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Gluten Challenge - Have You Done It? Need Advice!


kthies2

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kthies2 Apprentice

Anyone out there done the gluten challenge? The doc says I need to add gluten back into my diet on a daily basis for 4-8 weeks so that I can have tests done to prove I have celiac. I've been mostly off of gluten for some time so my body needs it reintroduced in order to have the tests show positive. Has anyone out there done this? How did it go? Was it worth it? Did your tests come back positive or was it a waste of time and sick days/nights on your body? Any advice on the best foods to eat so I don't gain a gazillion pounds? I'm currently 8 lbs away from my goal weight on weight watchers and don't want to blow it! Share your experience and/or thoughts please!

Thanks!


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seashele2 Newbie

I will be interested in reading what you hear back. I can't offer anything except that my daughter is facing the same dilemma. I am lab & endoscope diagnosed celiac. My uncle is as well. My husband's sister is diagnosed, not sure the method(s). My daughter gets very ill eating gluten and we removed it from her diet about a year ago. Now in order to get a verified diagnosis, she will have to go back to being sick while eating gluten for two months. She is a 16 year old college freshman planning to take classes through summer quarter too so she doesn't have two months of the year to go through that.

With celiac on both sides of my daughter's family tree, I am certain she is celiac, not "just" gluten intolerant, but to be diagnosed and counted, she needs tested. I wish there was another way to diagnose celiac.

Michelle

Western Washington State

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      @rjane, yes, it often feels overwhelming in the beginning. But let me encourage you by saying that it will get easier. You and your husband will develop, over time, a sixth sense of how gluten is typically hidden in the food supply and where it is found and you will develop an inventory of foods that you can trust and to stock your pantry with. The largest risk involves eating out at restaurants. Even if you order things that are naturally gluten free, you have no control over cross contamination happening back in the kitchen in how things are prepared and handled. Another trap is eating at other people's homes who are trying to accommodate your husband's need to eat gluten free but...
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      Has your hubbie been checked for SIBO (Small Intestinal Bacterial Overgrowth)? This is not uncommon in the celiac population. https://my.clevelandclinic.org/health/diseases/21820-small-intestinal-bacterial-overgrowth-sibo
    • terrymouse
      Update: I got a call on Monday from the GI doctor's office, they had a cancellation and an appointment opened up for Tuesday. Not much time to prepare, but I went ahead and did it anyway. I haven't been gluten free at any point, but I haven't really loaded up as much as was recommended, either. It takes another 6-8 weeks to get the results, so I'd rather get it done now. I just hope it will be enough and I won't have to try again and delay it even longer. Thanks for the recommendations and thoughtful responses, much appreciated. I will be following up with my GP soon to check for nutritional deficiencies while I'm waiting on the test results.  
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