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Question About Getting Tested!

BAFARR

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BAFARR Newbie
BAFARR
Posted

:D

Hello I'm actually writing this for my boyfriend who is gluten-free. His doctor will FINALLY test him through blood work for the antibodies. He has been gluten-free (except rare cheating or mishaps) for over 1 year. His dietitian said he has to eat gluten for 2 weeks before the test or it will come out neg. His dr. said no he has to stay gluten-free for the test to work. I thought he had to eat it or he would get a false neg. Who is right because he needs to either get the blood work done soon or faster results or were going to go crazy on some foods these next 2 weeks. (Order delivery pizza, Mac & cheese, etc.) He cant go too crazy because most of the time he will probably feel sick. But at least for 2 weeks my grocery bill wont be outrageous! Thanks for your help, Bridget

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KaitiUSA Enthusiast
KaitiUSA
Posted

He needs to be on gluten for a good 3 months before getting tested...2 weeks is not long enough...what the other doctor said is just bogus and he needs a celiac lesson. Since he is gluten free it would show up negative if he had a blood test for antibodies now.

plantime Contributor
plantime
Posted

Kaiti is right. Since he was glutenfree for almost a year, he will need around three months on gluten for a proper test diagnosis. None of the bloodtests or biopsies work on someone that is glutenfree! That's like looking for poison in the blood of someone that has never taken any!

2sick2golf Newbie
2sick2golf
Posted

I have been off of wheat for 10 weeks and gluten free for 19 days. My doctor took a blood sample today to look for the antibodies. Is this test going to be reliable since I have not been consuming?

KaitiUSA Enthusiast
KaitiUSA
Posted

Yes that could very well throw the results off so you may not get an accurate reading.

Did you get a gene test as well? That will not affect the gene test so you could still find out if you have that predisposition to it. 98% have the HLA-DQ2 or HLA- DQ8 gene.

In order to get accurate testing for blood tests or biopsies it is recommended that you need to be on gluten heavily for a good 3 months.

Do you know what blood tests you just had done? Did they do a full celiac panel or just a few tests?

2sick2golf Newbie
2sick2golf
Posted

All I know is I finally convinced my rheumatologist that my problems seemed to be linked to gluten. He ordered a celiac blood test looking for antigens(?). Things improved when I quit eating wheat but then things seemed to level off. I quit gluten and things started getting better again. I had dramatic wieght loss, from 187 to 148, 5'10" used to be fit male. I don't believe the wieght loss is from rheumatoid. Thanks for the help.

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      Guinness, can you drink it?

      By Rogol72 · Posted

      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
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