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About To Be Diagnosed


madeyedchicken

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madeyedchicken Newbie

I'm about to maybe diagnosed with celiac's, after a year of hell. I would like to know what would be the best plan of action for if it is Celiac disease?

This time last year i went into hospital for a routine operation, and contracted a "super Bug", which decided it wanted to eat my stomach and gut. I very nearly died but i've be left in a bad way. I only weigh 7 stone, and find it difficult to find any energy.

hope you got some advise on what gluten free product taste good. :rolleyes:


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lovegrov Collaborator

You need to tell folks what country you live in. That would make a difference.

However, the best advice at first is to keep it simple -- fresh meat, fruit and vegetables are all naturally gluten-free.

richard

KaitiUSA Enthusiast

Have you had blood tests done? First get that done

After the diagnosis keep it simple as Richard said....fruits and veggies are without a doubt gluten free so stick with stuff you know is gluten free.

Get rid of anything in your house with gluten in it and get a new toaster and throw the old one out.

Some countries are different about what they consider gluten free so that info may help us out here in helping you.

tarnalberry Community Regular

Ditto all that - I highly recommend sticking with whole, naturally gluten-free foods. Produce, fresh (unmarinated and so forth) meats, rice/beans, and gluten-free dairy if you can have it.

Take a look around at the posts on here for ideas about what people eat and how people are handling the diet. It sounds scary at first, but with a little practice, it's really not bad. :-)

ianm Apprentice

I prefer simply prepared meat, veggies and fruits. I avoid fruits and veggies that are real high in starch like potatoes and bannanas or fructose like most tree fruits. I can't seem to stomach starch or sugar in great quantities. Also nuts and buckwheat (not a grain despite the name), flax seed meal, quinoa, millet are all good. It takes a while to get the hang of it but you will be glad you did.

Lesliean Apprentice

Assuming you are positive for Celiacs, and keep us posted :rolleyes: , you will learn the ropes quickly on what to watch out for and what to rely on. Medicines have to be checked out (like by googling it) individually and you check out each food that has natural flavorings, carmel coloring, and stay away from modified food starch... But you start getting a trust in certian foods and brands and expanding on that list over time. And some foods are quick and easy like avocato with salsa and a checked out brand corn chip (I eat Que Pasa in Alaska), or sweet potatoes and baked potatoes. gluten-free breads might be available in your store or you could request them. After a couple months you'll know enough to feel confident. And we are always here for you. :D

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    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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