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Before My Endoscopy...


egardner

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egardner Newbie

I have just recieved a positive antibody test after years of GI problems. I am having my endoscopy and biopsy in the next few weeks(I am a nursing student and they are trying to work around my exams) The nurse said I should begin avoiding gluten and wheat, but I am afraid after what I have read in research that may affect the outcome of my biopsy. Should I eat as normal until the test to ensure I don't get false results or have to repeat the procedure? Thanks!


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KaitiUSA Enthusiast

You should be on gluten heavily before testing. Being off of gluten will give you a possibility of inaccurate results.

flagbabyds Collaborator

If you go gluten-free before your testing it will make your villi start to repair and that will mean you get a false negative, which you don't want :). Make sure to eat a lot of gluten before the test to make sure you get the result you want. Hope you feel better soon!

egardner Newbie

Thanks guys! I've been like this for so long, what's two more weeks to ensure accuracy!

Carriefaith Enthusiast

Go gluten crazy right up until the test! I mean it may be the last time you eat it. I went on a gluten binge before my biopsy!

Carriefaith Enthusiast
;) and like everyone else said, it's a good idea to stay on gluten to avoid false negative results. (If you indeed have celiac disease that is).

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    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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