Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

First B12 Shot...questions!


nu-to-no-glu

Recommended Posts

nu-to-no-glu Apprentice

I had my 1st B12 shot yesterday and holy cow, I felt like I had taken speed. I was shakey and weird. (I hadn't eaten yet, and I've also discovered via my dr. That I am hypoglycemic...so that may have had something to do with it). My dr has ordered that I get the shot twice a week (along with a loooong list of other vitamin supplements) . So, my questions are these: Is it normal to feel a little "hyper" from the shot? When will I start to notice a difference, particularly with neuropathy? The nurse mentioned that if my urine turns pink (which it did) I am not fully absorbing the shot...how do you correct this? They ordered the shots and I'm going to give them to myself, so I want to make sure I get the most out of them. I guess I'll have to put the extra surge of energy to good use and maybe go on a cleaning spree :) lol


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ang1e0251 Contributor

I've never had the shots but the B12 I take orally definately gives me a boost in energy. When I first started, I took a higher dose and had to make sure I didn't take them in the evening. They would interfere with my sleep.

Ahorsesoul Enthusiast

I do weekly B12 shots. Never felt shaky or wired after them. Wish I had, could use a little of that feeling. lol

I've never heard that you are not absorbing the B12 if your urine is pink. I always was told it was just the body getting rid of the extra B12. Maybe someone else knows about this pink urine relating to absorption problems.

B12 can work fast (12 hours) so if you look at the symptoms of low B12, you may find some of yours have improved.

Open Original Shared Link

soulcurrent Explorer

When I started taking B12 it made me feel GREAT but after a week that feeling went away.

I hope I never have to get the shots. :unsure:

nu-to-no-glu Apprentice

Thanks for the link (I'm learning so much these day from you guys)...I gave myself my other shot earlier today after a meal and didn't have the same shaky reaction. It must have been bc I hadn't eaten...maybe it was too much of a "jolt"! I hope the treatments do work soon, no numbness yet this week. It's usually sort of sporadic for me, so who knows. ;) Still not sure about the pink urine and absorption, but the excess makes sense bc I read about vitamin B50 flushing out excess. My urine is usually bright yellow after I take those. (I'm very colorful these days) :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    2. - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D

    3. - Butch68 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    4. - trents replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Taking Probiotics but Still Getting Sick After Gluten – Advice?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,211
    • Most Online (within 30 mins)
      7,748

    MogwaiStripe
    Newest Member
    MogwaiStripe
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.