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Ears Ringing, Brain Fog And Cystic Infection W/celiac?


belaugh86

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belaugh86 Newbie

Has anyone ever experienced extreme brain fog/fatigue and even loss of hearing due to coming in contact with gluten, casein or any other allergy/intolerance? I ate out at a restaurant last night and this morning I woke up with ringing in my left ear, it feels clogged, and things sound louder than they are but I can't hear myself speak very clearly.

I also have problems with a pilonydal cyst and rarely, cystic acne. I don't know if anyone else has ever experienced this but I believe it may be related to whenver I ingest even a small amount of gluten that may have touched a grain of some sort I react to it. The cyst comes and goes and has affected me on and off for my entire life. It gets inflamed especially when I am stressed, not getting enough sleep, or during PMS, or if I am eating a pro-inflammatory diet (lots of sugar, processed foods even if they are gluten free.)

I wrote a previous post a week or so ago about the fact that I think I am completely grain intolerant. I cut out dairy recently and started feeling better. I've also had problems with hemorrhoids (sorry if that's TMI but I really do need help here) and they have seemed to go away somewhat with cutting out dairy, just in the past couple of days. I have also been to the doctor for most of these issues - antibiotics for the cyst when it occurs (no longer works), accutane for acne (helped but had horrible side effects), and 4 prescriptions for the hemorrhoids. I am convinced that none of these drugs will help but that my health issues are diet related.

I mentioned in my previous post that I felt better when I went on The South Beach Diet phase 1, where you eliminate all grains and sugar from your diet for the first two weeks. I was able to go to the bathroom more easily and my brain fog and headaches went away within days. I also lost weight very quickly and seem to gain it very easily when I eat any grains, regardless of gluten content.

I guess my question is has anyone else had similar symptoms? Maybe not all, but some, maybe one or the other? And if so, is there anyone out there who has cut out grains entirely from their diet and feels better? I am planning on giving up corn, soy, rice, and other processed grains as well as the ones I have already given up (dairy and wheat). The foggy headed/ears ringing feeling is not a head cold.

Any tips would really help, if anyone else has experienced similar problems or issues I'd love to hear what has helped you. I have also been tested for celiac but came back negative, went ahead and cut out wheat anyway and it helped.


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YoloGx Rookie
Has anyone ever experienced extreme brain fog/fatigue and even loss of hearing due to coming in contact with gluten, casein or any other allergy/intolerance? I ate out at a restaurant last night and this morning I woke up with ringing in my left ear, it feels clogged, and things sound louder than they are but I can't hear myself speak very clearly.

I also have problems with a pilonydal cyst and rarely, cystic acne. I don't know if anyone else has ever experienced this but I believe it may be related to whenver I ingest even a small amount of gluten that may have touched a grain of some sort I react to it. The cyst comes and goes and has affected me on and off for my entire life. It gets inflamed especially when I am stressed, not getting enough sleep, or during PMS, or if I am eating a pro-inflammatory diet (lots of sugar, processed foods even if they are gluten free.)

I wrote a previous post a week or so ago about the fact that I think I am completely grain intolerant. I cut out dairy recently and started feeling better. I've also had problems with hemorrhoids (sorry if that's TMI but I really do need help here) and they have seemed to go away somewhat with cutting out dairy, just in the past couple of days. I have also been to the doctor for most of these issues - antibiotics for the cyst when it occurs (no longer works), accutane for acne (helped but had horrible side effects), and 4 prescriptions for the hemorrhoids. I am convinced that none of these drugs will help but that my health issues are diet related.

I mentioned in my previous post that I felt better when I went on The South Beach Diet phase 1, where you eliminate all grains and sugar from your diet for the first two weeks. I was able to go to the bathroom more easily and my brain fog and headaches went away within days. I also lost weight very quickly and seem to gain it very easily when I eat any grains, regardless of gluten content.

I guess my question is has anyone else had similar symptoms? Maybe not all, but some, maybe one or the other? And if so, is there anyone out there who has cut out grains entirely from their diet and feels better? I am planning on giving up corn, soy, rice, and other processed grains as well as the ones I have already given up (dairy and wheat). The foggy headed/ears ringing feeling is not a head cold.

Any tips would really help, if anyone else has experienced similar problems or issues I'd love to hear what has helped you. I have also been tested for celiac but came back negative, went ahead and cut out wheat anyway and it helped.

Yes yes and yes, unfortunately. I too have had to go off all grains. and sugars. Maybe once in a blue moon I have some wild rice after washing the raw grain several times before cooking. Many here who are very sensitive have had to go on a modified specific carbohydrate diet. Its not usually our first choice, instead it is a necessity. The positive health results however are really worth it. Clarity of mind, energy, no headaches etc. etc. Called having a life for once.

Taking baking soda in a glass of water for the foggy head cold feeling helps in a pinch; however its a pinch you don't want to do all the time. Also occasionally using liver cleansing herbs like dandelion root and/or yellow dock and lymphatic cleansing herbs like cleavers or echinacea also really helps me. Don't use them if you get D all the time however. I take marshmallow root or slippery elm caps pretty regularly to soothe out and heal the inflamed intestines just as a regular prophylactic.

A few years ago when I was living with a wheat eater I experimented with eating a gluten cookie now and then (this is when I thought I just had a gluten allergy) one of the first symptoms I would have would be a pimple(s)--usually in the same spots and enlarged lymph nodes as well as a plugged up nose, canker sores, brain fog, headaches and bodyaches etc. etc. as well as more easily contracting some cold or flu that would last seemingly forever.

Growing up as a celiac (but not knowing it) I often had visions and would occasionally hear music that wasn't actually there. It was so bad I used to peel my fingernails and had sore cracked areas at the edges of my lips and back of my ears plus my hair was always straight and falling out. All classic cases of nutritional deficiencies despite otherwise having a relatively good diet.

I still get what I call the itchy crusty skin b%$@#ies if I eat any sugar at all, including fruit or say potato or yam. If I eat same, it also makes it hard for me to sleep since it inflames my old low back injury and sacrum area.

So, you are not crazy, just sensitive. Probably more adapted (like some of us ) for the pre-agricultural world!

And oh yes I have had the ear ringing from allergens. Its not that uncommon. My partner gets that also.

I also went for a couple of days not being able to interpret a word anyone said after getting zapped from the fumes doing a ceramic kiln fire without a mask.

Bea

ang1e0251 Contributor

I too feel better on no grains. But I'm now just eating grain light. I have rice 2 or 3 times a week. I did make those brownies, you know the ones, and I have been eating those this week. But I won't probably have those again for a month. I've been craving enchiladas so I will make those sometime soon with corn tortillas. Actually, corn is the grain I do the best with. Over all I have given up all other grains. I will make some goodies for the holidays but for day to day, I eat very little grain.

shendler Rookie

Last night I had dairy in a gluten free dish and I had ringing in my ears and a bad headache. Today I had some cheese and I've been throwing up, I'm dizzy, my pulse is fast. I a finding that each day there are more and more things I just can't eat.

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    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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