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Connecting The Dots... Gallbladder, Hysterectomy And Fibromyalgia


ladydianab

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ladydianab Newbie

:huh: Over the last 10 yrs I have had my gallbladder out, then after a few years of several abdominal pain I had a hysterectomy. Within one year of my hysterectomy I started having severe aches and pains. I had all the tests and was dx as bulging disc and osteo arthritis. None of the treatments for the pain had any effect. I did some research and wondered if it might be fibromyalgia. The doctor said probably and prescribed amitryptaline. It works better than the other scripts. Then I had a friend talk about gluten sensitivity. I had never heard of that before.

I again, did my research. There seems to be a connection between all that I have gone through. I haven't had a lot of research from my doctor, he did a blood test and said that it was not celiacs. At the time I did not put gluten and celiacs together so I didn't even ask for further information.

I have been through the wringer with exams and tests and am paying on my hysto surgery and the various stuff for the fibro so more testing is not what I want to do.

I guess what I am asking is this the kind of thing that points to gluten intolerence? I am so tired of being tired, and feeling like I have the flu all the time. I am afraid if I complain they will find something else to take out!!! Not really but man, if I could have avoided some of all this by cutting out gluten...

So does anyone have a similar experience? Any suggestions?

Thanks in advance,

Diana


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Ahorsesoul Enthusiast

Raises three hands here. I didn't let them take out my gallbladder but they wanted to do so.

NE Mom Apprentice

Hi Diana,

I was dx'd with Fibro two years. Woke up on New Year's day exhausted and pain in my legs & arms. Symptom list grew over the next few weeks and became more severe.

This year we found out our daughter has severe issues with her immune system and multiple food allergies. I have spent a lot of time researching her conditions and decided to look into connections between food allergies & Fibro. I know that dairy aggrevates my tummy, ear, throat, and jaw. So, like you I'm wondering if it is gluten that is causing my Fibro-I'm not one of those people who just excepts what they are given but looks for the reason why.

Earlier this week I had a full celiac panel done including Anti Gliadin IgG which if elevated can indicate a gluten intolerance. I haven't received the results yet.

Have you removed gluten from your diet & seen any improvements?

Sam

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    • AlwaysLearning
      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
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      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
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