In the process of being diagnosed...

[JodiC 0]

Okay, so I have been on a challenge for about a year and nothing. No symptoms, no D, no cramps, no pain, no weight loss, no irritability, negative blood tests and biopsies, (the original were positive) etc etc etc. What gives? I was gluten free for around 3 years before this and was not getting better so dr recommended a challenge and to come in if there were any symptoms like before (pathologist didn't agree it was celiac for sure). I have been feeling okay and don't have any of the symptoms as before? Dr is not sure either. Could the original blood tests have been a false positive (all others were always negative including the biopsies). All family is testing negative also (including my children). Doesn't at least one of your parents have to have it? I'm so tired of thinking about it and second guessing all the time. Just want to get on with my life and never think about food again. Shouldn't there be some kind of symptoms if it was truly celiac in the first place?

[The Fluffy Assassin 1]

Okay, so I have been on a challenge for about a year and nothing. No symptoms, no D, no cramps, no pain, no weight loss, no irritability, negative blood tests and biopsies, (the original were positive) etc etc etc. What gives? I was gluten free for around 3 years before this and was not getting better so dr recommended a challenge and to come in if there were any symptoms like before (pathologist didn't agree it was celiac for sure). I have been feeling okay and don't have any of the symptoms as before? Dr is not sure either. Could the original blood tests have been a false positive (all others were always negative including the biopsies). All family is testing negative also (including my children). Doesn't at least one of your parents have to have it? I'm so tired of thinking about it and second guessing all the time. Just want to get on with my life and never think about food again. Shouldn't there be some kind of symptoms if it was truly celiac in the first place?

If I'm reading this correctly, 4 years ago you were suffering from symptoms that might be from celiac disease, you were tested, and were diagnosed with celiac disease, though your pathologist was unsure. So you went gluten-free for three years, but the symptoms didn't improve. So you started a gluten challenge and... you have no symptoms? They didn't get worse? They got better? Sorry, I'm not following. Did you never have symptoms in the first place? (What does "any of the symptoms as before" mean?)

I can't answer much, because I don't understand what you're saying, but there are certainly silent celiacs who have no gastrointestinal symptoms at all. If you're taking multivitamins, you could be more or less covering up most other side effects of celiac disease. Your intestine probably can't take in B12 (assuming you're celiac), but 3 years gluten-free would probably be long enough for you to have stored up enough to carry you, possibly for a year.

As to genetics, I think if both of your parents carried the trait as a recessive gene you could wind up celiac without either of them being one, but you'll have to wait on someone with better genetic knowledge to receive a more definitive answer.

Sorry I can't answer better; hope you find an answer soon.