Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Are Gi Problems Usually Part Of Celiac Disease?


vlm448

Recommended Posts

vlm448 Rookie

I am new and quite confused. Blood work negative for celiac and waiting for biopsy report. Primary symptom is fatigue - some mood swings and depression - no GI or other body issues. Wht is likelihood of my being gluten intolerant? Most eveyone on the forum reports other complaints, i.e. abdominal pain, joint pain, etc. Thank you for any feedback you can give me!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

The percentages of people with Celiac, having GI issues as primary symptoms, is relatively low, oddly enough.

With over 200 symptoms, chronic fatigue is common in it's association with Celiac Disease, as it is with other illnesses.

Open Original Shared Link

Exclusionary Conditions;

Chronic fatigue syndrome can resemble many other illnesses, including mononucleosis, Lyme disease, lupus, multiple sclerosis, fibromyalgia, primary sleep disorders, severe obesity and major depressive disorders. Medications can also cause side effects that mimic the symptoms of CFS.

Because CFS can resemble many other disorders, it's important not to self-diagnose CFS. It's not uncommon for people to mistakenly assume they have chronic fatigue syndrome when they have another illness that needs to be treated. If you have CFS symptoms, consult a health care professional to determine if any other conditions are responsible for your symptoms. A CFS diagnosis can be made only after other conditions have been excluded.

It's also important not to delay seeking a diagnosis and medical care. CDC research suggests that early diagnosis and treatment of CFS can increase the likelihood of improvement

tarnalberry Community Regular

with negative tests, and fatigue/mood swings/depression as your only symptoms, I wouldn't first think celiac. I'm not saying it couldn't be - if you have intestinal damage that is preventing the absorption of vitamins, it could *definitely* cause those symptoms. but the quacking of these symptoms isn't entirely duck-like. :)

have you been checked for thyroid issues (thoroughly, not just a little test, and know whether you're "low-normal" as well)? have you been checked for other endocrine issues - like low testosterone (male or female - and don't let your doctor tell you you're too young; mine registered undetectable at 24)? have you been tested for low-grade infectious diseases? do you have a complicating factor (any chronic disease/illness would fit this bill, for instance)? do you have a particularly large amount of continual stress in your life? (that is not to say it's in your head; it's to say that continual activation of the sympathetic nervous system (and underactivation of the parasympathetic nervous system) really affects the chemistry in your head, and the rest of your body and can be a real cause of real problems, and - though the treatment is less "pharmaceutical" (and more difficult, imho), it can still be treated.)

imho, I would never tell someone that they shouldn't be tested or try a gluten free diet (after testing, if they're doing testing, and for at least three months - STRICTLY). you came across the issue in some fashion, and had an inkling it could be your issue - I say listen to your instincts. BUT, given that those symptoms can manifest in many other ways (that going gluten free won't do a darn thing about), I wouldn't necessarily end the investigation there...

ravenwoodglass Mentor
I am new and quite confused. Blood work negative for celiac and waiting for biopsy report. Primary symptom is fatigue - some mood swings and depression - no GI or other body issues. Wht is likelihood of my being gluten intolerant? Most eveyone on the forum reports other complaints, i.e. abdominal pain, joint pain, etc. Thank you for any feedback you can give me!

For many years my primary symptoms were the ones you listed with the exception that I also had the skin form of celiac, DH and something called gluten ataxia which is where you are always offbalance. It wasn't until after my children were born that the GI issues became more than just an occasional annoyance.

Do ask your doctor for a blood test if you suspect celiac but make sure other issues are ruled out also. After any celiac screening is done do give the diet a good strict try, you have nothing to lose by doing so. Celiac or gluten intolerance can choose to attack other organs before the digestive tract and there are cases of what is called 'silent' celiac where GI issues never develop but other autoimmune issues do.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Churley replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    3. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    4. - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,347
    • Most Online (within 30 mins)
      7,748

    Carla Mort
    Newest Member
    Carla Mort
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
    • asaT
      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.