Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Feeling Overwhelmed.


nu-to-no-glu

Recommended Posts

nu-to-no-glu Apprentice

Today I've been feeling way overwhelmed with everything. I've been gluten free for almost 4 weeks and really feeling the best I have in quite sometime. After searching for 28 years, it initially has been such a relief to finally have a diagnosis, I think I've just almost been on a high! But for some reason, today I'm just iritable and feel like I'm crawling out of my skin! I physically don't feel bad. I did get some vitamin level results back and it states my B's are way way low and C as well. Maybe that was just a reality check and I've been in a little denial, I'm so used to going to drs and having them tell me that I have IBS, nothing wrong, this almost seems surreal? I guess I've been so happy to find relief, I forgot to actually think about the impact of this disease. It doesn't help that others are so non-chalant about it, not that I expect a parade :), but I feel annoyed that people don't get it. Also, researchibg low B vitamins made me a little upset and angry bc of all of the havoc wreaked on my body after so much time. Sorry to vent, I'm glad I found this site for support...just having a bad day. I'm sure you all relate. Trying not to take it out on others and needed a release :) Thanks! Any tips on coping and whether these feelings are normal would be great.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Yes your feelings are normal. ((((((((((((((hugs)))))))))))))

If you haven't already you should add some sublingual B12 to your vitamins. You may not be able to absorb and utilize it yet through the ones you swallow.

Welda Johnson Newbie

Hi, I'm so glad that you are finally on the right track for getting healthy. I say, "Halleleujah!" everytime someone discovers what the reasons for their problems have been. I want to encourage you that you WILL continue to feel better and better as time goes by. Learning what is going on with your system, and discovering that it is gluten intolerance and possible intolerance to other foods is the beginning step on your journey to renewal. I'm 64 and have had symptoms since age 8, so, of course, I've become ecstatic at knowing what was causing my problems. In the beginning it was difficult to change my ways of eating, and I would cheat when I felt better, but now that I am aware of which foods to eat, which to avoid, and what the consequences can be, I am ALWAYS diligent about eating right . I think that other people have such a hard time with learning about our diet because they can see the self-discipline it takes to stick to this diet. With time, with sharing, and with caring, I hope that we can help others as we've been helped. Welcome to the site, and best wishes. Welda

nu-to-no-glu Apprentice

Thank you both! Ravenwood, you've been especially helpful to me :) So thank you! I'm already feeling better, I took a little me time this afternoon, so that helped. I think my husband gets annoyed listening to me bc all I talk about is gluten, neuropathy,etc.(But it's super annoying when your arm goes numb all the time, ya gotta tell someone) People truly don't realize there's so much more that goes along with all of this. It's nice to vent, thanks!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    2. - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D

    3. - Butch68 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    4. - trents replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Taking Probiotics but Still Getting Sick After Gluten – Advice?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,212
    • Most Online (within 30 mins)
      7,748

    Melissa McGowan
    Newest Member
    Melissa McGowan
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.