Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Acid Reflux

Mitzi

By Mitzi
in Coping with Celiac Disease

Recommended Posts

Mitzi Rookie
Mitzi
Posted

Hi everyone:

I'm back with another question. My 15 year old daughter is the celiac and we're new at this. About one month gluten free. It was her stomach issues that caused me to schedule an appointment with the doctor. She was treated for acid reflux for 6 months before the endoscopy.

Right now she's taking 80 m of protonix (sp??) and 150 m of zantac. She has been on this since before the biopsy and continues to need them. She describes the feeling as "hot and bubbly". Food does help settle some of this and at times her stomach feels "fine". Although she's tolerated so much for so long I'm not sure she knows what a stomach without issues feels like.

I would really like to get her off this medication at some point. I'm wondering if anyone else has gone through this? The other weird thing is that typically acid reflux is made worse by eating spicy foods or acidic things like spaghetti sauce -- Those do not make it any worse. Does this mean its something else?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


momxyz Contributor
momxyz
Posted

I was diagnosed with acid reflux a few years ago. I was having these "pings" in my chest that scared me. I had an EKG, full stress test - everything in that direction was fine.

I have never had the "hot" feelings you describe but I had been having occasions where food just didn't seem to want to go down my esophagus. Not painful but very uncomfortable and I couldn't eat anything more for several hours. Sometimes this was accompanied by regurgitating mucous (sorry if TMI). This was not caused by spicy foods in my case either! My doctor said acid reflux was the most likely cause of everything I was experiencing.

I was treated with Protonix for several months. My doctor said I could go off it when I was comfortable, and I did. The scary sensations in my chest never recurred, but every once in a while I have that feeling of food getting stuck and regurgitation.. But its so infrequent now that both my doctor and I agree I don't need to be on the meds continuously.

curlyfries Contributor
curlyfries
Posted

I was on Prilosec.....it was a prescription then....for years. I was diagnosed with acid reflux when I had a constant feeling of something stuck in my throat. Also had horrible heartburn.

I am now completely free of these symptoms. Been off medication for a couple of years. :)

Darn210 Enthusiast
Darn210
Posted

Acid Reflux with regurgitation was my daughter's main symptom. She was put on Prevacid which helped but didn't completely eliminate her problems. That's when she was tested for Celiac (among other things). She stayed on the medication for a few months after going gluten free. After coming off of the meds, she would occassionaly have symptoms (although not as bad) which we treated with the Pepto Bismal antacid tablets for kids. It was worse when she was most physically active (PE, soccer games, etc) We even went back on prevacid for awhile (along with another medication for gastroparesis). We were trying to figure out if she was having problems with another food and took her off of everything so that we could see how much the medication was masking. Turned out the occurances remained about the same even though she was no longer on the meds. After about 8 months (and soccer was over at this point), it finally started getting farther and farther between "spells" Symptoms were finally gone after about 10 months. I think it just took that long for her system to return to normal. Running seemed to excacerbate the problem as did ketchup. She figured the ketchup thing out herself and cut way back on her intake.

When I myself had acid reflux issues . . . and I let it get pretty bad and wasn't even using any over the counter stuff . . . the doc told me that since the digestive system was all inflamed (paraphrasing here), that it couldn't even handle the amount of acid a healthy system could. I had to lower my acid levels enough to heal and then could slowly wean myself off the meds. I know it took me twice as long on the meds as he estimated it would.

My hubby is on some big time acid reflux meds and refuses to change his diet to come off the meds. He's a big boy and can make his own decisions. I did get him to agree to be tested for Celiac but it came back negative.

chiroptera Apprentice
chiroptera
Posted

I would definitely suggest she do a food diary. My daughter also has intolerances to casein (the protein in milk) and eggs as well as gluten. So unless she is off of all three her gerd continues. When she was just gluten free it was better, but she still suffered. Gluten could really be part, but not all of the problem.

Mitzi Rookie
Mitzi
Posted
  • Author
Acid Reflux with regurgitation was my daughter's main symptom. She was put on Prevacid which helped but didn't completely eliminate her problems. That's when she was tested for Celiac (among other things). She stayed on the medication for a few months after going gluten free. After coming off of the meds, she would occassionaly have symptoms (although not as bad) which we treated with the Pepto Bismal antacid tablets for kids. It was worse when she was most physically active (PE, soccer games, etc) We even went back on prevacid for awhile (along with another medication for gastroparesis). We were trying to figure out if she was having problems with another food and took her off of everything so that we could see how much the medication was masking. Turned out the occurances remained about the same even though she was no longer on the meds. After about 8 months (and soccer was over at this point), it finally started getting farther and farther between "spells" Symptoms were finally gone after about 10 months. I think it just took that long for her system to return to normal. Running seemed to excacerbate the problem as did ketchup. She figured the ketchup thing out herself and cut way back on her intake.

When I myself had acid reflux issues . . . and I let it get pretty bad and wasn't even using any over the counter stuff . . . the doc told me that since the digestive system was all inflamed (paraphrasing here), that it couldn't even handle the amount of acid a healthy system could. I had to lower my acid levels enough to heal and then could slowly wean myself off the meds. I know it took me twice as long on the meds as he estimated it would.

My hubby is on some big time acid reflux meds and refuses to change his diet to come off the meds. He's a big boy and can make his own decisions. I did get him to agree to be tested for Celiac but it came back negative.

How old is your daughter? It sounds very much like mine who is 15. Her sport is Volleyball which also can but doesn't always makes it worse. When they do running and or some other "conditioning" it gets worse every time. I'm glad to know it will get better. Too bad these sports end up being almost all year long. I know volley ball is in full swing right now for school and then club ball starts. Yipee!

I do have to say that hearing this has eased my mind and I'll stop wanting to see results too fast. I think the food diary suggestion will be worth the few minutes it takes to log also.

Darn210 Enthusiast
Darn210
Posted
How old is your daughter? It sounds very much like mine who is 15. Her sport is Volleyball which also can but doesn't always makes it worse. When they do running and or some other "conditioning" it gets worse every time. I'm glad to know it will get better. Too bad these sports end up being almost all year long. I know volley ball is in full swing right now for school and then club ball starts. Yipee!

I do have to say that hearing this has eased my mind and I'll stop wanting to see results too fast. I think the food diary suggestion will be worth the few minutes it takes to log also.

My daughter was 6 at the age of diagnosis. It did take a lot longer to recover than I expected. About 6 months into it she had a major glutening. I don't know how much that added to our recovery time.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


chiroptera Apprentice
chiroptera
Posted

My daughters (twins) are nine. Looking back they had gluten intolerant symptoms for years but about two years ago many problems, esp. the acid reflux with one of them and severe stomach pain with the other started.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,177
    • Most Online (within 30 mins)
      7,748
    Cassiedawn16
    Newest Member
    Cassiedawn16
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Heatherisle
      Blood results

      By Heatherisle · Posted

      Daughter has started gluten free diet this week as per gastroenterologists suggestion. However says she feels more tired and like she’s been hit by a train. I suggested it could be the change to gluten free or just stress from the endoscopy last week catching up with her. Just wondering if feeling more tired is a normal reaction at this stage. I suppose it’s possible some gluten might have been present without realising. Have tried to reassure her it’s not going to resolve symptoms overnight
    • DAR girl
      Celiac and allergic to common subs and adds in prepared foods

      By DAR girl · Posted

      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      Disregarded

      By Scott Adams · Posted

      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By Oldturdle · Posted

      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By plumbago · Posted

      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
×
×
  • Create New...