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Biopsy Results


lynn-123

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lynn-123 Newbie

Everyone has been so kind to offer help, I wanted to give you an update on my biopsy results.

The biopsy showed eczema/atopic dermatitis and the immunofluorescent staining was neg for DH. HOWEVER, my dermatologist was very kind in dicussing this with me and said even though I did not test positive specifically for a gluten allergy, I may feel better leaving gluten off.

Apparently my skin is reacting to the antibodies floating around in my bloodstream from my Hashimoto's thyroiditis. (Yes, I did test positive on an antithyroid antibody test.) Apparently when the immune system is revved up, any protein ingested may appear as an invader and aggravate the eczema.

In addition to that, apparently there is a thyroid-gluten connection and I found an article tonight that I've printed for the notebook I've begun. It holds information to help me help myself. I would love to reverse my Hashimoto's but I was so very, very sick (cannot stress that enough) and my TSH had risen to 43 over a period of 10 months, I am happy to be on levothyroxine right now.

Open Original Shared Link

I hope it's okay to link that article.

In addition, in case anyone visits this, I am living proof that hypothyroidism can cause a raging, severely itchy eczema that resembles DH, and I've always had very good skin.

Thanks,

Lynn


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lynn-123 Newbie

Oh, and I will be cutting out gluten.

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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