Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New And Kind Of Depressed About The Diet


westiepaws

Recommended Posts

westiepaws Apprentice

Last night I made the enchilada sauce recipe at this site. It was SO yummy. I put it on bean enchiladas. Everything was gluten-free, except less than 1 percent of the chicken broth had wheat in it. And possibly my chili powder. I thought surely I would be okay. B)

Well, um, no. I have been mostly gluten-free since Dec. 04, and last night I ended up with lower GI problems last night. Today I suddenly and briefly got all red and itchy and hot on my hands, my elbows, my face, my feet, and the backs of my legs. :blink:

Well, there's no doubt that I need to not be eating that stuff. But it's also kind of depressing. I guess it is normal to get down when it's hitting home that this is for real, for the rest of your life.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KaitiUSA Enthusiast

Thats the importance of keeping a 100% gluten free diet. Even the smallest amount can damage your intestines even if you don't get symptoms. Why is it even worth it? The risks of cancer, diabetes, osteoporosis...is gluten worth that? it doesn't matter if you put a pinch of wheat starch in what you had....would you put a pinch of rat poison in? Well gluten is just as bad for you. Eat to live don't live to eat.

You find brands you can have, and you will get used to it and you will find it to be normal for you when you learn about it more.

Print out the safe and forbidden lists on here if you haven't

https://www.celiac.com/st_main.html?p_catid=12

And on this site you can find out about brands that won't hide anything, good gluten free brands, etc. This is a great site with wonderful people.

Guest nini

I like the rat poison analogy. Just keep in mind that gluten is poison to your body and you are less likely to be tempted to cheat.

Every time I drive by Krispy Kreme donuts I get very depressed, but I keep saying to myself over and over "gluten is poison, gluten is poison, gluten is poison" and I'm able to keep driving right on past. I once got into the drive thru trying to convince myself that they were so processed that there couldn't possibly be any protein left in them!!!! :blink::blink: Fortunately I came to my senses before actually pulling up and ordering any! :rolleyes:

we all make occasional mistakes where we accidentally get glutened, but it's not worth it to risk being glutened with even a small amount if you can help it. If you know it has even the tiniest bit of gluten in it, just remind yourself it is poison. Works for me!

pmrowley Newbie
Well, um, no. I have been mostly gluten-free since Dec. 04, and last night I ended up with lower GI problems last night. Today I suddenly and briefly got all red and itchy and hot on my hands, my elbows, my face, my feet, and the backs of my legs. :blink:

Well, there's no doubt that I need to not be eating that stuff. But it's also kind of depressing. I guess it is normal to get down when it's hitting home that this is for real, for the rest of your life.

I know, it's hard, but you're going to feel better afterward. Take that meal as your wake-up call. Time to stop being "mostly gluten-free," particularly with the proof of the swab diagnosis. You need to go 100% gluten-free from now on, with no cheating, no breaks, no temptations. Go to a large health food store, and start shopping! :D

One thing to keep in mind, it DOES get easier with time! Now we just need a Senator with Celiac, to really get this condition out into the open!

Cheers,

-Pat

tarnalberry Community Regular

no gluten really does mean NO gluten, not even a little. it can take some time to get used to it, but you will eventually. there's plenty of gluten-free broth available, and gluten-free options for most things, so search those out so this won't happen again.

westiepaws Apprentice

Hey, that is a really good way to put it into perspective. Thanks, you two!!! I know that one reason I'm struggling because it's not just gluten, it's soy and cow's milk, too. Most gluten-free breads aren't even doable for me because the ones at my Whole Foods/Harry's usually have some soy or dairy in them at my grocery store.

Tonight I will put signs that say gluten, soy and cow's milk are poison in my house and my car, at my desk and on my fridge. And I am going to explore some of these links where you buy by mail. That must help loads, because if I don't go into the processed/prepared food sections of the store -- which I usually avoid anyway -- I can't be tempted.

Thanks!!

tarnalberry Community Regular

westie - check out the Gluten-free Casein-free yahoo groups as well. they're mostly for parents of autistic kids, but they have a number of resources you may find helpful. I found giving up milk to be much harder than giving up gluten, and limiting soy to make giving up milk that much harder (I don't have soy often any more), and it did change the types of things I eat (no more yogurt - I make my own foods, but have things I'd rather make before a nut-milk based yogurt). That's not bad, however, it's just different. (Important mantra: different is not bad! :-) ) After a few months, I got used to it. Yeah, I still miss some of the old stuff, but it's better than being sick!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest nini

Westie, Life Grocery in Marietta has a large selection of gluten-free and CF foods as well as soy free and even raw.... you may find nirvana there!

westiepaws Apprentice

Oh cool! I looked that up and it is only 30 minutes from here so I will check it out. Also just found some gluten-, soy- and dairy-free chocolate chips, as well as the same gluten-free/sf/df boullion in the gluten-free mall, so I ordered those to experiment with at home.

If I can find a) substitutes for the basics (I've got the dry ingredients down pat, it's the other stuff I'm struggling with), and B) some way to eat and enjoy chocolate with no gluten or dairy involved -- that will be a big morale booster!

tarnalberry Community Regular

Tropical Source makes Gluten-free Casein-free chocolate. (It is made with soy-lecithin, though.)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Churley replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    3. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    4. - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,347
    • Most Online (within 30 mins)
      7,748

    Carla Mort
    Newest Member
    Carla Mort
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
    • asaT
      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.