have to share space the gluten free foods...
    5. The Logician
      - The Logician replied to The Logician's topic in Related Issues & Disorders
      9

      Gluten Sensitivity

      Thanks for the advice, if my sensitivity comes back i’ll do that but I am 74, in good health for my age and probably have been sensitive to gluten for over 30 years the beginning of which I didn’t even know or suspect It was gluten. I’m seen by my doctor every three months with fasting labs, he knows I avoid gluten and has never suggested I should be conce...
  • Celiac.com Sponsor (A19):
    Little Northern Bakehouse


  • Member Statistics

    • Total Members
      129,991
    • Most Online (within 30 mins)
      7,748
    Jubaroo
    Newest Member
    Jubaroo
    Joined
  • Celiac.com Sponsor (A20):
    Tierra Farm

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):
    GliadinX


  • Celiac.com Sponsor (A21):
    Authentic Foods


  • Upcoming Events

  • Posts

    • trents
      Gluten Sensitivity

      By trents · Posted

      So you you ate wheat products every single day for 50 years without a problem but then in the 90's you discovered that wheat was your problem. That's confusing to me. It seems contradictory. Did you have a problem or not?
    • The Logician
      Gluten Sensitivity

      By The Logician · Posted

      I spent my first 50 years eating wheat products every single day with no ill affects. Being a 6’2” Italian you can imagine what my diet was like and believe me I had an appetite that wouldn’t quit. In the 90’s once I discovered the wheat was my problem I avoided it and no longer had IBS.  I seriously doubt I have celiac but I appreciate your input and will let you know if I have a problem with wheat again. I’ve been eating things I’ve longed for for decades and have never felt better.
    • trents
      Gluten Sensitivity

      By trents · Posted

      I would say two things and then I'm done. Many celiacs have been misdiagnosed for years with IBS. Testing for celiac disease requires regular and significant consumption of gluten for weeks/months in order to be valid.
    • RMJ
      Latent celiac, need to go gluten free, advice on kitchen "reset?"

      By RMJ · Posted

      Can the rest of your household eat the food with gluten instead of getting rid of it? Can you create one shelf, or partial shelf, for your new food in the pantry, in the fridge and in the cabinets as a start? My husband is not gluten free so we each have a cabinet, and separate shelves in the fridge. If we have to share space the gluten free foods go on the upper shelves so crumbs with gluten can’t fall onto them. Good luck!
    • The Logician
      Gluten Sensitivity

      By The Logician · Posted

      Thanks for the advice, if my sensitivity comes back i’ll do that but I am 74, in good health for my age and probably have been sensitive to gluten for over 30 years the beginning of which I didn’t even know or suspect It was gluten. I’m seen by my doctor every three months with fasting labs, he knows I avoid gluten and has never suggested I should be concerned. It is quite possible a doctor did those tests on me 30 years ago, I just don’t remember, if they did and they were negative that’s why I wouldn’t remember. If you are interested I’ll keep you posted, but from what i’ve read there is no cure for genetic celiac disease and right now I’ve never felt worse than diarrhea eating wheat or better than I do now eating wheat. If there is no cure I doubt my episode with an antibiotic is the cure which means I don’t have celiac. This antibiotic may be a cure for sensitivity however….i hope.
×
×
  • Create New...