Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Concerned!


SkinnyT

Recommended Posts

SkinnyT Newbie

After being nuts for so long because of celiac I feel almost embarassed and extremely hostile about so many things.

It is hard to explain really, I was hoping some people might just understand what I am talking about.

My school basically screwed me, I almost failed out of uni and paid out the ear to stay in. I feel abused and against their system on a fundamental level because basically as I see it I almost died from malnutrition, definitely went insane and had the worst few years of my life under the eye of their establishment... Which has been a huge struggle I am still trying to get money back from classes I did not even go to nevermind the 5 or so that I dropped and paid for in full.

relationships with family and friends have been stressed, went thru a lot of drugs when I was depressed and darned myself up even more.

Now I know to look forward but it is like I have to adapt a new way of thinking while a few years of my life were just written right off.

I am concerned about my capabilities. Am I less mentally able after what I went through? Was my development "retarded" because of the disease.

I guess it is hard to measure these things... But my physical reactions to the experience only leave me guessing about psychological/neurological problems.

Gray hairs, balding at 22... always been underweight finally starting to gain. Was always tired for a while, did not sleep at all for a whole month. Was unable to read at one point because I could not focus on a full sentence and remember it.

I feel so much better now but I realize little things mostly social things which make me feel ... stupid!!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



wildwood Apprentice
After being nuts for so long because of celiac I feel almost embarassed and extremely hostile about so many things.

It is hard to explain really, I was hoping some people might just understand what I am talking about.

My school basically screwed me, I almost failed out of uni and paid out the ear to stay in. I feel abused and against their system on a fundamental level because basically as I see it I almost died from malnutrition, definitely went insane and had the worst few years of my life under the eye of their establishment... Which has been a huge struggle I am still trying to get money back from classes I did not even go to nevermind the 5 or so that I dropped and paid for in full.

relationships with family and friends have been stressed, went thru a lot of drugs when I was depressed and darned myself up even more.

Now I know to look forward but it is like I have to adapt a new way of thinking while a few years of my life were just written right off.

I am concerned about my capabilities. Am I less mentally able after what I went through? Was my development "retarded" because of the disease.

I guess it is hard to measure these things... But my physical reactions to the experience only leave me guessing about psychological/neurological problems.

Gray hairs, balding at 22... always been underweight finally starting to gain. Was always tired for a while, did not sleep at all for a whole month. Was unable to read at one point because I could not focus on a full sentence and remember it.

I feel so much better now but I realize little things mostly social things which make me feel ... stupid!!!!

I am sorry things have been so difficult for you. I think you are correct to realize you must adapt to a new way of thinking, but please don't just write off the past few years of your life. We all learn so much from difficult times and without realizing come out stronger and better equipped to face what lies ahead. The important thing may be to walk away with having learned many lessons, appreciate these lessons and look forward. I have found that when you dwell on the past too much it becomes a detriment to your future and holds you back. The past is the past and it cannot be changed. It serves noone to hold resentments, it only keeps you yourself down and alienates those around you. Take it one day at a time and stay as positive as you can. Look for the postive things that are all around you and build upon those. When you start to feel anger and hostility over the past don't let that be an excuse to fail. Remind yourself that what you have now is your present and future and to have a bright and positive future, you must have a bright and positive outlook. Be kind to others, be happy, be grateful and all will fall into place. Keep learning from your mistakes along the way. We all make mistakes and errors in judgement. I am not saying it will be easy, but once you let go of the past you may find the present and future much more pleasant and worthwhile.

ang1e0251 Contributor

We are a product of our experiences and our personalities. A lesser person would have used those years as an excuse to whine the rest of their lives and not be productive. But you've taken the first step toward a productive and happy future by expressing a desire for a new outlook. You can do it too. Focus on every new fealing of health and good experience. Relive those feelings and experiences in your mind and you will draw more and more good things to you. I can see a great future ahead for you.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

    2. - captaincrab55 replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Finding gluten free ingredients

    3. - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

    4. - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

    5. - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,130
    • Most Online (within 30 mins)
      7,748

    Tony White
    Newest Member
    Tony White
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.