Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hunger Slowly Getting Better, But Now A Different Symptom


CGally81

Recommended Posts

CGally81 Enthusiast

Okay, I first went "gluten-free" back in August. Except I continued to eat Fudgsicles, not realizing they contained gluten (malt powder, which is apparently less potent than, say, wheat, but was still causing damage without triggering my normal symptoms).

In early October, I began to have a strange and disturbing new symptom where whenever I ate food, ANY food, regardless of what type it was, I'd feel intensely fatigued and would get a headache. It was so bad I took two days off work. During that time, I took the advice of people here and stopped eating Fudgsicles. The problem became significantly (and I mean significantly!) reduced the next day.

It's still not totally gone though. Sometimes I feel the headache and fatigue after I eat, and sometimes I don't. No particular food seems to trigger it, as it's come after, or not come after, any snack or meal. It seems totally random. It can occur strongly after a simple popcorn or gluten-free Chex snack, or equally strong after a large dinner of a massive (like I said, I'm hungry a lot) cheeseburger and lots of brown rice. Or it could not occur at all. With or without digestive enzymes.

It's not nearly as strong as it was when it first came about, where at one point I actually had to lie in bed for over a half hour after eating due to how fatigued I was, so it's definitely gotten better since then.

Is this normal? Does this mean that the symptom is going away in "waves" (i.e. gets better, then worse, then better, etc. until finally gone)?

I'm thinking that may be a possibility because the "get better, then worse, then even better, then worse again" pattern is what my constant hunger has been going through (it's definitely much better than it was, say, a month ago), and what my gluten withdrawal symptoms went through (I now only occasionally have muscle spasms, and chills in my legs).

Any advice? Encouragement? Anyone else go through this? Do you think I'm still getting glutened even with the enzymes? (Though bear in mind, it occurs even when eating known gluten-free food without enzymes) Is this just a symptom that I developed from still eating gluten before, that will just go away and come and go over time?

Help!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



woodnewt Rookie

Could it be blood sugar or a food allergy or intolerance?

I was having something similar to what you are describing - horrible headaches after eating. It would start 1-3 hours after eating. It didn't seem to matter what I ate. Finally connected it to rice. Cut out the rice - no more headaches. I have no allergy to rice (blood test negative), but ANY kind of rice - white rice or brown rice, rice syrup, rice noodles, rice starch - doesn't matter - headaches.

CGally81 Enthusiast
Could it be blood sugar or a food allergy or intolerance?

I was having something similar to what you are describing - horrible headaches after eating. It would start 1-3 hours after eating. It didn't seem to matter what I ate. Finally connected it to rice. Cut out the rice - no more headaches. I have no allergy to rice (blood test negative), but ANY kind of rice - white rice or brown rice, rice syrup, rice noodles, rice starch - doesn't matter - headaches.

I hope not. I'd been eating rice my whole life. The only time I have rice - brown rice - is with some dinners, unless gluten-free chocolate Chex has rice as an ingredient (it probably does), and that I'd have as a snack only on weekdays. I'd have them and not have the headaches, and sometimes I would. In fact, the headaches were less strong today than yesterday. And I ate pretty much exactly today what I did yesterday, including a dinner with brown rice.

The headaches would occur shortly after eating. I mean, 10-15 minutes or so after, or sooner than that. Sometimes while still eating if it's a big enough meal.

I'll see if they continue to get better. The reason I felt compelled to ask yesterday is because they were pretty bad then, but not nearly as bad as the day before I cut Fudgsicles out of my diet, thus removing the last gluten-containing food I was having.

EDIT: It's 9:40am right now, and I didn't feel the headache/fatigue as strongly as I did yesterday. Furthermore, I >_> had a very large BM. The headache decreased somewhat after the trip to the bathroom. There a possible relationship?

BRUMI1968 Collaborator

Dehydration can cause fatigue and headache. I don't know how much liquid you're drinking.

Also, brown rice is pretty hard to digest, or at least that's my understanding. If you're utilizing all your energy in digestion, it is hard to have any left over. Do you get the same reaction from something like banana, or other easy to digest things?

Another thing that can cause headache is too much salt, or not enough salt - or put another way, too much expansion or too much contraction. If when you get a headache you have a salty bite of something and it feels better, you might have an expansion headache. If so, you might want to eat more contractive foods. If it does not feel better, then it is probably not an expansion headache.

All gobbledy goop I'm sure, but maybe something will strike a chord.

CGally81 Enthusiast
Dehydration can cause fatigue and headache. I don't know how much liquid you're drinking.

