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New Here...what Do You Think

AJSmom

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AJSmom Rookie
AJSmom
Posted

Hi all! My son is 3 1/2, and has been dealing with many many health issues for a very long time. First off he has a congenital heart defect which will need surgery. We also deal with reflux, chronic constipation, asthma which I'm told is the reason for his constant cough.

I work at a day care and one of the moms there has been talking to me about my son. Her daughter is on a gluten free diet. One of the things she has noticed about my son is the dark circles under his eye. He's always been like that as long as I can remember.

What do you think? I'm willing to try out a gluten free diet...it's better then him being on medications for everything.

Thanks for any help/advice/suggestions

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celiac-mommy Collaborator
celiac-mommy
Posted

It can't hurt, but before you do, you might want to ask his doctor to run a celiac panel on him before changing his diet. On the other hand, my son's panel was negative but was diagnosed from his extremely positive dietary response. I'm not sure I'm helping too much :P

AJSmom Rookie
AJSmom
Posted
  • Author
It can't hurt, but before you do, you might want to ask his doctor to run a celiac panel on him before changing his diet. On the other hand, my son's panel was negative but was diagnosed from his extremely positive dietary response. I'm not sure I'm helping too much :P

We've done many many testing and I'm sure this one was one of them. I'll call next week when his office comes back from vacation. I've just heard and read stories of just like your son...testing coming back negative but still having many symptoms.

He has asthma and is on many meds for that...reflux on meds for that....constipation on meds for that. He was off some medications but slowly one by one getting put back on them. I hate the idea of him being on medications for such long time.

Ahorsesoul Enthusiast
Ahorsesoul
Posted

When my kids were young they looked like little racoons. Both are celiacs.

conviviality Newbie
conviviality
Posted
Hi all! My son is 3 1/2, and has been dealing with many many health issues for a very long time. First off he has a congenital heart defect which will need surgery. We also deal with reflux, chronic constipation, asthma which I'm told is the reason for his constant cough.

I work at a day care and one of the moms there has been talking to me about my son. Her daughter is on a gluten free diet. One of the things she has noticed about my son is the dark circles under his eye. He's always been like that as long as I can remember.

What do you think? I'm willing to try out a gluten free diet...it's better then him being on medications for everything.

Thanks for any help/advice/suggestions

I had dark circles under my eyes as a child. I never understood why but was always self-conscious about it. I did not get my Celiac diagnosis until age 39. But now, at 40, no more dark circles. This is not a proper way to diagnose I'm sure, but just thought I would share my own experience with you. Sometimes the symptoms are so subtle that no one notices. The research seems to show that gluten is just plain hard to digest for anyone, so it couldn't hurt to go gluten-free for the whole family. Its not that hard once you get used to it--I promise!

All the best!!

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    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      IBS-D vs Celiac

      By Scott Adams · Posted

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    • Scott Adams
      Question

      By Scott Adams · Posted

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    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      IBS-D vs Celiac

      By trents · Posted

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