Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Possibly Celiac/gluten Intolerance?


BeSeeingYou

Recommended Posts

BeSeeingYou Newbie

Hello! I'd like to thank you in advance for any help, however small, you might be able to throw my way; it looks like you get a lot of similar posts to this but I'm so unsure! I'm sorry if this is a little TMI, but it's the nature of the beast I guess!

I'm going back and forth over whether I should be tested or not, I guess I just hate the idea of going to all the trouble and it turning out to be nothing, but though my symptoms are rather mild (especially compared to some of the complaints I've read from others) they have gotten more severe over the past couple of years and I experience some of them every day to a level of some discomfort (especially in public!) and though mild it would be great to have some relief.

I never considered gluten intolerance until just this Thanksgiving. I don't eat meat and so replaced the traditional turkey with a fake meat product that is comprised almost entirely of wheat gluten (it's got a meaty texture); over the following days I experienced worse bloating than normal (and my close fit snugly but I wouldn't necessarily say my stomach was distended) as well as uncomfortable constipation and gas that was extremely foul smelling.

Outside of the more "extreme" symptoms I had following my thanksgiving meal, I experience gas and constipation on a daily basis, and diarrhea almost once a week, sometimes more and sometimes accompanied with the constipation, as well as some mild bloating throughout the week.

Daily I have this rumble in my stomach accompanied by mild gas. At work I excuse myself to the bathroom three or four times because of it, but it usually returns after ten or twenty minutes and always continues throughout the night. It feels like I need to pass gas or use the toilet but when I reach the rest room rarely does anything come.

Over the past six months or so I have had two experiences of painful sores around the corners of my mouth that I could not explain, they could be anything I guess but they were so random and having seen them on the list of possible symptoms makes me more curious if gluten intolerance or celiac might be my problem.

I bruise extremely easily, but it could be attributed to my fair skin; a hard poke will result in a bruise and I am constantly finding bruises that I can't remember getting. It got to a bit of an extreme a couple of years ago and when I was taken to the doctor for an bout of extreme fatigue I mentioned it, and she tested my hematocrit, which turned out to be low.

As a kid I had problems with ulcers as a child that the cause of was never determined; they became less frequent as I got older and disappeared for some time but I've started to experience that same pain infrequently over the past several months.

Having put them all down they seem so ambiguous and that they could be anything or a whole host of minor things, but so many appear on the list of possible symptoms that I can't help but wonder, especially after my experience after Thanksgiving.

Does this sound at all similar to anyone else's experience? Would it be worth it to be tested? Also can you experience any benefit from going gluten free in a short enough amount of time to determine whether it has any effect or not? I would love to have some kind of solution to my daily symptoms but I don't want to overreact.

Thanks again, sorry it's so rambly.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Wolicki Enthusiast
Hello! I'd like to thank you in advance for any help, however small, you might be able to throw my way; it looks like you get a lot of similar posts to this but I'm so unsure! I'm sorry if this is a little TMI, but it's the nature of the beast I guess!

I'm going back and forth over whether I should be tested or not, I guess I just hate the idea of going to all the trouble and it turning out to be nothing, but though my symptoms are rather mild (especially compared to some of the complaints I've read from others) they have gotten more severe over the past couple of years and I experience some of them every day to a level of some discomfort (especially in public!) and though mild it would be great to have some relief.

I never considered gluten intolerance until just this Thanksgiving. I don't eat meat and so replaced the traditional turkey with a fake meat product that is comprised almost entirely of wheat gluten (it's got a meaty texture); over the following days I experienced worse bloating than normal (and my close fit snugly but I wouldn't necessarily say my stomach was distended) as well as uncomfortable constipation and gas that was extremely foul smelling.

Outside of the more "extreme" symptoms I had following my thanksgiving meal, I experience gas and constipation on a daily basis, and diarrhea almost once a week, sometimes more and sometimes accompanied with the constipation, as well as some mild bloating throughout the week.

Daily I have this rumble in my stomach accompanied by mild gas. At work I excuse myself to the bathroom three or four times because of it, but it usually returns after ten or twenty minutes and always continues throughout the night. It feels like I need to pass gas or use the toilet but when I reach the rest room rarely does anything come.

Over the past six months or so I have had two experiences of painful sores around the corners of my mouth that I could not explain, they could be anything I guess but they were so random and having seen them on the list of possible symptoms makes me more curious if gluten intolerance or celiac might be my problem.

I bruise extremely easily, but it could be attributed to my fair skin; a hard poke will result in a bruise and I am constantly finding bruises that I can't remember getting. It got to a bit of an extreme a couple of years ago and when I was taken to the doctor for an bout of extreme fatigue I mentioned it, and she tested my hematocrit, which turned out to be low.

As a kid I had problems with ulcers as a child that the cause of was never determined; they became less frequent as I got older and disappeared for some time but I've started to experience that same pain infrequently over the past several months.

Having put them all down they seem so ambiguous and that they could be anything or a whole host of minor things, but so many appear on the list of possible symptoms that I can't help but wonder, especially after my experience after Thanksgiving.

Does this sound at all similar to anyone else's experience? Would it be worth it to be tested? Also can you experience any benefit from going gluten free in a short enough amount of time to determine whether it has any effect or not? I would love to have some kind of solution to my daily symptoms but I don't want to overreact.

Thanks again, sorry it's so rambly.

Welcome! There would be absolutely no harm in trying the diet. Most experience at least some relief immediately. Caution, if you want to be tested, you have to be consuming gluten, so get tested first if you want an "official" diagnosis.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - MichaelDG posted a topic in Board/Forum Technical Help
      0

      celiac.com support

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,327
    • Most Online (within 30 mins)
      7,748

    dnamutant
    Newest Member
    dnamutant
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • MichaelDG
      How do I contact someone at celiac.com concerning the cessation of my weekly e-newsletter? I had been receiving it regularly for years. When I tried to sign-up on the website, my email was not accepted. I tried again with a new email address and that was rejected as well. Thank you in advance!
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.