Also, brown rice is pretty hard to digest, or at least that's my understanding. If you're utilizing all your energy in digestion, it is hard to have any left over. Do you get the same reaction from something like banana, or other easy to digest things?

Another thing that can cause headache is too much salt, or not enough salt - or put another way, too much expansion or too much contraction. If when you get a headache you have a salty bite of something and it feels better, you might have an expansion headache. If so, you might want to eat more contractive foods. If it does not feel better, then it is probably not an expansion headache.

All gobbledy goop I'm sure, but maybe something will strike a chord.

It happens no matter what I eat. Protein? Carbohydrates? Bananas? Rice? Chicken? Popcorn? Gluten-free Chex? It happens after all of them. It also happens whether I take digestive enzymes (AFP Chewables by Houston Nutraceuticals) or not.

It's been worse before, so it might get better. I don't know. I'm hoping so.

I get enough water, I think. I'm not a big salt user.

I'm going to see an immunologist/allergist next week, and hopefully get some answers there. You think they'd be able to find something?

CGally81 Enthusiast
Dehydration can cause fatigue and headache. I don't know how much liquid you're drinking.

Also, brown rice is pretty hard to digest, or at least that's my understanding. If you're utilizing all your energy in digestion, it is hard to have any left over. Do you get the same reaction from something like banana, or other easy to digest things?

Another thing that can cause headache is too much salt, or not enough salt - or put another way, too much expansion or too much contraction. If when you get a headache you have a salty bite of something and it feels better, you might have an expansion headache. If so, you might want to eat more contractive foods. If it does not feel better, then it is probably not an expansion headache.

All gobbledy goop I'm sure, but maybe something will strike a chord.

The headaches are better today than yesterday. I ate the same foods as yesterday, and right now it's 30 minutes after a big cheeseburger and brown rice dinner, and while I don't feel perfectly fine, I don't have a nasty headache, only a dull one.

What I did do differently, though, is drink a lot more water today. I think I may have found my solution. I hope so. I'll keep drinking more water, and try to put more potassium in my diet, and see if that helps.

EDIT: Had two bananas, and that's when the headache got worse. But just went to the bathroom, and it got *slightly* better after that. Maybe I could use more fiber in my diet too? But I do think that water is helping somewhat, so I'll keep drinking more water.

EDIT #2: Okay, I later went back for another banana, and wouldn't you know it? After eating THAT banana, my headache gets better. Same food. Same circumstances (as far as I can tell: no digestive enzymes, no other food eaten with it, etc.). Yet it has a different effect. Any ideas?

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,691
    • Most Online (within 30 mins)
      7,748

    Gigi2025
    Newest Member
    Gigi2025
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Symptoms that get worse if you don't supplement is a sign of malabsorption, possibly due to Celiac disease. Blood tests for nutritional deficiencies are not very accurate, and should be done when you have been off of supplements for eight to twelve weeks, otherwise the vitamin supplements you've taken will be measured.  The blood circulation system is a transportation system.  It transports the vitamins you've absorbed around the body, but blood tests don't give an accurate picture of the vitamin and mineral stores inside organs and tissues where they are actually used.  You can have "normal" blood levels but still have deficiencies.  This is because the brain demands stored nutrients be put into the blood stream to supply important organs, like the brain and heart, while other organs do without.   If you are taking Thiamine Mononitrate in your supplements, you are probably low in thiamine.  Thiamine Mononitrate is used in many supplements because it won't break down sitting on a shelf.  This also means Thiamine Mononitrate is difficult for the body to utilize.  Only thirty percent of Thiamine Mononitrate on the label is absorbed and even less is able to be utilized by the body.  A different form of Thiamine called Benfotiamine has been shown to promote intestinal healing.   Talk to your doctor about doing a genetic test to look for Celiac markers.   I'm concerned that if you do a gluten challenge (10 grams of gluten per day for a minimum off two weeks) in your weakened state, the nutritional deficiencies will become worse and possibly life threatening.  
    • ElisaAllergiesgluten
      Hello, good afternoon!   I apologize, I didn’t see a notification and I’m just reading this. Thank you so much for sharing your thoughts and the link. Yes you are absolutely right, even so trying to get a response from them has been extremely difficult. They don’t answer but I will your practice of “guilty until proven innocent.”   I like and have a sense of trust here in this website, everyone is honest and thoughts are raw. The mutual understanding is amazing!   thank you Scott!
    • Scott Adams
    • Rejoicephd
      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Thank you for the information ill will definitely bring it into practice .
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.