Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Looks Like I Have Celiac Disease...... Advice?


realestatemom

Recommended Posts

realestatemom Newbie

I believe I've been misdiagnosed for years. I began having problems with my toes 16 years ago. I had extreme itching, lost toe nails, etc. Doctors said runners feet, fungus, yeast, then said Dermatitis. Feeling defeated, I gave up but continued changing my environment trying to make it better. I've changed soaps, shampoo's, detergents, flooring, footwear, etc.

In the mean time, I had 2 miscarriages and my youngest child has Down syndrome. I have anemia, migraines and chronic fatigue. I had partial hysterectomy due to a large fibroid, I have lived with constipation and flatulence all my life and I get terrible stomach cramps during and after some meals causing me to have to leave important or celebratory functions because of the pain. I have a fabulous, supportive husband but I have no sex drive and I am on meds for depression, anxiety and adult ADD.

All that and my toes are worse than ever, they now turn corpse purple if I'm standing or sitting and the skin is so thin that it I stub one, it explodes like a water balloon or peels like a banana.

At the beginning of the year my husband urged me to seek medical advice again, fearing that I might lose my toes (they look as if I have diabetes but I don't and they do heal very quickly). Under his persistance I begrudgingly set out on my search for answers. First, to the Dermatologist who said


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Welcome, I think your plan to make your house gluten free is a good one. I am glad they were finally able to diagnose you. The best way to start is with whole unprocessed foods. There are many good gluten free products out there so if your craving anything don't hesitate to ask if there is a replacement or recipe that will be safe. Read as much as you can here and ask anything you need to. I could be wrong but you may find those purple toes resolve. My entire arms and legs were covered in purple blotches before I was diagnosed. The doctors called it livedo reticularis but shrugged their shoulders when I asked what it was from. With all my other issues at diagnosis being purple was the least of it. LOL It went away surprisingly quickly.

I hope you heal quickly.

ang1e0251 Contributor

Welcome to the forum! I'm so glad you finally have a DX. I'm hoping you get all the relief you can. I have seen tremendous improvement in my feet after 2 yrs on the GFD. They were not nearly as bad as you describe though. Good luck!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    2. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,326
    • Most Online (within 30 mins)
      7,748

    PattyPagnanelli
    Newest Member
    PattyPagnanelli
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
    • Jane02
      Thanks @Scott Adams. Do you know if Kirkland Signature supplements share facility and production lines with other products containing gluten?  I'm worried that I'll react to this brand just like I did with other gluten-free labelled supplement brands. 
    • Matthias
    • Scott Adams
      This is a really common area of confusion. Most natural cheeses (cheddar, Swiss, mozzarella, Parmesan, brie, camembert, and most blue cheeses) are inherently gluten-free, and you’re right that the molds used today are typically grown on gluten-free media. The bigger risks tend to come from processed cheeses: shredded cheese (anti-caking agents), cheese spreads, beer-washed rinds, smoke-flavored cheeses, and anything with added seasonings or “natural flavors,” where cross-contact can happen. As for yeast, you’re also correct — yeast itself is gluten-free. The issue is the source: brewer’s yeast and yeast extracts can be derived from barley unless labeled gluten-free, while baker’s yeast is generally safe. When in doubt, sticking with whole, unprocessed cheeses and products specifically labeled gluten-free is the safest approach, especially if you’re highly sensitive.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.