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Emt719

By Emt719
in Related Issues & Disorders

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Emt719 Newbie
Emt719
Posted

I am 25 and diagnosed in Feb with celiac, I also had my gallbladder removed 5 days prior to being diagnosed and they said they my lympnodes were extremely inflammed from which found out was the celiac. I have been sticking to a very stict diet and have accidentally gotten glutened a few times and dont know it til the next day, but recently in this past 2 weeks, I have had bloating and alot of gas build up that is causing pressure in my belly and having pretty bad muscle spasms and being treated with bentyl (antispamtic) I wondered if anyone else has had problems like this and if so what has helped... I have now eliminated dairy from my diet because I was eating alot of it and having no problems, but i thought maybe that could be causing it. The doctor also has been treating me since surgery with prilosec due to irritation of the liniing of my stomach due to years of eating gluten. Went to the doctor when he prescibed bentyl one week ago and he said it also could be IBS which is common in celiac? Can someone please give me advice!!!

Thanks!

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ravenwoodglass Mentor
ravenwoodglass
Posted

The first thing you need to do is check your scripts and any supplements for gluten. Don't trust your doctor to know ask the pharmacist or call the company directly.

Take a good look at anything new you may have added in the last two weeks and also check to make sure about whether stuff is made in the same plant as gluten items. Many of us become more sensitive to CC as we heal.

In addition it is a good idea to check all your toiletries and make sure if you are sharing a home with gluten eaters that no one is double dipping into condiments, nut butters jelly etc.

One last thing is that although distilled gluten grains are safe for most some of us will react to them. If you drink alcohol it is best to stay away from gluten grain alcohols until you have had time to heal fully.

You may also want to consider trying Pepto Bismal liquid for the stomach pain instead of an acid blocker. For some it does away with the pain in one dose and you won't have a risk of any rebound with the pepto which you may have with the script meds. Being gluten free will help you stomach heal if that was the cause of the irritation.

Emt719 Newbie
Emt719
Posted
  • Author

Thank you so much, I will def. check into the scripts tommorow and sometimes i think i am so worried about getting glutened and feeling bad that i cause stomach problems from anxiety, trying to work on that. I do share the home with husband and he tries so hard to be careful but he slips up and i cant fault him for that. I just keep hoping with time this can only get better (fingers crossed) I hope this site is helpful to me, celiac is not common at all where i live and some people still think my doctors crazy. Thank you any advice is much appriciated.

ravenwoodglass Mentor
ravenwoodglass
Posted
Thank you so much, I will def. check into the scripts tommorow and sometimes i think i am so worried about getting glutened and feeling bad that i cause stomach problems from anxiety, trying to work on that. I do share the home with husband and he tries so hard to be careful but he slips up and i cant fault him for that. I just keep hoping with time this can only get better (fingers crossed) I hope this site is helpful to me, celiac is not common at all where i live and some people still think my doctors crazy. Thank you any advice is much appriciated.

This site will be very helpful to you I am sure. There are a lot of very knowledgeable people who have walked in your shoes. Do feel free to ask any questions you need to and feel free to vent frustrations. It will get better but there is a lot of learning that goes with the gluten free lifestyle, it is much more than just food. Labeling regs also leave a lot to be desired and when in doubt call a company before you consume anything. It does get easier with time. If you stick with whole unprocessed foods in the beginning it helps you to heal faster as there is less risk of cross contamination. Do read as much as you can here and hang in there. The stomach pain is more likely to be gluten sneaking in than anxiety. One thing you also may want to consider is either deleteing dairy or sharply restricting it at first. The same area damaged by gluten produces the enzymes you need to digest dairy. It may help the healing go a bit faster to avoid it and then when you have been feeling good tummy wise for awhile add it back in starting with yogurt and hard cheeses. Since you live with a gluten eater there are a couple of things you can do. Get your own condiments and label them, also be sure to get another dedicated gluten free toaster for your use only. Many that live in a combined house designate one area for making gluten sandwiches etc and if he cleans up his own crumbs that will help. I hope you are feeling better soon.

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