Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Blood Results Received

julie5914

Recommended Posts

julie5914 Contributor
julie5914
Posted

So, I was very surprised to have positive blood results and honestly I need to be told by somebody that this means I do in fact have Celiac before I can be gluten free. My symptoms:

-bloating

-weight gain

-sluggishness

-brain fog

-anemia (may have been because of ulcer)

-IBS symptoms - totally spastic large intestine

Here are my results:

- Gliadin IGG 106.3

- Gliadin IGA 61.2

- Edomysl IGA positive

I am a carbaholic! If this really does mean that I have celiac, can you recommend any good books for learning to be gluten free and to scare me into sticking to it?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


KaitiUSA Enthusiast
KaitiUSA
Posted

Yep you have it....the EMA which you tested positive for is a very specific test and is almost unheard of to have a false positive there. Your results are overwhelmingly high.

There is a statistic thread on here now. If you do not adhere to the diet it knocks an average of 10 years off of your life and increases your chance of cancer by 40-100 times. It also increases chances of other life threatening and disabling illnesses. If that's not enough to scare you into following it then I don't know what is.

Guest nini
Guest nini
Posted

Julie, your blood test results are like mine. Unusually high. YES you have Celiac and Gluten is POISON to your body. Just remind yourself every time you start to doubt this that GLUTEN IS POISON, GLUTEN IS POISON, IF I EAT GLUTEN I AM KILLING MYSELF WITH POISON.

Your symptoms are also like mine BEFORE the celiac kicked into full gear and almost killed me. I had a year of living in hell, rushing to the emergency room, heart pain, severe vomiting and big "d", dehydration, anemia, hypoglycemia, high blood pressure, hypothyroid, high cholesterol , and on and on.

julie5914 Contributor
julie5914
Posted
  • Author

Why do so many doctors feel that the blood test is not good enough? I happened to have my OB/GYN appt. yesterday, so I told her about it - she seems quite knowledgeable- her sister is celiac, but she said I need to go see a gastro specialist to make sure it is celiac because no one is sure how accurate those blood tests are for diagnosing. She mentioned that the false positives are not too high, but if they tested everyone for the anitbodies, they might have a lot more false positives. She is a great doctor and I respect her very much, so I am trying to get a specialist now to get his opininon on it. She also of course mentioned that she was probably not the best person to talk about it with, seeing as how she specializes in other things. :) Good news is that it is definitely not a cyst causing the trouble. Yay!

I was gluten free this weekend and didn't feel great or awful. Then I got worried that I would get a false neg. on a endoscopy (which for some reason I think will happen anyway) and started eating a bunch of gluten. I started falling asleep during my favorite show at 9pm and am now completely stopped up. :( I hope I get whatever tests he may want soon so that I can go back to gluten-free.

julie5914 Contributor
julie5914
Posted
  • Author

Uff, I can't get in to see the specialist's nurse praticioner even until June 17th, and they want me to keep eating wheat until then! (And probably after then, cause I imagne they are not doing a scope that day!)

egardner Newbie
egardner
Posted

Julie, I went through what you went through with not being able to see doctors quickly and having some tell me the blood test doenst mean you have celiac disease. I cancelled my scope at the last minute and decided my symptoms were serious enough that I was goint to take action. Nearly two weeks gluten free, life is beautiful. At my follow up, the GI guy acted like he had totally agreed with me all along. Because I am responding so well to the diet, he said it was obvious I had celiac disease when you couple that with my blood tests. (similar to your results) It is so funny how doctors cant admit that sometimes you dont need to do tons of crazy tests, just go with it. Good luck to you, I know how miserable the waiting can get. And remember what Kaiti said about the cancer, I know three people in my family alone who died of rare stomach cancers, and now that is being linked to celiac disease as a result of my tests.

Guest nini
Guest nini
Posted

Julie, my GI doc based on my blood test results (like yours) told me to start the gluten-free diet IMMEDIATELY. No waiting around for scopes, no gluten challenges, no cheating ever, he said that it was definite based on my symptoms and the positive blood test result that I have celiac... I'm so thankful that he did that because I was able to start feeling better much sooner.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. cristiana
      - cristiana replied to Ginger38's topic in Related Issues & Disorders
      15

      Shingles - Could It Be Related to Gluten/ Celiac

      Thank you for your thoughtful contribution, @Tazfromoz. I live in the UK and the National Health Service funds free vaccines for people deemed to be at heightened risk. I was pleasantly surprised to discover that as a coeliac in my 50s I was eligible for this vaccine, and didn't think twice when it was offered to me. Soon after diagnosis I suffered...
    2. Tazfromoz
      - Tazfromoz replied to Ginger38's topic in Related Issues & Disorders
      15

      Shingles - Could It Be Related to Gluten/ Celiac

      My understanding, and ex I erience is that we coeliacs are likely to suffer more extreme reactions from viruses. Eg we are more likely to be hospitalised with influenza. So, sadly, your shingles may be worse because you are coeliac. So sorry you had to go through this. My mother endured shingles multiple times. She was undiagnosed with coeliac disease until...
    3. hjayne19
      - hjayne19 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Celiac Screening

      Hi all, Looking for some advice. I started having some symptoms this past summer like night sweats and waking at 4 am and felt quite achy in my joints. I was training heavily for cycling for a few weeks prior to the onset of these symptoms starting. I have had low Ferratin for about 4 years (started at 6) and usually sits around 24 give or take. I was...
    4. yellowstone
      - yellowstone posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Cold/flu or gluten poisoning?

