Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dx Celiac, Possible Autoimmune Reaction To Seafood, Nuts, Dairy, High Protein Foods.


Woolygimp

Recommended Posts

Woolygimp Contributor

I was diagnosed with Celiac disease and it seems to have had some ongoing immune reaction. The main complaints I've always had were dry eyes, mouth, and skin which are your typical Sjogren's syndrome symptoms and they seem to come and go. I've always noticed that they seem to flare up, especially when I get glutened, but also when I eat certain things like dairy, almonds, fish, and peanuts.

So for the last few weeks I've been eating fruit and meat and I've been doing alright, until last night when I cooked some salmon and ate it. This morning I woke up very achey, my mouth was dry, my eyes were dry, and I just felt horrible. It can't be a coincidence, it happens everytime.

I've noticed the foods that make me feel worse are usually high in protein, especially almonds/fish. Maybe it's a possible problem with digestion where the food is entering my bloodstream causing an immune reaction? Maybe my body doesn't have what it needs to break down these foods to digest and that's how they are entering the blood stream? I don't know. It's not a normal food allergy because I don't have the anaphalysis, and it's not as bad as when I get glutened because my DH doesn't flareup... but it definitely makes me feel horrible.

I don't get ANY digestive issues when I eat these foods, they come out fine. They just make me feel bad.

There are a lot of proponents that say autoimmune diseases are related to food allergies, but the diet they all propose includes fish and nuts - both of which I have an adverse reaction to. I just don't understand....


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



txplowgirl Enthusiast

Not quite an allergy but you are sensitive to the fish and high protien. There is a difference. All I can say is try not to eat any of these for a few months and then try to reintroduce at a later date. Sorry I couldn't be of any more help.

mushroom Proficient

You will find many of us on here with lots of other food intolerances besides gluten. And for each person they seem to manifest in a unique way. For me, potatoes, soy, and citric acid are currently all making me itch like crazy if I eat them, sometimes with red blotches, sometimes without. Right now, for the first time in five years, I am not itching!! Yeay.

Eliminate all the things you are intolerant to and as the previous poster said, maybe sometime in the future you will be able to tolerate them again--then,again, maybe not. It's a crapshoot really. For most of us the other intolerances don't show up until gluten free because the response to the gluten seems to overwhelm the body so that the other stuff doesn't get heard.

Woolygimp Contributor
You will find many of us on here with lots of other food intolerances besides gluten. And for each person they seem to manifest in a unique way. For me, potatoes, soy, and citric acid are currently all making me itch like crazy if I eat them, sometimes with red blotches, sometimes without. Right now, for the first time in five years, I am not itching!! Yeay.

Eliminate all the things you are intolerant to and as the previous poster said, maybe sometime in the future you will be able to tolerate them again--then,again, maybe not. It's a crapshoot really. For most of us the other intolerances don't show up until gluten free because the response to the gluten seems to overwhelm the body so that the other stuff doesn't get heard.

I think they are causing an autoimmune reaction. I feel extremely achey, fatigued, lethargic, brain fogged, even my teeth are aching.

I haven't eaten fish in 6 months because of this and when I tried to reintroduce them last night, it definitely felt worse than ever. I slept for around 13 hours as well. I expected it really.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,175
    • Most Online (within 30 mins)
      7,748

    Chels22
    Newest Member
    Chels22
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Heatherisle
      Daughter has started gluten free diet this week as per gastroenterologists suggestion. However says she feels more tired and like she’s been hit by a train. I suggested it could be the change to gluten free or just stress from the endoscopy last week catching up with her. Just wondering if feeling more tired is a normal reaction at this stage. I suppose it’s possible some gluten might have been present without realising. Have tried to reassure her it’s not going to resolve symptoms overnight
    • DAR girl
      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
×
×
  • Create New...