Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Are Wheat Patch Tests Accurate ?

pat0301

Recommended Posts

pat0301 Rookie
pat0301
Posted

My wheat patch test came back positive along with oat. Doctor said to limit wheat but that i can still have it.Are these tests accurate.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

For allergies yes, for intolerances no. Allergies are a histamine reaction and intolerances are a antibody reaction. If the patch test produced blisters you may have DH. If the area is very itchy you may want to consider going to a derm and having them biopsy the area next to the lesion looking for DH, the skin form of celiac.

pat0301 Rookie
pat0301
Posted
  • Author

Is my doctor right that i can still eat wheat even with a allergy to it? We tested because i always feel bloated and constipated. my scratch tests were negative to oat, wheat rye, barley now he wants to do all patch tests to these because of my positive reactions. I am dq7,dq7 Thank-you for your repley.

ravenwoodglass Mentor
ravenwoodglass
Posted

I would stay away from it and from gluten. Are they telling you that you are not celiac because your not DQ2 or DQ8? Is that why they are allergy testing? Not all celiacs have one of those two genes. There are those of us that are not 2 or 8 and are still celiac. Even if you are classed as 'gluten intolerant' you really need to be just as strict with the gluten-free diet.

pat0301 Rookie
pat0301
Posted
  • Author

Thanks again for your reply. This all started with testing my 10 year old son he is 2 years behind in growth and very thin below 5th percentile. All his celiac blood work is negative but he also has a very low iga 78 norm is 70-300. His gi doc wants to do a biopsy and i really don't so i figure if he is allergic to wheat and can't eat it then we will go with that.His entro lab results were 0202, 0301 and mine dq7, dq7 they say we are both gluten sensitive. My son just recently tested positive to soy allergy, weeds and trees. We will be patch testing him next week. I only had wheat and oat tested and both mine were positive. Any advice you can give would be great about next steps to take.

ravenwoodglass Mentor
ravenwoodglass
Posted
Thanks again for your reply. This all started with testing my 10 year old son he is 2 years behind in growth and very thin below 5th percentile. All his celiac blood work is negative but he also has a very low iga 78 norm is 70-300. His gi doc wants to do a biopsy and i really don't so i figure if he is allergic to wheat and can't eat it then we will go with that.His entro lab results were 0202, 0301 and mine dq7, dq7 they say we are both gluten sensitive. My son just recently tested positive to soy allergy, weeds and trees. We will be patch testing him next week. I only had wheat and oat tested and both mine were positive. Any advice you can give would be great about next steps to take.

Allergy testing will not diagnose celiac because it is not an allergy. Not that it does not have value for true allergies it just won't give you any answers where gluten is concerned. If you don't want to biopsy then the best thing you can do is just to go gluten free for a month or preferably two to see if it makes a difference health wise. With the low IGA there is a good chance that your son's test would have been a false negative even if he is celiac. My son had severe growth stunting from celiac and I just wish I had known when he was ten what I do now. Please give the diet a good strict try for you both. Your bodies can sometimes give the answer that testing cannot. Going on the diet will not effect testing for a wheat allergy, it only effects testing for celiac or gluten intolerance.

kemahaney Newbie
kemahaney
Posted
Allergy testing will not diagnose celiac because it is not an allergy. Not that it does not have value for true allergies it just won't give you any answers where gluten is concerned. If you don't want to biopsy then the best thing you can do is just to go gluten free for a month or preferably two to see if it makes a difference health wise. With the low IGA there is a good chance that your son's test would have been a false negative even if he is celiac. My son had severe growth stunting from celiac and I just wish I had known when he was ten what I do now. Please give the diet a good strict try for you both. Your bodies can sometimes give the answer that testing cannot. Going on the diet will not effect testing for a wheat allergy, it only effects testing for celiac or gluten intolerance.

I tested positive for wheat allergy on the scratch test. My skin was on fire and i wanted to cry becuase it hurt so bad. I did get the blood test and it came back positive also. I have been working on cutting out Gluten for the last 5 months and finally I have gotten it. It takes a lot of practice and being picky. Now if I have anything with gluten in it even trace amounts I get violently ill about 4 hours later. The next day I am bloated and have a migraine.

Since going Gluten free my stomach issues have been reduced, my headaches are almost non-existant(except when I slip).

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted
I tested positive for wheat allergy on the scratch test. My skin was on fire and i wanted to cry becuase it hurt so bad. I did get the blood test and it came back positive also. I have been working on cutting out Gluten for the last 5 months and finally I have gotten it. It takes a lot of practice and being picky. Now if I have anything with gluten in it even trace amounts I get violently ill about 4 hours later. The next day I am bloated and have a migraine.

Since going Gluten free my stomach issues have been reduced, my headaches are almost non-existant(except when I slip).