      Cold/flu or gluten poisoning? Hello. I've had another similar episode. I find it very difficult to differentiate between the symptoms of a cold or flu and those caused by gluten poisoning. In fact, I don't know if my current worsening is due to having eaten something that disagreed with me or if the cold I have has caused my body, which is hypersensitive...
    5. Churro
      - Churro replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Celiac disease symptoms

      I'm no longer dealing with constipation. I got my liver test last month and it was in normal range. Two years ago I did have a vitamin D deficiency but I'm know taking vitamin D3 pills. Last month I got my vitamin D checked and it was in normal range. I don't believe I've had my choline checked. However, I do drink almond milk eat Greek yogurt on a daily...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,076
    • Most Online (within 30 mins)
      7,748
    Monica L
    Newest Member
    Monica L
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • cristiana
      Shingles - Could It Be Related to Gluten/ Celiac

      By cristiana · Posted

      Thank you for your thoughtful contribution, @Tazfromoz. I live in the UK and the National Health Service funds free vaccines for people deemed to be at heightened risk.  I was pleasantly surprised to discover that as a coeliac in my 50s I was eligible for this vaccine, and didn't think twice when it was offered to me.  Soon after diagnosis I suffered mystery symptoms of burning nerve pain, following two separate dermatomes, and one GP said he felt that I had contracted shingles without the rash aka zoster sine herpete.  Of course, without the rash, it's a difficult diagnosis to prove, but looking back I think he was completely spot on.  It was miserable and lasted about a year, which I gather is quite typical. For UK coeliacs reading this, it is worth having a conversation with your GP if you haven't been vaccinated against shingles yet, if you are immunosuppressed or over 50. I have just googled this quickly - it is a helpful summary which I unashamedly took from AI, short for time as I am this morning!   My apologies. In the UK, coeliac patients aren't automatically eligible for the shingles jab unless they're severely immunosuppressed or over the general age for vaccination (currently 50+) but Coeliac UK recommends discussing the vaccine with a GP due to potential splenic dysfunction, which can increase risk, even if not routine for all coeliacs. Eligibility hinges on specific criteria like weakened immunity (chemo, certain meds) or age, with the non-live Shingrix vaccine offered in two doses to those deemed high-risk, often starting from age 18 for the immunocompromised.
    • Tazfromoz
      Shingles - Could It Be Related to Gluten/ Celiac

      By Tazfromoz · Posted

      My understanding, and ex I erience is that we coeliacs are likely to suffer more extreme reactions from viruses. Eg we are more likely to be hospitalised with influenza. So, sadly, your shingles may be worse because you are coeliac. So sorry you had to go through this. My mother endured shingles multiple times. She was undiagnosed with coeliac disease until she was 65. Me at 45. I've had the new long lasting vaccine. It knocked me around badly, but worth it to avoid shingles.
    • hjayne19
      Celiac Screening

      By hjayne19 · Posted

      Hi all,  Looking for some advice. I started having some symptoms this past summer like night sweats and waking at 4 am and felt quite achy in my joints. I was training heavily for cycling for a few weeks prior to the onset of these symptoms starting. I have had low Ferratin for about 4 years (started at 6) and usually sits around 24 give or take. I was doing some research and questioned either or not I might have celiac disease (since I didn’t have any gastric symptoms really). My family doctor ran blood screening for celiac. And my results came back: Tissue Transglutaminase Ab IgA HI 66.6 U/mL Immunoglobulin IgA 1.73 g/ My doctor then diagnosed me with celiac and I have now been gluten free for 3 months. In this time I no longer get night sweats my joint pain is gone and I’m still having trouble sleeping but could very much be from anxiety. I was since referred to an endoscopy clinic to get a colonoscopy and they said I should be getting a biopsy done to confirm celiac. In this case I have to return to eating gluten for 4-6 weeks before the procedure. Just wanted some advice on this. I seem to be getting different answers from my family physician and from the GI doctor for a diagnosis.    Thanks,  
    • yellowstone
      Cold/flu or gluten poisoning?

      By yellowstone · Posted

      Cold/flu or gluten poisoning? Hello. I've had another similar episode. I find it very difficult to differentiate between the symptoms of a cold or flu and those caused by gluten poisoning. In fact, I don't know if my current worsening is due to having eaten something that disagreed with me or if the cold I have has caused my body, which is hypersensitive, to produce symptoms similar to those of gluten poisoning.        
    • Churro
      Celiac disease symptoms

      By Churro · Posted

      I'm no longer dealing with constipation. I got my liver test last month and it was in normal range. Two years ago I did have a vitamin D deficiency but I'm know taking vitamin D3 pills. Last month I got my vitamin D checked and it was in normal range. I don't believe I've had my choline checked. However, I do drink almond milk eat Greek yogurt on a daily basis. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.