Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hello From Kentucky


TEaglefeather

Recommended Posts

TEaglefeather Rookie

Is there any meetings in Kentucky for Celiac people ?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



missy'smom Collaborator

Welcome to the forum! :)

There are support groups in Louisville and Lexington.

Open Original Shared Link

Open Original Shared Link

Rosewied Rookie

There is a group that meets in Louisville at Baptist Hospital East. I haven't been. I was recently diagnosed myself. They have a message board you can check out and newsletters if you join. There's an annual fee. They do a pitch in of gluten free food at each meeting as well. Hope this helps I don't know what part of Kentucky you're in.

Meagan

heatherjane Contributor

I've been going to the one in Louisville at Baptist East and it's a great group with a good number of people. We meet once a month on a Thursday, 7pm. Every week a different topic is presented, and there's always food. :) We just had a picinic in August and will have a Christmas get-together over the holidays.

If you're nearby, hope you can make it!

TEaglefeather Rookie
I've been going to the one in Louisville at Baptist East and it's a great group with a good number of people. We meet once a month on a Thursday, 7pm. Every week a different topic is presented, and there's always food. :) We just had a picinic in August and will have a Christmas get-together over the holidays.

If you're nearby, hope you can make it!

WOW, we live in Pikeville which is abut 3 to 4 hours away from Louisville, I feel sure he would take that ride once a month how do we go about signing up for registering for meetings? And where exactly is Baptist East?

Thank You

missy'smom Collaborator

No need to sign up. Just show up. They'll announce at each meeting about new members joining. The dues(it's an offical CSA-Celiac Spru Association- chapter) are not much and go to cover so many things, speakers, events etc. You'll get a new member packet with lots of info. from the local as well as national sources. Lately, the topics of the upcoming month's meeting have been posted on the site linked to above. There are folks who come in from outlying areas-Indianna etc. too.

TEaglefeather Rookie
No need to sign up. Just show up. They'll announce at each meeting about new members joining. The dues(it's an offical CSA-Celiac Spru Association- chapter) are not much and go to cover so many things, speakers, events etc. You'll get a new member packet with lots of info. from the local as well as national sources. Lately, the topics of the upcoming month's meeting have been posted on the site linked to above. There are folks who come in from outlying areas-Indianna etc. too.

When is the next meeting and could you tell me where Baptist East is ?

Thank you


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



missy'smom Collaborator

I got to this page by clicking the pink glutenfreelouisville.org at the top left corner of the page. Looks like we just missed the Sept. meeting so next is November 12th Thursday at 7 p.m. Holiday cookie exchange is on the agenda.

Open Original Shared Link

I wish I could give good directions. I'm not familiar enough with the area and very poor at directions in general. It's just off Breckenridge. Actually not far from Norton. They're sort of back door neighbors with one of the major highways between them. Kresge Way is the street I think. If you park in the parking garage, there is a short covered walkway from the garage to the hospital on the 3rd floor? I think. The education center is the one to ask for. There are often other seminars and groups going on. The room is fairly consistant but it's a good idea to check the site as it sometimes changes. Hope that helps. Sorry I can't be a better help. You are always welcome to use the e-mail links or phone the officers or the gentleman who runs their site. They'd be more than happy to help.

missy'smom Collaborator

Wait a minute, I just realized that unless I missed something, they didn't have a meeting for Oct. on the agenda. There most likely will be one. It should be 2nd Thursday in Oct. Maybe they haven't ironed out the schedule/agenda yet. I would recommend that you keep checking until time nears and if it doesn't show up, certainly get in touch with someone through the site.

missy'smom Collaborator

Hope this helps with the directions.

Open Original Shared Link

heatherjane Contributor

The next meeting in Louisville is scheduled for Thursday, October 8th, at 7pm. The topic is holiday meal planning. :)

If you're coming into Louisville via I-64 West, take the Watterson Expressway (I-264 West), and take the Breckenridge Ln NORTH exit. After you exit off of 264, you will eventually cross over Dutchmans Lane. (You will see a McDonalds, Wendy's, OCharleys on the left, Office Depot on the right.) Go through one more light, and the next light is Kresge Way. You will turn right at this light to enter the hospital campus. Follow the signs to the Main Entrance (C building). There is free parking out front.

We usually meet on the 2nd Floor in the Education wing, but you may want to check the glutenfreelouisville website before you leave just in case our room has changed. (We are always in the same building.) The Information Desk when you come in the Main Entrance can also direct you where to go.

Open Original Shared Link

Oh, and you don't have to sign up or anything, just show up. They'll just take your contact info when you walk in the door. A fee is only required if you would like to join the group, which is $20 for an entire year, but it's free just to come to the meetings.

