Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long Before Testing Do I Have To Eat Gluten?


Sandi*

Recommended Posts

Sandi* Apprentice

I am going to see a new doctor and see if I can push for a diagnosis :). So there is a very good chance she might do the endoscopy/biopsy again.

I've been gluten-free on and off over the last couple months. Usually I avoid it for two weeks, then decide it's not helping, so I eat it for two weeks again, then go back to not eating it because I feel worse. Well, I THINK I feel worse but I never know if it's IBS or celiac disease. Anyway, I think since I haven't been strictly gluten-free for a long long time I think it may take me less time to have to consume all that gluten needed for a biopsy?

Also, what are the best, gluten-concentrated foods besides bread and pasta? How about seitan, doesn't that have even more gluten? If I do have to eat it, I would make it count and eat a lot of it to get the most accurate diagnosis.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



The Fluffy Assassin Enthusiast
I am going to see a new doctor and see if I can push for a diagnosis :). So there is a very good chance she might do the endoscopy/biopsy again.

I've been gluten-free on and off over the last couple months. Usually I avoid it for two weeks, then decide it's not helping, so I eat it for two weeks again, then go back to not eating it because I feel worse. Well, I THINK I feel worse but I never know if it's IBS or celiac disease. Anyway, I think since I haven't been strictly gluten-free for a long long time I think it may take me less time to have to consume all that gluten needed for a biopsy?

Also, what are the best, gluten-concentrated foods besides bread and pasta? How about seitan, doesn't that have even more gluten? If I do have to eat it, I would make it count and eat a lot of it to get the most accurate diagnosis.

I think the consensus is "at least six weeks." I'm pretty sure that a slice or two of whole-wheat bread per day would be sufficient, but if you're this motivated to eat gluten, they sell it in stores, labeled "Vital Wheat Gluten." (Hoping they're wrong about the "vital" part.:))

Lisa Mentor
I am going to see a new doctor and see if I can push for a diagnosis :).

Also, what are the best, gluten-concentrated foods besides bread and pasta? How about seitan, doesn't that have even more gluten? If I do have to eat it, I would make it count and eat a lot of it to get the most accurate diagnosis.

I would suggest, if you are determined for a diagnosis that you consume 3-4 slices of bread (or equivelent) for a six to eight week period.

Should you have Celiac, it's the autoimmune response to the gluten, not the densitiy of the gluten consumed, which creates a degree of damage where it can be diagnosed.

After six to eight weeks, I would have the Celiac Panel:

Anti-gliadin antibodies (AGA) both IgA and IgG

Anti-endomysial antibodies (EMA) - IgA

Anti-tissue transglutaminase antibodies (tTG) - IgA

Total IgA level.

OR, you can choose a dedicated gluten free diet, with hopes of a positive dietary response.

Sandi* Apprentice

Thank you both. I had gluten yesterday, I had seitan for lunch and then two slices of bread for dinner, and I got this very uncomfortable, full, bloated feeling afterward. So that may be my answer...I would just feel much better and determined if I had an official diagnosis.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - catnapt posted a topic in Related Issues & Disorders
      0

      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

    2. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      how much gluten do I need to eat before blood tests?

    3. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Curious question

    4. - Amy Barnett posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,322
    • Most Online (within 30 mins)
      7,748

    avery144
    Newest Member
    avery144
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • catnapt
      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
    • catnapt
      I am on day 13 of eating gluten  and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone and/or the renal calcium leak.    I have spent the past 15 years working hard to improve my health. I lost 50lbs, got off handfuls of medications, lowered my cholesterol to enviable levels, and in spite of having end stage osteoarthritis in both knees, with a good diet and keeping active I have NO pain in those joints- til now.  Almost all of my joints hurt now I feel like someone has repeatedly punched me all over my torso- even my ribs hurt- I have nausea, gas, bloating, headache, mood swings, irritability, horrid flatulence (afraid to leave the house or be in any enclosed spaces with other people- the smell would knock them off their feet) I was so sure that I wanted a firm diagnosis but now- I'm asking myself is THIS worth it? esp over the past 2 yrs I have been feeling better and better the more I adjusted my diet to exclude highly refined grains and processed foods. I didn't purposely avoid gluten, but it just happened that not eating gluten has made me feel better.   I don't know what I would have to gain by getting a definitive diagnosis. I think possibly the only advantage to a DX would be that I could insist on gluten-free foods in settings where I am unable to have access to foods of my choice (hospital, rehab, nursing home)  and maybe having a medical reason to see a dietician?   please let me know if it's reasonable to just go back to the way I was eating.  Actually I do plan to buy certified gluten-free oats as that is the only grain I consume (and really like) so there will be some minor tweaks I hope and pray that I heal quickly from any possible damage that may have been done from 13 days of eating gluten.    
    • Jmartes71
      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was sent.I have email copies.I did one zoom call with np with team member from celiac specialist in Nov 2025 and she asked me why I wanted to know why I wanted the celiac diagnosis so bad, I sad I don't, its my life and I need revalidaion because its affecting me.KB stated well it shows you are.I asked then why am I going through all this.I was labeled unruly. Its been a celiac circus and medical has caused anxiety and depression no fault to my own other than being born with bad genetics. How is it legal for medical professionals to gaslight patients that are with an ailment coming for help to be downplayed? KB put in my records that she personally spent 120min with me and I think the zoom call was discussing celiac 80 min ONE ZOOM call.SHE is responsible for not explaining to my pcp about celiac disease am I right?
    • Amy Barnett
      What is the best liquid multivitamin for celiac disease?
    • Jmartes71
      I've noticed with my age and menopause my smell for bread gives me severe migraines and I know this.Its alarming that there are all these fabulous bakeries, sandwich places pizza places popping up in confined areas.Just the other day I suffered a migraine after I got done with my mri when a guy with a brown paper bag walk in front of me and I smelled that fresh dough bread with tuna, I got a migraine when we got home.I hate im that sensitive. Its alarming these places are popping up in airports as well.I just saw on the news that the airport ( can't remember which  one)was going to have a fabulous smelling bakery. Not for sensitive celiacs, this can alter their health during their travel which isn't safe. More awareness really NEEDS to be promoted, so much more than just a food consumption!FYI I did write to Stanislaus to let them know my thoughts on the medical field not knowing much about celiac and how it affects one.I also did message my gi the 3 specialist names that was given on previous post on questions on celiac. I pray its not on deaf door.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.