Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Blood Tests


MJS

Recommended Posts

MJS Rookie

Hey all,

I just started college this fall. I go to Johns Hopkins and all freshmen are required to buy a (really expensive) meal plan. Since I am spending so much on it, I try to eat almost everything at the dining hall.

However, I feel like I am getting a lot of cross contamination by eating there. They keep rice waffles and rice bread for me, but I have to use the same toaster as everyone else, as well as the same ingredients for my sandwiches (lunch meat, cheese, veggies, etc.). I know that the Boar's Head meat and cheeses are gluten-free. I try to only eat things that I know what's in them (fresh fruit, veggies, plain rice), but it would not be hard for stray crumbs or flower to make their way over.

I just feel generally crappy a lot of the time.I get some similar bloating and stomach pains that I used to before my diagnosis, only not as intense.

I also have never lived in a fully gluten-free home. My mother didn't really believe that even a little bit of gluten could make me sick, and so she never got me separate butter dishes, toaster, etc. But I did feel a lot better when I lived at home and cooked all my own food.

What I want to know is, is there a blood test that I can get to measure my gluten levels? I want to know if what I am eating is making me sick, or if something else is going on.

Do I need to see a doctor to get this figured out? Can I get the blood test without a doctor's visit? Last year I "graduated" from my pediatric gastroenterologist - they said that I only needed to come back if I had any complications. But that doctor is back home.

Any help would be greatly appreciated!

Maya


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jean'sBrainonGluten Newbie

There are blood tests to see if your immune system is being stimulated by gluten exposure. They talk about them in the testing forum but basically they are

Antiendomysial antibody (IgA EMA)

Antigliadin antibody (AGA-IgA and AGA-IGG)

Tissue transglutaminase (tTG-IgA and tTg-IgG)

Total serum IgA

There's probably a student health clinic of some sort there. You might go to them and explain your prior diagnosis and current symptoms and see if they're willing to do the blood work.

Enterolab has stool and mouth swab tests you can do on your own for a few hundred dollars depending on which tests you do.

Hope this helps and you can get better soon.

JillianLindsay Enthusiast

Maya dear, you are definitely getting cc if you are sharing a toaster. I am sorry you are having to deal with this :(

You didn't ask this directly, but I feel a responsibility to mention that you should be medically exempt from your school's meal plan :)

https://www.celiac.com/gluten-free/index.ph...=discrimination

Open Original Shared Link

Jillian

Hey all,

I just started college this fall. I go to Johns Hopkins and all freshmen are required to buy a (really expensive) meal plan. Since I am spending so much on it, I try to eat almost everything at the dining hall.

However, I feel like I am getting a lot of cross contamination by eating there. They keep rice waffles and rice bread for me, but I have to use the same toaster as everyone else, as well as the same ingredients for my sandwiches (lunch meat, cheese, veggies, etc.). I know that the Boar's Head meat and cheeses are gluten-free. I try to only eat things that I know what's in them (fresh fruit, veggies, plain rice), but it would not be hard for stray crumbs or flower to make their way over.

I just feel generally crappy a lot of the time.I get some similar bloating and stomach pains that I used to before my diagnosis, only not as intense.

I also have never lived in a fully gluten-free home. My mother didn't really believe that even a little bit of gluten could make me sick, and so she never got me separate butter dishes, toaster, etc. But I did feel a lot better when I lived at home and cooked all my own food.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      4

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - Mari replied to Jmartes71's topic in Related Issues & Disorders
      18

      My only proof

    3. - Ginger38 replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

    4. - Scott Adams replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

    5. - Scott Adams replied to emzie's topic in Related Issues & Disorders
      2

      Stomach hurts with movement


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,469
    • Most Online (within 30 mins)
      7,748

    Jcarder
    Newest Member
    Jcarder
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Ginger38
      It has been the most terrible illness ever! Going on 3 weeks now… I had chicken pox as a kid… crazy how much havoc this dormant virus has caused after being reactivated! No idea what even caused it to fire back up. I’m scared this pain and sensitivity is just never going to improve or go away 
    • Mari
      OKJmartes. Skin and eyes. Also anxiety and frustration. I have read that Celiacs have more skin problems than people who do not have Celiacs. I take increased levels of Vit. D3, very high levels of B12 and an eating part of an avocado every day. KnittyKitty and others here can add what they take for skin health. A Dermatologist might identify the type of skin condition. By eyes you may mean eyesight problems not just irritated, red eyes. It is not very difficult to get a diagnosis of which eye condition is affecting your vision but much more difficult to find an effective remedy. The ophthalmologists I have seen have been only a little helpful. There seems to have been some advances in eye treatments that most of them are completely ignorant of or just won't add to their treatment plans.  Forcertain you may as well buy some remedy from a facebook ad but that is obviously risky and may actually damafe your eyes. However it is known that certain supplements , taken at the effectivelevels do help with eyesight. Two of them are Luten and zanthamin (spelling?)and certain anti-oxidants such as bilberry..    Hope this helps.
    • Ginger38
      I refused to do the gluten challenge for a long time because I knew how sick I would be: I have always had and still have positive antibodies and have so many symptoms my  GI was 💯 sure I would have a positive biopsy. I didn’t want to make myself sick to get a negative biopsy and be more confused by all this.  He couldn’t guarantee me a negative biopsy meant no celiac bc there may not be damage yet or it’s possible to miss biopsies where there’s damage but he was so sure and convinced me I needed that biopsy I went back on gluten. It was a terrible experience! I took pictures of the bloating and swelling and weight gain during the challenge. I gained 9 pounds, looked pregnant, was in pain , couldn’t work or function without long naps and the brain fog was debilitating. And in the end he didn’t get a positive biopsy… so I wish I had never wasted my time or health going through it. I haven’t been truly straightened  out since and I am currently battling a shingles infection at 43 and I can’t help but wonder if the stress I put my body under to try and get an official diagnosis has caused all this. Best of luck to you - whatever you decide. It’s not a fun thing to go through and I still don’t have the answers I was looking for 
    • Scott Adams
      It's completely understandable to struggle with the gluten challenge, especially when it impacts your health and studies so significantly. Your experience of feeling dramatically better without gluten is a powerful clue, whether it points to celiac disease or non-celiac gluten sensitivity. It's very wise of you and your doctor to pause the challenge until your holidays, prioritizing your immediate well-being and exams. To answer your questions, yes, it is possible for blood tests to be negative initially and become positive later as the disease progresses, which is why the biopsy remains the gold standard. Many, many people find the gluten challenge incredibly difficult due to the return of debilitating symptoms, so you are certainly not alone in that struggle. Wishing you the best for your exams and for obtaining clearer answers when you're able to proceed.
    • Scott Adams
      It's smart that you're seeing the gastroenterologist tomorrow. While it's possible this is a severe and persistent inflammatory reaction to gluten, the fact that the pain is movement-dependent and localized with tenderness is important for your specialist to hear. It could indeed be significant inflammation, but it's also worth ruling out other overlapping issues that can affect those with celiac disease. Is it possible you got some gluten in your diet somehow? This could be a possible trigger. Hopefully, tomorrow's appointment will provide clearer answers and a path to relief so you can get back to your lectures and enjoy your weekend. Wishing you all the best for the consultation.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.