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Could This Be Celiac Disease ?

Bmartin

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Bmartin Newbie
Bmartin
Posted

Hey guys for over 9 years now i have been dealing with weight loss, daily nausea,weakness all over,and cant eat.A few months ago i was down to 95 pounds and im 5/7 and 28 years old.Its getting now to were i have presure in my chest.I have been going to doctors all over and they all just send me home telling me its a nerve problem or that they just cant find anything.Recently i have had chest xrays,EKG,monthly blood work,ultrasounds,urine and stool test,had a camera down my throat,barium enima,MRI of my head,and various other test.Im just tired of going to the doctors every time i get deathly ill mainly bad nausea just to be sent home.All test i have had in the last 9 years and present were all good nothing wrong at all.Ive never been checked for Celiac Disease and was wondering if my symptoms are the symptoms of Celiac Disease and if anyone else have had my symptoms.Thanks for any info.

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txplowgirl Enthusiast
txplowgirl
Posted

Hi there, I can't say for certain because i'm not a dr. But it sounds like it to me. If you will read up on the symptoms, you will definitley see.

Now, you have a choice to make.

Do you try to go gluten free first or try to get a diagnosis? That is the hard part because a lot of dr's do not believe Celiac exists and also sometimes the tests will come up negative. Once you go gluten free and your health improves and you want a dx, then you will have to go back to eating gluten. About 2 peices of bread a day for at least 6 weeks for the tests to show positive. Kind of a catch 22.

A lot of people go gluten free and to say to heck with the tests because once you go gluten free and realize that was what was wrong all along you will not want to make yourself sick again ever.

Just my opinion. But if I were you, I would go gluten free immediately.

Northland Lady Rookie
Northland Lady
Posted
Hi there, I can't say for certain because i'm not a dr. But it sounds like it to me. If you will read up on the symptoms, you will definitley see.

Now, you have a choice to make.

Do you try to go gluten free first or try to get a diagnosis? That is the hard part because a lot of dr's do not believe Celiac exists and also sometimes the tests will come up negative. Once you go gluten free and your health improves and you want a dx, then you will have to go back to eating gluten. About 2 peices of bread a day for at least 6 weeks for the tests to show positive. Kind of a catch 22.

A lot of people go gluten free and to say to heck with the tests because once you go gluten free and realize that was what was wrong all along you will not want to make yourself sick again ever.

Just my opinion. But if I were you, I would go gluten free immediately.

Yes If i was you i would go gluten free immediately too. just a feeling but your health sounds really bad. Gluten robs your body of vital nutrients.

Celiac is diagnosed first by a blood test, then you go for a biopsy to see if you have damage to your inners.

If i was you I would go to the Dr today and get the celiac blood test done. Once you have had the test then go gluten free. At least you will know if you have the markers, and they may get you for a biopsy in time to see if you have damage to your inners, so that way you may be both diagnosis and effects of the diet. It will take you a while to get the diet right too. :-)

A lot of us dont get a diagnosis but know for 100% certain gluten is bad for us, celiac or not. I felt better within 4 days of the diet, i was diagnosed with arthritis in my thumbs disappeared within the same time of gluten free.

Good luck

nu-to-no-glu Apprentice
nu-to-no-glu
Posted

I understand your frustration of going from dr to dr only to get no relief or diagnosis. Many people here have the same experience. There is a thread in the "doctors" section of these boards called "recommend a dr in your state" that you may be able to find a dr familiar with celiac. I went to about 12 different GI specialists, and most disregarded my joint and muscle pain and told me IBS. I do think it's good to at least attempt, as frustrating as it is (and believe me I left many appointments in tears) to try to get a blood test. Mine was negative, too, but if you find a good dr., they will be able to assess all of your symptoms and help you get some relief. Many have vitamin deficiencies that need to be treated, and good dr.can help with that (this can cause pain and numbness in joints and muscles). I would look around on here and print out some info to take with you. I think we all know how we feel and need to be persistent in guiding a dr to accurate testing. Best of luck, hope you feel better soon!

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