Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Crying Frustrated...


cbear6301

Recommended Posts

cbear6301 Explorer

I was doing pretty good..and than I seem to have hit a really bad spell. First, about two weeks ago, I glutened myself. I eat so many of the almonds from Blue Diamond that I picked up a can of the jordan almonds.. ate quite a bit..a couple hours later my ear was throbbing, I got a bad migraine. I went online and saw that they had gluten.. I was able to treat the migraine but the next week was filled with studdering, anxiety, joint pain, dizziness.stomach pains .felt like the old me. I learned my lesson.. I thought. This past weekend my husband and I went to Aldi's... I read every thing..I am a snacker at night.. the only thing different this week was the cheese puffs.. I have had a small bowl each night. Its the only thing I have done different. This whole week I have been dealing with severe dizziness , headaches, more studdering and anxiety..and diarrhea.. my stomach hurts and I feel so sick.. I feel really bad this morning.

My question is this. Would I still be feeling it from the almonds or would it be the snacks from Aldi's? When you get glutened that bad, does it stay with you? Am I back at square one?

I just am so frustrated and so tired. Can anyone give me any insight?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

I am so sorry this is happening to you. It could still be the Jordan almonds but I suspect that the snacks are either not gluten free or that they are heavily cross contaminated. Have you called the maker of the snacks to verify that they are gluten free? Even if they are gluten free by ingredients the plant they are made in may use powdered gluten ingredients in other items. If that is the case nothing from that plant would likely be safe to be consumed. I would stop eating those immediately. If you wanted you could then wait a couple weeks till you are feeling better and try them again and see if you react. Another posibility is that you have developed reactions to dairy foods. Although for myself my reactions to my other intolerances are decided different from my reactions to gluten that isn't the case for everyone. That can make it hard to figure out what is going on. Can you try to stick to whole, unprocessed foods for a while? That would help you to heal the fastest.

Dr-LaTino Newbie

Like raven said, a whole food unprocessed diet is the way to go in terms of healing. It's helping me recover, I know that much, and is less stressful when you don't have to constantly look for hidden gluten (in a Paleo diet there are little amount of ingredients in what you buy)

Just keep pulling through and try not to think constantly about progress (even though I know it's in your face). That will stress you out.

hannahp57 Contributor

I would say raven gave you the best advise.

but maybe my experience will help you to feel better. i glutened myself just a couple months back... i was down for a full week. first the gi symptoms that are bad enough... but after the first two days of gi symptoms and a bit of brain fog, i was just so fatigued and my insides just ached. you arent necessarily back at square one. but like the previous poster suggested, those puffs may be heavily cross contaminated. i would cut those out completely, all that CC adds up after a while and you're never going to feel your best with that in your system!

YoloGx Rookie

I actually had a glutening with effects that lasted 5 weeks! But that was when I breathed in wheat flour dust courtesy of my brother who made 7 pies for Thanksgiving.

I agree-it could be either item or both.

Paleo or specific carbohydrate diet (scd) are two of the best diets for healing and avoiding CC! I so agree.

If you are reacting to milk products, try 24 hour home made yogurt and the list of scd cheeses that have all the lactose removed through thorough fermentation. Its helped me to heal so much more so that now I am able eat several things I formerly thought I was allergic to...

Bea

one more mile Contributor

Just some support, you are never back to square one now that you have a solution to what is going on with you!

When I get glutened it takes about a week for me to get back to being ok. I read every label each time I buy something in case they changed how they made it. I find the less processed stuff I eat the better I am.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,947
    • Most Online (within 30 mins)
      7,748

    Sinch23
    Newest Member
    Sinch23
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jacki Espo
      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
    • DebJ14
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.