Welcome to the board, it sounds like you are both allergic and celiac at the same time. I am glad you have had such good results from the diet.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,563
    • Most Online (within 30 mins)
      7,748
    Bob Madden
    Newest Member
    Bob Madden
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      gluten-free Oatmeal

      By Scott Adams · Posted

      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      Well said, @Mari!
    • knitty kitty
      Shingles - Could It Be Related to Gluten/ Celiac

      By knitty kitty · Posted

      Hi, @Ginger38, I've had shingles in the past.  I understand how miserable you're feeling.   Not only do i have the chickenpox virus lurking about, I also have the cold sore virus that occasionally flares with a huge cold sore on my lip when stressed or exposed to gluten.  The virus lives dormant in the nerves on the left side of my face.  It causes Bell's Palsy (resulting in drooling).  The cold sore virus is also in my eye.  My eye swells up and my vision is diminished permanently whenever I have a flare, so it's of the utmost importance to keep flares away and treat them immediately if they do happen so I don't lose any more vision.   I take the amino acid supplement L-Lysine.  Lysine messes with the replication of viruses, which helps the body fight them off.   I haven't had an outbreak for several years until this year when exceptionally stressed and contaminated, it flared up again. Lysine has been shown to be beneficial in suppression of viruses like the cold sore virus (a herpetic virus), the chickenpox virus (also a herpetic virus), as well as the HIV virus, and even the Covid virus.   I also take additional Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) because Thiamine has antiviral properties as well.   For pain, a combination of Thiamine (like TTFD or Benfotiamine or Thiamine Hydrochloride), with B12 Cobalamine, and Pyridoxine B6 have been shown to have analgesic properties which relieve pain and neuropathy.    The combination of Thiamine B1, Pyridoxine B6 and Cobalamine B12 really does work to relieve pain.  I take it for back pain from crushed vertebrae in my back.  This combination also works on other pain and neuropathy.   I usually buy a supplement that combines all three and also Riboflavin B2 called EXPLUS online.  However, it's made in Japan and the price with the tariffs added makes it really expensive now.  But the combination of Thiamine B1, Pyridoxine B6 and B12 Cobalamine (and Riboflavin B2) still work even if taken separately.   I can't take Tylenol or ibuprofen because of stomach upsets.  But I can take the vitamin combination without side effects.  However, you can take the three vitamins at the same time as other pain relievers for added benefit.  The vitamins help other pain relievers work better. I hope you will try it.  Hopeful you'll feel better quickly. Interesting Reading: Thiamine, cobalamin, locally injected alone or combination for herpetic itching: a single-center randomized controlled trial https://pubmed.ncbi.nlm.nih.gov/23887347/ Mechanisms of action of vitamin B1 (thiamine), B6 (pyridoxine), and B12 (cobalamin) in pain: a narrative review https://pubmed.ncbi.nlm.nih.gov/35156556/ Analgesic and analgesia-potentiating action of B vitamins https://pubmed.ncbi.nlm.nih.gov/12799982/ A Narrative Review of Alternative Symptomatic Treatments for Herpes Simplex Virus https://pmc.ncbi.nlm.nih.gov/articles/PMC10301284/
    • Mari
      My only proof

      By Mari · Posted

      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been  what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet  official, the Health Director of our nation is in trying to change what he considers outdated and incorrect health advisories. He does not have the education, background or experience to be in the position he occupies and is not making beneficial decisions. That man suffered a terrible trauma early in his life when his father was assonated. We see now how he developed and worked himself into a powerful position.  Unless you are willing to take some advice or  are willing to use a few of the known methods of starting on a path to better health then not many of us on this Celiac Forum will be able to join you in a continuing series of complaints about medical advisors.    I am almost 90 years old. I am strictly gluten free. I use 2 herbs to help me stay as clear minded as possible. You are not wrong in complaining about medical practitioners. You might be more effective with a clearer mind, less anger and a more comfortable life if you would just try some of the suggestions offered by our fellow celiac volunteers.  
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac? Your not eating gluten so its something else.Medical caused me depression. I thought I was safe with my former pcp for 25 years considering i thought everything I went through and going through will be available when I get fired again for health. Health not write-ups my health always come back when you're better.Im not and being tossed away at no fault to my own other than shitty genes.I was denied disability because person said he didn't know how to classify me! I said Im celiac, i have ibs, hernia, sciatica, high blood pressure, in constant pain have skin and eye issues and menopause intensified everything. With that my celiac nightmare began to reprove my disregarded disease to a bunch of clowns who think they are my careteam when they said I didn't have...I feel Im still breathing so I can fight this so no body else has to deal with this nightmare. Starting over with " new care team" and waisting more time on why I think I am when diagnosed in 1994 before food eliminated from my diet. P.s everything i went through I did write to medical board, so pretty sure I will continue to have a hard time.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.