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Testing

K Dog

By K Dog
in Introduce Yourself / Share Stuff

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K Dog Newbie
K Dog
Posted

Well I met with the Gastro on Thursday. Very informative, but also very worried. I need to eat Glutten for 3 days so when he scopes he can see what is going on in my Intestines.

Then he informs me of the much more serious form of Celiacs, not sure of the name but it devours your Intestines and has no cure. Nice thing to tell me before the test will be done. Then it takes a week for the results to come back.....ugh

My First series of blood work came back negative , which he stated is sometimes normal.

Not haveing a good week...

Kdog

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KristaleeJane Contributor
KristaleeJane
Posted

First of all, eating gluten for 3 days will not cause your tests to come back positive, unfortunately. Depending on how long you have been gluten free will also be a factor in the damage to your villi when the biopsy is done. Your blood work was negative because you are on a gluten free diet. You have to be consuming gluten for at least 3-6 weeks or longer for your blood work and your biopsy to have any accurate results. I would recommend continuing your gluten free diet, and having a genetic test done instead, where it is less invasive and you do not have to be consuming gluten for the results to come back accurate. If you are having good results on the gluten free diet then that to me is a positive result, but the only way to know for sure is to eat gluten for 3-6 weeks, or have the genetics test done.

Good Luck..

K Dog Newbie
K Dog
Posted
  • Author
First of all, eating gluten for 3 days will not cause your tests to come back positive, unfortunately. Depending on how long you have been gluten free will also be a factor in the damage to your villi when the biopsy is done. Your blood work was negative because you are on a gluten free diet. You have to be consuming gluten for at least 3-6 weeks or longer for your blood work and your biopsy to have any accurate results. I would recommend continuing your gluten free diet, and having a genetic test done instead, where it is less invasive and you do not have to be consuming gluten for the results to come back accurate. If you are having good results on the gluten free diet then that to me is a positive result, but the only way to know for sure is to eat gluten for 3-6 weeks, or have the genetics test done.

Good Luck..

My initial blood work was done 2 weeks after I started my Gluten free diet. My results have been great after going gluten free. I went to see the Gastro and he said the only way to tell 99% is by an upper G.I. and some scrapings of the walls. I am not happy about eating gluten again, however I do want to find out what it is exactly...

Worried in Wisconsin

K Dog Newbie
K Dog
Posted
  • Author
My initial blood work was done 2 weeks after I started my Gluten free diet. My results have been great after going gluten free. I went to see the Gastro and he said the only way to tell 99% is by an upper G.I. and some scrapings of the walls. I am not happy about eating gluten again, however I do want to find out what it is exactly...

Worried in Wisconsin

and then their is the worry of RCD

KristaleeJane Contributor
KristaleeJane
Posted

I am sorry, not familiar with the term RCD?

  • 1 month later...
LoraW76 Rookie
LoraW76
Posted

I'm having my first endoscopy this Friday. Blood tests were postive for celiac. I've been gluten-free for nearly 3 weeks. I wasn't told by my Dr. to eat gluten first... I accidentally ate gluten at Thanksgiving and believe me, I paid for it later.

Needless to say, I am worried about the biospy.

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    • Hmart
      Is this celiac?

      By Hmart · Posted

      Hello again. Thank you for the responses to date. I have had several follow-ups and wanted to share what I’ve learned. About a month after my initial blood test and going gluten free, my TtG went from 8.1 to 1.8. I have learned that my copper is low and my B6 is high. My other vitamins and nutrients are more or less in range. After I glutened myself on 10/24, I have been strict about being gluten free - so about a month. I have been eating dairy free and low FODMAP as well because it’s what my stomach allows. Baked fish, potatoes, rice, etc. Whole foods and limited Whole foods. I have continued to lose weight but it has slowed down, but a total of about 15 pounds since I went gluten free. Along with stomach pain, my symptoms included nausea, body and joint pain, a burning sensation throughout my body and heart rate spikes. I still have them but I have them less now. These are the symptoms that led to my doctor appointments and subsequent diagnosis. I also did the DNA screening and was positive. So, at this point, the answer is yes, I have celiac. I have two questions for this group. Any ideas on why my enteropathy was so severe (marsh 3B) and my TtG was so minimal? Is that common? Or are there other things to consider with that combo? And this recovery, still having pain and other symptoms a month later (7 weeks gluten free and 4 weeks after the glutening) normal? I’m going to continue down this path of bland foods and trying to heal but would love to understand the reasons for the long journey. I read so much about people who stop eating gluten and feel amazing. I wish that was my experience but it certainly hasn’t been. Thank you again!
    • knitty kitty
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    • knitty kitty
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    • Trish G
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      By Wheatwacked · Posted

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