I know it's a long trek for you, but if you can make it, we'd love to have you!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,705
    • Most Online (within 30 mins)
      7,748

    Lyana Chahine
    Newest Member
    Lyana Chahine
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Gigi2025
      Hi Christiana, Many thanks for your response.  Interestingly, I too cannot eat wheat in France without feeling effects (much less than in the US, but won't indulge nonetheless).  I also understand children are screened for celiac in Italy prior to starting their education. Wise idea as it seems my grandson has the beginning symptoms (several celiacs in his dad's family), but parents continue to think he's just being difficult.  Argh.  There's a test I took that diagnosed gluten sensitivity in 2014 via Entero Labs, and am planning on having done again.  Truth be told, I'm hoping it's the bromine/additives/preservatives as I miss breads and pastas terribly when home here in the states!  Be well and here's to our guts healing ❤️
    • Wends
      Lol that’s so true! Hope you get clarity, it’s tough when there’s doubt. There’s so much known about celiac disease with all the scientific research that’s been done so far yet practically and clinically there’s also so much unknown, still. Out of curiosity what’s her dairy consumption like? Even compared to early years to now? Has that changed? Calcium is dependent in the mechanism of antigen presenting cells in the gut. High calcium foods with gluten grains can initiate inflammation greater.  This is why breakfast cereals and milk combo long term can be a ticking time bomb for genetically susceptible celiacs (not a scientific statement by any means but my current personal opinion based on reasoning at present). Milk and wheat are the top culprits for food sensitivity. Especially in childhood. There are also patient cases of antibodies normalising in celiac children who had milk protein intolerance/ delayed type allergy. Some asymptomatic. There were a couple of cases of suspected celiacs that turned out to have milk protein intolerance that normalised antibodies on a gluten containing diet. Then there were others that only normalised antibodies once gluten and milk was eliminated. Milk kept the antibodies positive. Celiac disease is complicated to say the least.
    • deanna1ynne
      And thank you for your encouragement. I am glad that her body is doing a good job fighting it. I also just want clarity for her moving forwards. She was only 6 for the last round of testing and she's 10 now, so I'm also hoping that makes a difference. It was weird during her last round of testing though, because right before her biopsy, we'd upped her gluten intake by giving her biscuits made from straight up vital wheat gluten, and her labs actually normalized slightly (lower ttg and her ema went negative). Bodies just do weird things sometimes! lol
    • deanna1ynne
      The first negative biopsy in 2021 just said "no pathological change" for all the samples, and the second one in 2022 said "Duodenal mucosa with mild reactive change (focal foveolar metaplasia) and preserved villous architecture." So I think Marsh score 0 in both cases, though it's not actually written in the pathology reports. I'm really hoping to get a clear positive result this time, just for her sake.  
    • Wends
      Hopefully the biopsy gives a conclusive and correct diagnosis for your daughter. Im in the UK and have been in the situation a few years ago of trying to rule celiac in or out after inconclusive results. Many symptoms pointing to it including the classic symptoms and weight loss and folate and iron deficiency. You have to play a waiting game. I also had the label of IBS and likely food allergy. Genetic test showed low risk for celiac but not no risk. It sounds like the Gastroenterologist is on it and hopefully will diagnose what it is correctly. Food hypersensitivity (allergy) can also cause similar symptoms and inflammation as well as mimicking IBS. Milk / dairy and wheat (cereal grains) being the biggest culprits. The “oesophagitis” and “gastritis” you mentioned can be caused by another gastrointestinal disorder called “eosinophilic gastrointestinal disorders”. These are named depending on which part of the gastrointestinal tract is affected. For example eosinophilic oesophagitis, eosinophilic gastritis, eosinophilic gastroenteritis, and more rare eosinophilic colitis. They are antigen (allergen) driven. When the blood test measuring anti-ttg antibodies is positive in absence of a positive ema test - which is more specific to celiac, this can also suggest food hypersensitivity (allergy). Usually delayed type allergy similar to celiac but not autoimmune if that makes sense. In this case the ttg antibodies are transient. Which happens. I’ve first hand experience. For info, evidence of villous atrophy too can be caused by food hypersensitivity. Not just by celiac disease. In Egid disorders the six food elimination diet, under a dietitian and gastroenterologist care, is the dietary protocol to figure out the culprit or culprits. Sometimes only two food elimination diet is used at first. The number one culprit is milk protein / dairy. Followed by wheat, eggs, soy, fish and seafood, and nuts. Most are only reactive to one food group or two. Most are only reactive to milk. Hope this is a helpful reply.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.