Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do I Need A Dr.

MICHAELENE48

By MICHAELENE48
in Doctors

Recommended Posts

MICHAELENE48 Newbie
MICHAELENE48
Posted

I WAS JUST DIGISNOSED WITH FAMILY DR. I THINK I'VE HAD THIS FOR YEARS THE FAMILY DOC. IS SENDING ME TO A GASTOR DR. THEY ACT LIKE THIS IS NOTHING IT HAS ME WORRIED SHOULD I BE :(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ianm Apprentice
ianm
Posted

It is and it isn't. If you really do then you are going to make some lifestyle changes and they will be for the better. You did not list any symptoms that led your DR to believe you have celiac. For me I was forced to live a much healthier lifestyle and my life is drastically better now than it was over a year ago. This disease is not the end of the world and not as difficult to maintain as it first appears. We need more info about why the doctor suspects celiac. It is very rare to even find a doctor that even knows what it is.

MICHAELENE48 Newbie
MICHAELENE48
Posted
  • Author

I HAVE BEEN VERY ANEMIC FOR YEARS MY CALCIUM LEVELS ARE LOW AS WELL THEY DID THE BLOOD WORK AND I WAS VERY POSITIVE I HAVE HAD IBS AND FIBROMYALGIA FOR YEARS MY THYROID IS SCREWED UP ALSO SI I'M A MESS :rolleyes:

ianm Apprentice
ianm
Posted

Sounds like you got lucky and found a good doctor. All of the problems you listed are related to celiac. Read everything on this website to learn all you can. Ask as many questions as you can think of. We are here to help. This is the first step to a MUCH better life.

MICHAELENE48 Newbie
MICHAELENE48
Posted
  • Author

THE GASTRO DR. ACTS LIKE THIS IS NO BIG DEAL JUST GO ON A DIET IF YOU WANT OR NOT THATS ABOUT IT HE SAID HE NEVER HEARD OF SOMEONE WITH CELIAC HAVEING CANCER I HEARD 1 IN 15 CAN GET CANCER THATS SCARY TO ME :(

celiac3270 Collaborator
celiac3270
Posted

You're correct.....cancer is often associated with intestinal cancer. Your doctor is entirely wrong to think that there is no connection, cause there's a very strong one. I'm not sure the exact statistic, but your chances are greatly increased if you're a celiac not adhering to the gluten-free diet.

Welcome to the board :D

MICHAELENE48 Newbie
MICHAELENE48
Posted
  • Author

MY FATHER DIED OF INTESTANAUL CANCER SO IT WORRIES ME I THINK HE HAD CELIAC HE WAS DEBETIC AND LACTOS INTOLARANT :unsure:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


KaitiUSA Enthusiast
KaitiUSA
Posted

Its a good thing they found this now. If you do not follow the diet you will be at increased risks but not if you adhere to the diet. Also you mentioned your dad was diabetic? That also is linked with celiac. The only thing you really need to be concerned about is following the diet...this site is great for support and info. Good luck :D

ianm Apprentice
ianm
Posted

Just before I went gluten-free I was on the verge of full blown type II diabetes. Now there is no diabetes anywhere in sight for me. Diabetes, lactose intolerance and intestinal cancer are all signs of celiac. Since celiac is a genetic disease it is a good bet your dad had it too. Following the diet is not hard and is actually fun. I now eat foods that I would never have tried otherwise. Buckwheat has become a real favorite.

Rikki Tikki Explorer
Rikki Tikki
Posted

oh Ianm, I think great minds think alike! I have been sick the last couple of months with something other than celiac, but I had your signature going through my head yesterday at work and then saw it on your post today. Made me smile.

Michaelene: I think you need to get a new doctor, some of them just don't know much about it. I remember when the GI doctor told me, his exact words were "you will know more about it in a year than I ever will" I was like what? That was the end of it, I was on my own with a GP that does not have another patient with it. So, for the most part I am on my own. Watch your labels and you will learn a lot on the board here.

:D Welcome

ianm Apprentice
ianm
Posted

I completely agree with that Sally.

chelly1 Apprentice
chelly1
Posted

I know exactlly how you feel when my son was diagnosed i had never even heared of celiac disease and just hearing the word disease was enough to put any one over the edge. I was totally in over my head but not only that I had to look like I knew what I was doing for my sons sake and also make it look like there was nothing to it and every thing was fine. I didn't even know where to start and over 5 years later I am still learning but then so is my son, I am lucky that he was so young I suppose because he knows no different. We had 1 appointment at the hospital and we have never seen a dietician even to this day. But I will say this thank god for this sight and the lovley people on it after struggling on my own for so long at last there are people who understand and know what your talking about... now your on this sight you won't go wrong

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified...
    2. trents
      - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you...
    3. Paulaannefthimiou
      - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

      Are Bobresmill gluten free oats ok for sensitive celiacs?
    4. jenniber
      - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks! i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me b...
    5. trents
      - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      High TTG-IgG and Normal TTG-IgA

      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,849
    • Most Online (within 30 mins)
      7,748
    Jadelucia
    Newest Member
    Jadelucia
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      Bob red mill gluten free oats

      By trents · Posted

      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      Disaccharide deficient, confusing biopsy results, no blood test

      By trents · Posted

      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Bob red mill gluten free oats

      By Paulaannefthimiou · Posted

      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      Disaccharide deficient, confusing biopsy results, no blood test

      By jenniber · Posted

      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      High TTG-IgG and Normal TTG-IgA

      By trents · Posted

      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.