Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Crying Frustrated...


cbear6301

Recommended Posts

cbear6301 Explorer

I was doing pretty good..and than I seem to have hit a really bad spell. First, about two weeks ago, I glutened myself. I eat so many of the almonds from Blue Diamond that I picked up a can of the jordan almonds.. ate quite a bit..a couple hours later my ear was throbbing, I got a bad migraine. I went online and saw that they had gluten.. I was able to treat the migraine but the next week was filled with studdering, anxiety, joint pain, dizziness.stomach pains .felt like the old me. I learned my lesson.. I thought. This past weekend my husband and I went to Aldi's... I read every thing..I am a snacker at night.. the only thing different this week was the cheese puffs.. I have had a small bowl each night. Its the only thing I have done different. This whole week I have been dealing with severe dizziness , headaches, more studdering and anxiety..and diarrhea.. my stomach hurts and I feel so sick.. I feel really bad this morning.

My question is this. Would I still be feeling it from the almonds or would it be the snacks from Aldi's? When you get glutened that bad, does it stay with you? Am I back at square one?

I just am so frustrated and so tired. Can anyone give me any insight?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

I am so sorry this is happening to you. It could still be the Jordan almonds but I suspect that the snacks are either not gluten free or that they are heavily cross contaminated. Have you called the maker of the snacks to verify that they are gluten free? Even if they are gluten free by ingredients the plant they are made in may use powdered gluten ingredients in other items. If that is the case nothing from that plant would likely be safe to be consumed. I would stop eating those immediately. If you wanted you could then wait a couple weeks till you are feeling better and try them again and see if you react. Another posibility is that you have developed reactions to dairy foods. Although for myself my reactions to my other intolerances are decided different from my reactions to gluten that isn't the case for everyone. That can make it hard to figure out what is going on. Can you try to stick to whole, unprocessed foods for a while? That would help you to heal the fastest.

Dr-LaTino Newbie

Like raven said, a whole food unprocessed diet is the way to go in terms of healing. It's helping me recover, I know that much, and is less stressful when you don't have to constantly look for hidden gluten (in a Paleo diet there are little amount of ingredients in what you buy)

Just keep pulling through and try not to think constantly about progress (even though I know it's in your face). That will stress you out.

hannahp57 Contributor

I would say raven gave you the best advise.

but maybe my experience will help you to feel better. i glutened myself just a couple months back... i was down for a full week. first the gi symptoms that are bad enough... but after the first two days of gi symptoms and a bit of brain fog, i was just so fatigued and my insides just ached. you arent necessarily back at square one. but like the previous poster suggested, those puffs may be heavily cross contaminated. i would cut those out completely, all that CC adds up after a while and you're never going to feel your best with that in your system!

YoloGx Rookie

I actually had a glutening with effects that lasted 5 weeks! But that was when I breathed in wheat flour dust courtesy of my brother who made 7 pies for Thanksgiving.

I agree-it could be either item or both.

Paleo or specific carbohydrate diet (scd) are two of the best diets for healing and avoiding CC! I so agree.

If you are reacting to milk products, try 24 hour home made yogurt and the list of scd cheeses that have all the lactose removed through thorough fermentation. Its helped me to heal so much more so that now I am able eat several things I formerly thought I was allergic to...

Bea

one more mile Contributor

Just some support, you are never back to square one now that you have a solution to what is going on with you!

When I get glutened it takes about a week for me to get back to being ok. I read every label each time I buy something in case they changed how they made it. I find the less processed stuff I eat the better I am.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Disaccharide deficient, confusing biopsy results, no blood test

    2. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    3. - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

    4. - trents replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,809
    • Most Online (within 30 mins)
      7,748

    Ello
    Newest Member
    Ello
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
    • GlorietaKaro
      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
    • trents
      @GlorietaKaro, your respiratory reactions to gluten make me wonder if there might also be an allergic (anaphylaxis) component at work here.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.