Need Help With Symptoms And Test Results, Very Confused

[Teed073193]

I have been tested for Celiac with blood test and endoscopy with biopsy. I have also had a colonoscopy with biospy. I am not sure what the result mean or what to do next can someone help me?

My dad has Crohn's and I have had stomach problems for a long time. Some of my symptoms are abdominal pain, bloating, extreme diarrhea all within mins of eating (not all the time but sometimes, it comes and goes), most always have diarrhea when I drink coffee, orange juice, tea, and grape juice. I also have very low vitamin D. I am very tired all the time do not sleep well (may be because of working swing shifts but never really slept good), I also get very irritable very easily. I have had hives sometimes when I eat, I can have the same thing to eat two days in a row and have hives one day and not the other. I have joint pain in my knees since I was 14 (I am now 36) and now my lower back hurts alot. My Dr said that I have IBS, is that what it is or something else? After reading about celiac I was sure that I had it but the biopsy was negative, how ever the blood test showed only one anitbody positive for celiac.

The Dr said the my small intestines was inflammed. The biopsy did not show any signs of crohn's, colitis, no aphthous ulcers, they also said I did not have celiac. I had inflamed villi in the terminal ileum which the copy of the test results said suggestive of ileitis. What is this and what do I do about it?

blood test results

Gliadin Antibody IgG <3

reference range <11 negative

11-17 equivocal

>17 positive

Gliadin Antibody IgA (high) 25

reference range <11 negative

11-17 equivocal

>17 positive

Endomysical Ab (IgA) screen negative

tTG-IgG Ab: <3

reference range <7 negative

7-10 equivocal

>10 positive

tTG IgA Ab: <3

reference range <5 negative

5-8 equivocal

>8 positive

IgA: 293

reference range 81 to 463

Please help me find out what this is?!

Thanks

[Jean'sBrainonGluten]

I have been tested for Celiac with blood test and endoscopy with biopsy. I have also had a colonoscopy with biospy. I am not sure what the result mean or what to do next can someone help me?

My dad has Crohn's and I have had stomach problems for a long time. Some of my symptoms are abdominal pain, bloating, extreme diarrhea all within mins of eating (not all the time but sometimes, it comes and goes), most always have diarrhea when I drink coffee, orange juice, tea, and grape juice. I also have very low vitamin D. I am very tired all the time do not sleep well (may be because of working swing shifts but never really slept good), I also get very irritable very easily. I have had hives sometimes when I eat, I can have the same thing to eat two days in a row and have hives one day and not the other. I have joint pain in my knees since I was 14 (I am now 36) and now my lower back hurts alot. My Dr said that I have IBS, is that what it is or something else? After reading about celiac I was sure that I had it but the biopsy was negative, how ever the blood test showed only one anitbody positive for celiac.

The Dr said the my small intestines was inflammed. The biopsy did not show any signs of crohn's, colitis, no aphthous ulcers, they also said I did not have celiac. I had inflamed villi in the terminal ileum which the copy of the test results said suggestive of ileitis. What is this and what do I do about it?

blood test results

Gliadin Antibody IgG <3

reference range <11 negative

11-17 equivocal

>17 positive

Gliadin Antibody IgA (high) 25

reference range <11 negative

11-17 equivocal

>17 positive

Endomysical Ab (IgA) screen negative

tTG-IgG Ab: <3

reference range <7 negative

7-10 equivocal

>10 positive

tTG IgA Ab: <3

reference range <5 negative

5-8 equivocal

>8 positive

IgA: 293

reference range 81 to 463

Please help me find out what this is?!

Thanks

[Jean'sBrainonGluten]

Sorry about the earlier post - I haven't been on the forum for awhile.

I have no idea precisely what is happening with you but I would suggest doing some kind of rotation elimination diet with a food/symptom log to try to get clarity. To start with I seemed to have so many problems that it was hard for me to sort out, like you.

Initially I did a three day elimination diet with subsequent food challenges - that didn't five me any information. Later, I did a two week elimination diet followed by several days of challenges. I can't find the particular protocol that I used but here's a brief link that talks about a general plan.

Open Original Shared Link

Anyway, I did feel better on the two week elimination phase then started doing challenges - the idea with my particular protocol is that you eat a small amount of the challenge food in the morning, to see if there's a reaction, then a large amount later if there's no reaction. My doctor had me drink a teaspoon of baking soda in a cup of water to help calm any reactions. Well, when I ate wheat I got horribly dizzy and used the baking soda - which seemed to help (I don't know why). Since then I've noted that I do better if I avoid most grains.

So, you might try an elimination diet and see what happens. I hope you are able to get some clarity and feel better.

Jean

[Wolicki]

I believe that the Gliadin antibody being positive is a positive for Celiac. I know of very few Celiacs who have all the 4 indicators positive. I think you should start the gluten free diet, and probably eliminate all the foods that currently bother you in addition to gluten, then after at least 6 months, then challenge those other foods. I betcha you will feel tons better.