Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hello From Oklahoma


Ivyblaze

Recommended Posts

Ivyblaze Newbie

Well I found you thanks to a good book called the Gluten-Free diet. I have read the entire book in a day and found hopefully many answers.

My history is I have had abdominal pain for years and it is only getting worse. I have had numerous cat scans and was even hospitalized for 6 days a few years ago....noone could figure it out! My maternal aunt was recently diagnosed with ulcerative colitis, my maternal grandmother died from malignant colon cancer, there are numerous people on my mothers side whom have died from cancers, they had arthritis, thyroid issues, heart issues etc.....My mother died 5 years ago almost from unexplained issues. My family has issues with depression, anxiety, and ADHD, diabetes.

I look back and remember my grandmothers bathroom smelling horrible when she was done in there a smell that would linger. One of my maternal aunt's now deceased, had several autoimmune disorders.

I have lived with diarrhea, constipation, pain, fatigue, horrible gas, headaches, joint pain, smelly stool exactly like my grandmothers, and all the sudden my teath are in decline. I am needing to get several fillings. Also my concentration is awful and I spend great amounts of time in the restroom almost directly after eating. Sometimes it feels like my intestines are on fire.Also I have been trying to have a baby with no success for over two years, my cousin has one child and has been unable to conceive again and has been trying for over 10 years now.

I'm allergic to a lot of things, MSG, Grain dust, mold, mildew, pollen etc... They never tested me for food allergies other than the MSG. I have lost 8 immediate family members in the last four years and my own health I feel is in jeopardy. Could I have Celiac disease? Is this possible? Any help would be great. I am currently unemployed without insurance so testing at this point would not be an option.

Thank you,

Deedra in Oklahoma


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



psawyer Proficient

I think that this belongs in the pre-diagnosis forum, so I am moving it there.

Your symptoms are consistent with celiac disease, but could also have other causes. Since testing is not an option, I would suggest that you try the gluten-free diet and see what happens. If your health improves on the diet, you don't need a doctor with an official diagnosis to confirm what you body is telling you.

Ivyblaze Newbie
I think that this belongs in the pre-diagnosis forum, so I am moving it there.

Your symptoms are consistent with celiac disease, but could also have other causes. Since testing is not an option, I would suggest that you try the gluten-free diet and see what happens. If your health improves on the diet, you don't need a doctor with an official diagnosis to confirm what you body is telling you.

Thank you sooo much! What are the general costs for the blood work to be done? Does anyone know? At this point I am just glad to "maybe" have an answer. My significant other has no health problems and he loves anything fried....I'm so afraid I am going to be fixing two seperate meals every night which is more cost and more time spent. Can you make traditional southern foods celiac friendly? Are gluten free foods more expensive than regular?

At this point I have so many questions and few answers. Last night we had chicken fried steak, baked potato, macaroni and cheese, green beans and hot rolls and I paid for it....almost immediately after I was in the bathroom and uncomfortable the rest of the night....today I am still paying for it...

Jestgar Rising Star

I can't tell you how much the blood tests would cost, but seriously, you don't need them. Change your diet and see if you feel better. What you eat is under your control. You will undoubtly get a variety of opinions on this, but mine is - why pay for something that you can do for free?

Ivyblaze Newbie
I can't tell you how much the blood tests would cost, but seriously, you don't need them. Change your diet and see if you feel better. What you eat is under your control. You will undoubtly get a variety of opinions on this, but mine is - why pay for something that you can do for free?

I was looking at the cost of gluten free food and man it is expensive stuff! I looked at my local grocery store and they sure did not seem to have much available. I know there are more options on things I can try and have than what they showed surely. How long do you think it takes being on the diet to see results one way or the other? If it helps me I will definately stick with it...

Jestgar Rising Star

I had results immediately, some people say it took weeks...

I don't buy any specialty foods, just basic fruits, veggies and meats. If you think about it, the wheat based stuff is mainly cheap filler. You can skip the substitutes and be healthier for it.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      Supplements for those Diagnosed with Celiac Disease

    3. - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

    5. - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      21

      Insomnia help

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,354
    • Most Online (within 30 mins)
      7,748

    Gracieruizzz
    Newest Member
    Gracieruizzz
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.  
    • knitty kitty
      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
    • cristiana
      Thank you for your post, @nanny marley It is interesting what you say about 'It's OK not to sleep'. Worrying about sleeping only makes it much harder to sleep.  One of my relatives is an insomniac and I am sure that is part of the problem.  Whereas I once had a neighbour who, if she couldn't sleep, would simply get up again, make a cup of tea, read, do a sudoku or some other small task, and then go back to bed when she felt sleepy again.  I can't think it did her any harm - she lived  well into her nineties. Last week I decided to try a Floradix Magnesium supplement which seems to be helping me to sleep better.  It is a liquid magnesium supplement, so easy to take.  It is gluten free (unlike the Floradix iron supplement).  Might be worth a try.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.