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How Long To Get Coeliac Blood Test Results In Uk?

HyperGirl

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HyperGirl Newbie
HyperGirl
Posted

I had the blood tests not last Wednesday but the one before (13th January). My GP told me they would take a bit longer to come back and would be about a week. So I assumed the following Wednesday I'd get the results.

I also had some other tests done like FBC, thyroid, etc.

I phoned the next Wednesday and I asked if they had ALL come back. They checked and said they came back normal for me. I'm not sure if it included the coeliac test though.

1) Because I get nervous on the phone/interrupt people and so I don't know if I was clear enough when I asked if they had all come back.

2) If they hadn't yet come back, would they have said there are more results they are waiting to receive? Or would they not be allowed to say over the phone (at my surgery you select test results on the phone and speak to reception or something and they can't tell you the results over the phone, just if they are normal or if you need to see your GP).

3) I've had tests before and been told they are normal only to find my potassium was slightly low, nothing to worry about so I guess they would have been wrong to say phone your GP...but still...plus when my mum was tested for osteoporosis they said she had to make an appointment but it wasn't urgent...so she assumed she didn't have it...but she does! So she was pertty shocked and upset that she was mislead.

So I don't know what to think. But the main thing I need to know is how long is a week? I've read it's 5 working days for standard tests - my GP sad they take longer than normal (which suggests perhaps they don't count as standard tests)...but then she said that would be a week (which IS standard). So I'm confused and anxious about it all now :(

I may pop in or phone up tomorrow but until then could anyone here give some advice?

Thanks :)

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sicklyjackie Newbie
sicklyjackie
Posted

Hi Hypergirl

I'm also in the UK. I had my blood tests (along with the others you mention) done at the local hospital in August last year. I was told it took about a fortnight for the coeliac results to return to my surgery. Ironically when I rang for the results the receptionist said the results were okay so didn't need to see the doctor! As I was still covered in blisters (I now know I have DH) I wasn't okay and so made an appointment to see the doctor because I wanted sorting out! When I went into the surgery the doctor said my coeliac bloods were the opposite end of normal!

So if I was you I would definitely go back and see the doctor. If you think you have celiac disease you could still be referred to the gastroenterologist at your local hospital. A word of warning - don't stop the gluten if you intend to go this route. I was told to stop gluting when they discovered I had DH and now I have had to re-glute in order to have a positive biopsy result, which is hard now as I actually had a clear blood test after 4 months of gluten free living! NICE insist that this is the route to go, so we have to do it until they think of something else.

Good luck.

HyperGirl Newbie
HyperGirl
Posted
  • Author

Hi Hypergirl

I'm also in the UK. I had my blood tests (along with the others you mention) done at the local hospital in August last year. I was told it took about a fortnight for the coeliac results to return to my surgery. Ironically when I rang for the results the receptionist said the results were okay so didn't need to see the doctor! As I was still covered in blisters (I now know I have DH) I wasn't okay and so made an appointment to see the doctor because I wanted sorting out! When I went into the surgery the doctor said my coeliac bloods were the opposite end of normal!

So if I was you I would definitely go back and see the doctor. If you think you have celiac disease you could still be referred to the gastroenterologist at your local hospital. A word of warning - don't stop the gluten if you intend to go this route. I was told to stop gluting when they discovered I had DH and now I have had to re-glute in order to have a positive biopsy result, which is hard now as I actually had a clear blood test after 4 months of gluten free living! NICE insist that this is the route to go, so we have to do it until they think of something else.

Good luck.

Thank you for your reply :)

I need to see my GP in a few weeks anyway for something seperate so half of me is thinking I will wait til then to speak to them about my results etc. But the other half of me is desperate to know everything NOW...but cos I have been to the doctor so much over the past few months I start worrying they'll think I'm being paranoid/get annoyed with seeing me all the time! Which is silly cos it's their job and it's not as though they've said I'm fine but I come back every week with no symptoms and imagine things are happening :P

I can find it awkward talking to people as I have Asperger's Syndrome and often find it beneficial to write things down instead. This happened when I went to a psychiatrist about getting diagnosed with ADHD. The things I told her, from her opinion, didn't seem like ADHD, they only seemed mild or normal. But when I showed her what I'd written down, she said it was very useful and was a much clearer picture and sounded more like ADHD (and yes it turned out I do have ADHD as well)!

Not that my GP has doubted my symtpoms but I'll give it a go, just to be sure. I mean if it turns out the results are postitive then I won't need to, but if they're negative I'll need to convince them to re-test and/or get a biopsy sorted out.

I will probably get an appointment this Friday (my GP is in Monday, Tiesday, Friday, but I'll leave it til Friday as that will be over 2 weeks since the blood test) and hopefully I'll have some more news :)

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