Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is Gluten Intolerance A Synrome?


lcarter

Recommended Posts

lcarter Contributor

Is what we have really "Gluten Intolerance Syndrome"? When looking at the definition of the medical term "syndrome" it sure seems a perfect fit. One person may have the villi blunting, another may not, someone else may have Dermatitis Herpetiformis (DH), some have neurological issues, anemia, etc. There is a whole range of symptoms possibilities and associated diseases that frequently accompany it ...but in the end we all have gluten intolerance in common.

Here are some definitions:

[Open Original Shared Link ] "syn


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RiceGuy Collaborator

It has been my understanding, that the term "syndrome" is used in the medical field when the cause of the condition is not known. If that is the case, then neither gluten intolerance, nor any other intolerance should be characterized as a syndrome.

There was a thread a while ago discussing whether Celiac might one day be referred to as a trait instead of a disease. I'd be agreeable to that. After all, a peanut allergy is not referred to as a disease, nor it lactose intolerance, just to name two.

There are some people who aren't effected by poison ivy. Does that make the rest of us ivy intolerant? I guess what is considered "normal" is actually what's usual. Given the range of health problems Celiac and gluten intolerance can cause, it would not surprise me if those who are not effected by it are or will be in the minority. That would make us normal :P

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,310
    • Most Online (within 30 mins)
      7,748

    Scatterbrain
    Newest Member
    Scatterbrain
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • oyea
      I was not diagnosed with celiac disease, but am gluten-intolerant. I have been gluten free for almost 10 years. In April of this year (2025), I got a steroid shot. I have been able to eat sourdough bread before with no problems. After the steroid shot, I developed gluten-neuropathy, and I could no longer eat sourdough bread, and now the neuropathy returns with small amounts of gluten.  I also get POTS (Postural Orthostatic Tachycardia Syndrome) when I eat gluten. My heart beats so fast in the middle of the night I can't sleep. I'm usually up for hours. 
    • barb simkin
      Anyone bothered  by chocolate and alcohol.  Found I cant drink  alcohol or eat chocolate  Anyone else
    • Jmartes71
      This is my current exhausting battle with the medical field. As Ive mentioned in past I was diagnosed in 1994 by colonoscopy and endoscopy and was told i was celiac and to stay away from wheat and Ill be just fine.NOPE not at all in fact im worse thanks to being disregarded and my new word that was given that fits perfectly medically gaslight for over 30 years.I was not informed by anyone about the condition other than its a food allergy. Long story short if it wasn't for this website.I would be so much worse. I have been glutenfree since 1994 and was diagnosed with many other foods in 2007. I have stayed away from those items, except dairy sometimes I'll cheat when I know I'll be home a few days.My work history is horrible thanks to my digestive issues. I had my past primary for 25 years and everything im going through, he danced around celiac disease. My last day of employment was March 08, 2023 I was a bus driver and took pride in that.I get sick easily and when covid hit me and I stopped taking tramadel to push to give my bloated body a break, I haven't " bounced " back.Though not that well before but worse now.I applied for disability because yet again I was fired solely on health, which by the way seems to be legal because no lawyer wants to help.I was denied and my primary stated let me fluff it up a bit.FLUFF IT UP A BIT?He has been my doctor for 25 years! All that Im going through was basically ignored and not put together. I switched primary doctor and seeing new gi and its EXTREMELY EXHAUSTING because they are staying all my test came back clean, good, its normal. Except THANKYOU LORD JESUS HLA DQ2 is positive that Itty bitty tiny little test of positive FINALLY VALIDATION RIGHT.No, Im still struggling and fighting its not fair
    • Joel K
      Since medical insurance is not affected directly by celiac disease on an ongoing basis (i.e. medication, medical devices, daily monitoring, home care nursing, etc), I rather doubt anyone would be denied a policy for having it as a pre-existing condition. I’ve certainly never been and I have two pre-existing conditions that are managed with diet alone and both are long-well-known by my doctors and via medical testing and procedures. Insurance is all about risk management, not health. 
    • Joel K
×
×
  • Create New...