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Confusing Blood Results For Son

cjstearns

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cjstearns Newbie
cjstearns
Posted

Hello! Long story short, son's TTG IA 29.9 discovered by pediatrician. See GI at Children's Hospital about 2 months later & same value jumps to 40. Endoscopy Negative( heard it can be patchy so bx could miss it) A couple of months later level now 43.

Son has NO obvious symptoms?? Good height & weight, no diarrhea. Is gene positive we found out.

Wait for symptoms to start or start a gluten free diet?? Doctors even seem stumped!

Have a great day!!

Jen

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happygirl Collaborator
happygirl
Posted

What was the reasoning that doctors ran the test in the first place?

Have they ran the other tests in the Celiac panel?

Was your son eating gluten at the time of the biopsy?

How many biopsies were taken, and what did the report say?

cjstearns Newbie
cjstearns
Posted
  • Author
What was the reasoning that doctors ran the test in the first place?

Have they ran the other tests in the Celiac panel?

Was your son eating gluten at the time of the biopsy?

How many biopsies were taken, and what did the report say?

He had abdominal pain & our pediatrician's husband is a pediatric GI so she is tuned into the celiac thing.

I was told the gliaden can be false positive. The TTG IA is the main one (?)

Definately was eating gluten & still is.

I think he is working his way towards symptoms with an escalating TTG IA. Change diet now???

Thanks!

happygirl Collaborator
happygirl
Posted

Based on the abdominal pain, he did have symptoms at one point.

Celiac can be "silent" with "no" symptoms, and there is documented literature that indicates that "silent" celiac may be more common than celiac with many symptoms, but the result is still the same - remaining on the gluten free diet.

If you aren't aware of how many biopsies and what the report says, it may be worth it to get a copy of the results.

How old is your child?

cjstearns Newbie
cjstearns
Posted
  • Author
Based on the abdominal pain, he did have symptoms at one point.

Celiac can be "silent" with "no" symptoms, and there is documented literature that indicates that "silent" celiac may be more common than celiac with many symptoms, but the result is still the same - remaining on the gluten free diet.

If you aren't aware of how many biopsies and what the report says, it may be worth it to get a copy of the results.

How old is your child?

Hi! Thanks for the reply. He is 7 1/2. A tall seemingly healthy kid. Autoimmune seems to run in the family. My brother has Crohn's disease & I have some psoriasis. I just hate to switch his diet until I'm 100% sure.

Thanks!

Jen

happygirl Collaborator
happygirl
Posted

You may want to be tested for Celiac, as well. And, still get records from his biopsy.

If you aren't sure what to do, you may want to see a Celiac specialist that has more experience with situations like this. As great as your local doctor may be, most are not that familiar in what to do with cases like your son. What region of the country are you in?

cjstearns Newbie
cjstearns
Posted
  • Author
You may want to be tested for Celiac, as well. And, still get records from his biopsy.

If you aren't sure what to do, you may want to see a Celiac specialist that has more experience with situations like this. As great as your local doctor may be, most are not that familiar in what to do with cases like your son. What region of the country are you in?

We live near Philadelphia & use CHOP. I heard there are some good docs in NY. I'm open to any suggestions!!!!

Thank you so much!

Have a great day!

Jen

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