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Feeling Overwhelmbed


conway

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conway Rookie

can sonmeone help me?

i feel toatally lost.

ive got low thyrod on 175mg thyroxine,bad adrenals,low dhea ,high rt3,massively ove weight,positive celiac bloods neg biopsy and crash regularry.

i dont know what to change first or whats causing what ,im terrified and my head feels so wooly i cant concentate on a plan,i dodnt have a dr helping me and struggle every day.

Tanya.x


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missy'smom Collaborator

We not doctors and can't give medical advice as a substitute for professional help so please make the best use of the medical support you have available or find some that can support you. You should not have to bear this burden alone. Eduacate yourself and advocate for yourself. That being said, I hope that you will find this forum to be a good source of support.

Some knowledgeable doctors these days will make a diagnosis based on positive bloodwork and dietary response, with or without conclusive biopsies. There are false negatives but not false positives. You don't have to take my word for it. Check CSA, GIG or Mayo Clinic, Columbia University celiac disease Center, all have websites with info. about testing and diagnosis.

Certainly start a gluten-free diet and stick with it strictly. celiac disease affects all systems in the body so being gluten-free will help everything. There is a healing process and it takes time, longer for some than others, so you will want to take other measures to treat your other problems as well.

Start with all-natural, unprocessed foods-meats, veg., fruits, rice, etc. That will give you more time to learn the ins and outs of reading labels, dining out etc. and will help you feel better and hopefully heal quicker. You can add in products-mainstream and specialty gluten-free ones once you've got the very basic diet down. Focus on getting a good amount of quality protein at each meal to fill you and having a moderate portion of carbs. That will give you more stable blood sugar and help with more stable energy levels to keep you going.

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      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
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