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If Gluten Intolerant, Immediate Symptoms?


Spunky007

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Spunky007 Apprentice

After years of ups and downs with malfunctionng digestion, I am so determined to sort it out. I want a different kind of life so badly...a system that works. I can't even imagine!

Anyhow, first I tried a strict elimination, eating only a few foods I know generally work for me, planning to stick to that until I stabalized, then build. Sounds logical, right?

Except I can never really stabalize... I improved, ended a big flareup withing 24hr, but the general ups and downs continued.

When I freed up my diet, things like a bunch of veggies helped. Even lactose [a classic problem] didn't seem to make a difference. yet over the next few days my digestion headed downhill again...

All this time I HAVE stayed gluten free. I wanted to give it a chance because it keeps being suggesting, though I haven't had any reason to associate it with problems.

What I'm wondering is, can you tell right away if you have a reaction to gluten? With everythign so messed up anyhow, if I had a period where I was semi-stable [my usual coping mode] and ate, say, a bowl of cereal or regular bread, would I know right away if gluten for the first time in weeks was one of the key causes to my problems?\

NOTE: I can't get medical help/testing due to severe lack of finances and insurance--please, just share your experience with how I can know whether gluten is a problem or not!


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mushroom Proficient

I have a pretty immediate reaction (within an hour or two) to lactose and corn. But with gluten it can be as much as 24 hours; I will generally know by then.I believe everyone is different in this respect.

frustrated09 Newbie

I am self-diagnosed gluten and dairy intolerant as of july 09. I am still working on getting all the way gluten free. i have just recently changed shampoos, lotions, toothpaste and many other items. A vaseline lotion i just bought sunday morning and tried in the store, with in an hour my energy was draining and within a couple hours total I felt like crap for the rest of the day. If something bothers me I either get really sleepy tired and/or stomach and gut hurt or grumble. it takes from 20min to 24 hrs for it to hit me.

Marsha

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      @lizzie42, You're being a good mom, seeking answers for your son.  Cheers! Subclinical thiamine deficiency commonly occurs with anemia.  An outright Thiamine deficiency can be precipitated by the consumption of a high carbohydrate meal.   Symptoms of Thiamine deficiency include feeling shakey or wobbly in the legs, muscle weakness or cramps, as well as aggression and irritability, confusion, mood swings and behavior changes.  Thiamine is essential to the production of neurotransmitters like serotonin and dopamine which keep us calm and rational.   @Jsingh, histamine intolerance is also a symptom of Thiamine deficiency.  Thiamine is needed to prevent mast cells from releasing histamine at the slightest provocation as is seen in histamine intolerance.  Thiamine and the other B vitamins and Vitamin C are needed to clear histamine from the body.  Without sufficient thiamine and other B vitamins to clear it, the histamine builds up.  High histamine levels can change behavior, too.  High histamine levels are found in the brains of patients with schizophrenia.  Thiamine deficiency can also cause extreme hunger or conversely anorexia.   High carbohydrate meals can precipitate thiamine deficiency because additional thiamine is required to process carbohydrates for the body to use as fuel.  The more carbohydrates one eats daily, the more one needs additional thiamine above the RDA.  Thiamine is water soluble, safe and nontoxic even in high doses. Keep in mind that gluten-free processed foods like cookies and such are not required to be fortified and enriched with vitamins and minerals like their gluten containing counterparts are.  Limit processed gluten-free foods.  They are often full of empty calories and unhealthy saturated fats and additives, and are high in histamine or histamine release triggers.  It's time you bought your own vitamins to supplement what is not being absorbed due to malabsorption of Celiac disease.  Benfotiamine is a form of Thiamine that has been shown to improve intestinal health as well as brain function. Do talk to your doctors and dieticians about supplementing with the essential vitamins and minerals while your children are growing up gluten free.  Serve nutritionally dense foods.  Meats and liver are great sources of B vitamins and minerals. Hope this helps!  Keep us posted on your progress!
    • Scott Adams
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    • knitty kitty
      @SamAlvi, It's common with anemia to have a lower tTg IgA antibodies than DGP IgG ones, but your high DGP IgG scores still point to Celiac disease.   Since a gluten challenge would pose further health damage, you may want to ask for a DNA test to see if you have any of the commonly known genes for Celiac disease.  Though having the genes for Celiac is not diagnostic in and of itself, taken with the antibody tests, the anemia and your reaction to gluten, it may be a confirmation you have Celiac disease.   Do discuss Gastrointestinal Beriberi with your doctors.  In Celiac disease, Gastrointestinal Beriberi is frequently overlooked by doctors.  The digestive system can be affected by localized Thiamine deficiency which causes symptoms consistent with yours.  Correction of nutritional deficiencies quickly is beneficial.  Benfotiamine, a form of thiamine, helps improve intestinal health.  All eight B vitamins, including Thiamine (Benfotiamine), should be supplemented because they all work together.   The B vitamins are needed in addition to iron to correct anemia.   Hope this helps!  Keep us posted on your progress!
    • trents
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    • SamAlvi
      Thank you for the clarification and for taking the time to explain the terminology so clearly. I really appreciate your insight, especially the distinction between celiac disease and NCGS and how anemia can point more toward celiac. This was very helpful for me.
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