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Light Headedness


mmm

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mmm Newbie

Does light headedness sometimes happen in conjunctiobn with Celiac Sprue, with Dermatitis Herpetiformis?


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jenvan Collaborator

I would say absolutely. ...whether from associated fatigue, anemia, vitamin deficiency... and I'm sure there are others. So, the stort of it is yes !

KaitiUSA Enthusiast

Yep I had that as one of my symptoms. Wasn't really a prominant symptom of mine but I did get it sometimes. There are over 200 symptoms associated with celiac so there is a wide variety and everyone can get different ones. Some may not even get symptoms. Do you have celiac? Or suspect you do?

rmmadden Contributor

Definitely Yes! It does get better over time with being on the gluten-free diet.

watkinson Apprentice

Hi, mmm,

I'm sorry if you are experiencing lightheadedness. :(

People with celiac disease can experience a miraid of symptoms. Many can effect the brain or mind, like brain fog, dizziness, lightheadedness. Phsycological problems as well, like depression. Or worsening of conditions like ADD, ADHD, Bi Polar disorder, schytsophrenia (sp) autism ect.

You can look at the thread on this site for celiac disease and related disorders to get more info.

Make sure you are really completely gluten-free and not getting accidental gluten somewhere. You can also check out the thread on safe and forbidden foods for the celiac.

Good luck,

Wendy

ianm Apprentice

Lots of lightheadedness, dizzyness for me in the dark pre-gluten-free diet days. No longer a problem for me now.

Saw Newbie

I'm new to this site... I used to get lightheadedness alot before I went gluten-free. The past few days I've been feeling dizzy and having joint pain, very puzzling, since I ALWAYS read the labels of everything I put in my mouth....but for some reason I didn't read the label of the bacon my husband purchased (who's usually GREAT at reading every ingred.)....soy sauce in the bacon! I'm learning everyday about what to eat and what not to eat and learning how to read my body... it's as if I can feel the gluten running through my joints! I feel light-headed right now ;) , there are alot of symptoms, mine are pretty atypical (no-gastro prob.), but lightheadedness is definitely one of mine.


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    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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